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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Worse one ever!!!!!!

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Worse one ever!!!!!! (Read 1121 times)

Bonnie lee

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Worse one ever!!!!!!
Nov 2^nd, 2011 at 11:30am

Last night was just awful. It was the worst one I have ever had. No shadows, no warning what so ever. It was just there and suddenly I am rolling back and forth on the bed, I am squeezing my temples, hyperventilating, my body is shaking.... I am talking to myself and begging god to kill me.
I am actually drooling. Oxygen, ice pack, energy drink, sumatriptan. I can't see out of my left eye. I don't know if that was because I had the ice pack buried I to my eyeball or what that was about.
When I started feeling better I went in the bathroom. My face was white. Like a ghost!
I can't handle this anymore. I am doing everything the doc has been telling me to do. Called John Hopkins hospital and trying to get an appointment with their headache specialist.

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Worse one ever!!!!!! Reply #1 - Nov 2^nd, 2011 at 11:53am Bonnie, I am so sorry for the suffering you're going through. Every one of us totally understands. Lets pray that John Hopkins can help you. This alternate treatment have had amazing results for sufferers. Check it out. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	Hurt people.....hurt people. Think about it. IP Logged

LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: Worse one ever!!!!!! Reply #2 - Nov 2^nd, 2011 at 7:25pm Hang tough Bonnie Lee
Back to top	Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019 IP Logged

Bonnie lee CH.com Veteran Offline I Love CH.com! Posts: 131	Re: Worse one ever!!!!!! Reply #3 - Nov 2^nd, 2011 at 7:35pm Thanks. I am really really trying to hang in there. it sure sucks. feeling better today just extremely tired. went to work anyway. going to bed and calling it an early night tonight. I hate the devil
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Worse one ever!!!!!! Reply #4 - Nov 2^nd, 2011 at 10:16pm What Linda said! All the best, Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

wimsey1

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Re: Worse one ever!!!!!!
Reply #5 - Nov 3^rd, 2011 at 7:38am

Two years ago I was on the verge of calling Johns Hopkins and getting an appointment, even though I live nowhere near it. They do some innovative (experimental) stuff, especially with implants. i am sure they also offer traditional means of breaking the cycle, too. Praying for you, BonnieLee. Have courage. Keep faith. Fight and holler all you need to. I've been there and one of my greatest fears is returning. God bless. lance

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Bonnie lee

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Re: Worse one ever!!!!!!
Reply #6 - Nov 3^rd, 2011 at 12:18pm

Well I talked to my neurologist today and mentioned the loss of eyesight during my last episode and his response was.... You probably literally froze your eyeball with the ice pack.

Called John Hopkins and the wait for an appointment is 6 months but I can fill out a form saying why I need to get in earlier and they will try to fit me in.

John Hopkins is only 45 minutes from here. I am up for any experimental anything at this point.

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