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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › hi all

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hi all (Read 488 times)

dubgirl

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I Love CH.com!

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Dublin, Ireland
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hi all
Dec 11^th, 2011 at 7:27am

Hi guys ,
Just wanted to introduce myself, Im a newbie lol , I was diagnosed last year with cluster headaches, My first attack last for 23 weeks and hospitalised me , thank god my headaches dont last as long now.. my current headache i have 4 days now... It is so good to find a site that i can post to as sometimes it can be so frustrating that i cant get my family to understand what i am going through, they just keep saying go to a different doctor get a second opinion , what they dont understand is that i have seen all the specialists and the doctors and had the tests and still no answers. over the last few attacks that i have had i have noticed a new symptom that is occurring , its a bit hard to describe but i will try ... When my headache is reaching its "peak" my body feels like it is trembling on the inside.. thats the best way to describe it, I was just wondering if any one else gets these tremors or feelings ? ..

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Bob Johnson

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"Only the educated are
free." -Epictetus

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Kennett Square, PA (USA)
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Re: hi all
Reply #1 - Dec 11^th, 2011 at 8:16am

The central question is: are you working with a doctor who is a specialist in headaches? If not, suggest you probe your medical system to see how to get referred to a headache clinic.

Contact this support group to see if hey can help with this issue: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

My impression, from a number of members in your area, is that your local docs are lacking in knowledge/skill working with headaches. That suggests a move to a speciality clinic, if at all possible.

In the meantime, it would help us if you would outline your medical history around Clusters: treats used, dosing, duration of use, etc.; do you have specific questions?

Just as a guide to the more common meds used for Cluster, see the PDF file below. You might print it out and use as a discussion tool with the doc.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

(96 KB | 16 )

Bob Johnson

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Tate CH.com Junior Offline Taking control of what I can. :) Posts: 44 New York, NY Gender:	Re: hi all Reply #2 - Dec 11^th, 2011 at 3:02pm Hi there, Just wanted to say hello and glad you found this place and many who understand your frustration and pain. Hope I can be of support if needed. Feel good! Tate
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wimsey1

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MA
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Re: hi all
Reply #3 - Dec 13^th, 2011 at 8:53am

Welcome, Dubgirl. Sorry you need to be here, but as Bob has suggested, we may be able to help. Please do fill us in a bit more on your history with these things: how you were diagnosed, what your cycles are like, and how you've been treated. We know some about what works and doesn't work. I look forward to hearing more from you. Blessings. lance

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