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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Im back! After 7 years, the CH Devil returns!

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Im back! After 7 years, the CH Devil returns! (Read 784 times)

piratebyday

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Im back! After 7 years, the CH Devil returns!
Oct 21^st, 2011 at 11:45am

Hi Guys!
I used to be on this Great site, quite a while ago. It helped me so much. It taught me to educate my uninformed doctors about my condition.

After having my first round with the devil, over a 4 year period .... Miraculously He stepped out of my life, and I went into remission for almost 8 years.

Well, ladies and Gentleman --- My demon has returned (with a vengeance) - Got my first attack about a year ago, and I knew Exactly what was happening to me, but I think, I was in denial. 3 days later attack number 2, 2 days after that attack number 3 (this one sent me to the ER @ 3am) - That certainly ended my denial - made my appointment with a Dr. , to get on my old friends, O2 and Imitrex. Last night the devil hit me for the 4th time ..... now, I am in that fear-mode again. I HATE THIS DEVIL!!!!

I took the those pain-free years for granted.

Just wanted to introduce myself, and hopefully learn about any new remedies, meds, advice .... I pray for all of you CH'ers. This devil we deal with, needs to be destroyed!

Thanks,
piratebyday

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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Im back! After 7 years, the CH Devil returns! Reply #1 - Oct 21^st, 2011 at 11:49am The most recent evaluation of meds in the PDF file, below.
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piratebyday CH.com Newbie Offline I Love CH.com! Posts: 2	Re: Im back! After 7 years, the CH Devil returns! Reply #2 - Oct 21^st, 2011 at 12:05pm Thank you , Thank you, Thank you! Im so happy this support group is still so alive and well.
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ttnolan CH.com Veteran Offline beats me Posts: 247 Scotts Valley, CA Gender:	Re: Im back! After 7 years, the CH Devil returns! Reply #3 - Oct 21^st, 2011 at 5:22pm All I can say is stay up to date and ready! I thought I had my treatment all worked out... by the time I realized the game had changed, I had missed out on a lot of stuff here that could have helped.
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Guiseppi

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San Diego to Florida 05-16-2011

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Re: Im back! After 7 years, the CH Devil returns!
Reply #4 - Oct 21^st, 2011 at 6:17pm

As far as new stuff:

Go to the meds section, read the post "123 pain free days and I think I know why" An otc regimen that's providing a lot of people relief.

Peruse the oxygen link below, we've tweaked delivery systems and flow rates and have seen a dramatic increase in success rates:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Sorry the bastard never seems to lose your address. Welcome back.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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LasVegas

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Episodic CH since 11 yrs
old, now 50.

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north of the 60th parallel
Gender: male

Re: Im back! After 7 years, the CH Devil returns!
Reply #5 - Oct 22^nd, 2011 at 9:18pm

Sorry to read after 7 yrs remission you are attacked again.

I am on the same drowning battleship as you, trying to stay afloat as I had a 6 yr remission and then got hit out of nowhere 11 weeks ago and enduring a very torturous cycle.

Like mentioned above, the anti-inflammatory regimen and the higher flow (40LPM--60LPM) 02 recommendations are new treatments proven beneficial to many of us.

Hang in there, read and learn, post often, we are all here in this together, you are not alone! Wink

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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wimsey1

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Re: Im back! After 7 years, the CH Devil returns!
Reply #6 - Oct 24^th, 2011 at 8:09am

Like the others, we are glad to have you back and sorry you had to come back. I'm surprised it wasn't mentioned yet (or I missed it) but many of us have found coupling a taurine/caffeine energy drink with high flow O2 makes the O2 more effective in bringing about an abort. It seems the brand is personal preferenfce so long as there is 1000mg taurine present. I prefer Monster 16oz drinks myself. I slam one as cold and as quickly as I can and then hit the O2 tank. Good luck and God bless. lance

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