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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New boy!

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New boy! (Read 1189 times)

alex mac

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Grimsby,UK.
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New boy!
Dec 16^th, 2011 at 2:12pm

Wow! What a fantastic bunch of people on CH.com. I've been reading the forum and I'm amazed how upbeat and helpful the members are to each other. 'Spot On'.
I'm a 38 year old male who has suffered from these little beauties (episodic) since the age of 13. It has only been the last three years I have known what has been wrong with me. Years of seeing doctors, scans and ER trips thinking I was going mad until my wife diagnosed me through reading an article in a magazine. (Brilliant!)
What a relief to actually know what was wrong with me and to start chasing up the right meds from my doctor, which took time.
My heads have just started again but feeling confident as I have o2 and meds to hand for the first time. I am going to use the o2 and hold out on the meds until I know how harsh and frequent they come this time.
Depression hit pretty hard on last years bout of clusters so I would like to get enough info together on what of my meds I should be taking, if needed. Ha! Hark at me, give it a few days and I'll be taking the lot and crying like a baby again! Lol!
I have to say I'm a lucky man to have a wife that looks after me when I have my heads and puts up with me when I'm okay.
All my best to everyone! Great Site!!

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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: New boy! Reply #1 - Dec 16^th, 2011 at 2:15pm Keep on huffin that O2 Potter
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Guiseppi

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San Diego to Florida 05-16-2011

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SAN DIEGO, CALIFORNIA USA
Gender: male

Re: New boy!
Reply #2 - Dec 16^th, 2011 at 3:39pm

Welcome to the board, I hear you, my wife found this site and saved my sanity. She always keeps my oxygen and meds stocked, a supporter like that is a real blessing. Take a look at this site also:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

They have a lot of info that is specific to your side of the pond.

Then read thru this link to make sure you're getting the maximum benefit from your oxygen:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Finally, go to the medications area and read the post "123 pain free days and I think I know why" A daily vitamin anti inflammatory supplement that's been helping many on the board.

Welcome home.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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alex mac

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Grimsby,UK.
Gender: male

Re: New boy!
Reply #3 - Dec 16^th, 2011 at 4:04pm

Thanks for your response Joe. I will take a look at the sites you have given me. Am doing okay at the moment. Over the past 3 days I have had 3 CH at about 80% and the rest are just letting me know that they are still there! Not affecting my sleep patterns as yet. Keeping active playing plenty of golf in the fresh British winter weather, which helps! The neurologist has prescribed me Verapimil, Prednisolone, Imigran Nasal Spray and Trazadone to help me sleep and of course, o2! So i think i'm well prepared!
Hope lifes good for you over the pond.

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alex mac

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Grimsby,UK.
Gender: male

Re: New boy!
Reply #4 - Dec 18^th, 2011 at 4:56am

Yep! back into my routine with my heads,go to bed wake up within 2hours"ouch" wake up in the morning within 1hour "ouch" then followed by 3 in the day.Whoever has that voodoo doll of me wants to get a life & take a break! I have a holiday booked to Turkey all inclusive for a week with my friends in five weeks time, so im hoping they piss off in time so I can go and have a beer or ten, so "fingers crossed"!

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: New boy! Reply #5 - Dec 18^th, 2011 at 9:38am Crossing my fingers you will have bootd the beast from your abode by then! Joe
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wimsey1

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MA
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Re: New boy!
Reply #6 - Dec 19^th, 2011 at 7:06am

Just a thought...you can't fly with O2, but there are companies who work with overseas delivery. It is possible you can pick up an O2 cannister when you arrive in Turkey. Also, if you try the imitrex route, you can fly with those, either using them as autoinjectors, which might be best on a plane, or the imitrex tip at the left. Hate to see your vacay get ruined by the beast. Hang in there. We know what you're experienceing, we hate it for you and with you. God bless. lance

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alex mac CH.com Newbie Offline I Love CH.com! Posts: 5 Grimsby,UK. Gender:	Re: New boy! Reply #7 - Dec 20^th, 2011 at 10:35am HI Lance,Thanks for the post,I'm looking to see if it possible to have a supply of 02 on my hols & also seeing if my doctor prescribe me some imitrex injections.I'll have to see how i am closer to the time.Feel like crap at present,but staying optimistic.Hope lifes good for u?
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Batch

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Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: New boy!
Reply #8 - Dec 21^st, 2011 at 2:13am

Hey Alex,

BOC, AGA and LifeGas are part of the Linde Group and all support OxyTravel...

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

I've used this service on travel to the UK, Germany, Switzerland, and Norway many times and the oxygen cylinder was there waiting for me when I arrived at my travel destination.

Take care,

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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