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Triggers (Read 3108 times)
mikstudie
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Re: Triggers
Reply #25 - Feb 7th, 2012 at 4:20pm
 
Only one I know is beer..
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IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!!
 
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thebbz
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Re: Triggers
Reply #26 - Feb 7th, 2012 at 4:57pm
 
Relaxing..... Smiley Smiley Smiley Smiley Smiley
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Bob P
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Re: Triggers
Reply #27 - Feb 8th, 2012 at 7:03am
 
Ya know how to tell the difference between Grizzley bear poop and black bear poop?  Grizzly poop has little bells in it and smells like pepper spray.
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Re: Triggers
Reply #28 - Feb 8th, 2012 at 9:50am
 
Low pressure systems that come along with rain seem to make things worse; alcohol, and even simple hunger are often enough to bring one on. I usually make sure to eat right on time when in the middle of a cycle to keep the hunger away.

Tobacco smoke also seems to have a bad effect for me (I'm a non-smoker).
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LasVegas
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Re: Triggers
Reply #29 - Feb 8th, 2012 at 10:48am
 
Bob P wrote on Feb 8th, 2012 at 7:03am:
Ya know how to tell the difference between Grizzley bear poop and black bear poop? Grizzly poop has little bells in it and smells like pepper spray.


Cute. Wink But realistically both bear types will maul upon any contact with their cubs and black bears are actually more aggressive. I always take a shotgun with me when going into bear country.

Dinnerbells and pepper spray are worthless deterrents and just triggers to the bear!

-Gregg in Las Vegas
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« Last Edit: Feb 8th, 2012 at 10:49am by LasVegas »  

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2014
 
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krys
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Re: Triggers
Reply #30 - Feb 8th, 2012 at 2:04pm
 
Follow up to this: can anyone send me a link to any kind of study/published material about triggers for cluster headaches? (And frequency.)

My husband's neurologist, who is a headache specialist, today said she isn't sure if he actually has cluster headaches because clusters aren't usually triggered by something (we mentioned that of the 7-8 cluster attacks he's had in the last 3 months, at least half of them have been triggered by walking through/accidently inhaling cigarette smoke, or by eating certain foods by accident). She also said cluster headaches happen daily, often several times a day, for a period and then go away, and that his probably weren't cluster because they were down to one every other month, and now have gone back up to 1-2 a month.

Anyway, help! From what we've read on here, everything above does not sound correct..
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CaitieV
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Re: Triggers
Reply #31 - Feb 9th, 2012 at 4:49pm
 
For me, so far:
  • alcohol
    higher levels of caffeine, as in coffee, although tea is usually fine
    exercise, very unfortunately

    I'm new to the CH community (first one was 4 months ago, and I am still in cycle) and kinda confused about the whole trigger thing. I know that I'll be completely painfree (I'm just on verapamil now, I think I've had to get on O2 maybe 3 times in 2 months, as opposed to when it first started and it was every night. And it's mostly just preventative now.) Does a trigger start a new cycle? Or does it only start an attack if I'm in cycle. I have (almost) gotten over the drinking thing, but I'm really sick of being so stationary. I'd really love to be able to work out, but even walking on a treadmill will trigger me shortly after I start.
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MeL
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Re: Triggers
Reply #32 - Feb 9th, 2012 at 6:47pm
 
I love reading these!

So far the ones that I can remember of mine are:

Too much sleep and lack of sleep
Interrupted sleep
Alcohol (When I'm in a cycle it will make it worse)
Stale cigarette smell
Drastic change in weather ie Strong storm blowing through
ASPARTAME ... just the thought of it ... sad too, I love Diet Pepsi. 
Lack of coffee in the am
Not eating every few hours while I'm awake
Long car trips (over 3 hours)
Coming down from prolonged stress
Lunch Meats
Overuse of Excedrine Migraine and Fiorcet ... I won't go near them now. 

Cheeses are ok with me usually ... good thing, because I adore a good smelly cheese.
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If we don't take care of ourselves, who will?
 
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thebbz
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Re: Triggers
Reply #33 - Feb 10th, 2012 at 10:31pm
 
Quote:
Anyway, help! From what we've read on here, everything above does not sound correct.. 
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CH is an enigma...what triggers for one will not trigger another, there are published results on histamines as a trigger in medical testing. I would listen to the doc at this point. They have all the relevant information and training to say anything when it comes to diagnosis.
all the best
the bb
alcohol is a trigger good as histamines.
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clusternewbie8
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Re: Triggers
Reply #34 - Feb 13th, 2012 at 1:14pm
 
WHYYYY Is it that EVERY TIME I want to drink Beer, or Wine I get the extreme pain over my left eye.. Its like a lightning bolt over my face.. It then starts to make my neck and ears warm, and then its ON... once that starts to happen I know that its time take a pill. This happened to me Saturday after drinking on Friday, and then Friday afternoon after having a few drinks Sunday afternoon. (Don't think I'm a big drinker I do enjoy a drink now and then I am a 27 year old trying to enjoy life) Sadly this happens more than I'd like it to.
I also have another problem that I cant seem to figure out as well. I say that I drink enough water a day but it still doesn't seem like enough. So (mainly on the weekends) I like to sleep in and it seems that if I sleep for more than 8 hours my brain feels DRY and BOOM cluster headache. I'm still new at this and trying to figure out how to avoid these problems and try to live a young adult life.
ANY IDEAS???   
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Re: Triggers
Reply #35 - Feb 13th, 2012 at 2:11pm
 
clusternewbie8 wrote on Feb 13th, 2012 at 1:14pm:
WHYYYY Is it that EVERY TIME I want to drink Beer, or Wine I get the extreme pain over my left eye.. Its like a lightning bolt over my face.. It then starts to make my neck and ears warm, and then its ON... once that starts to happen I know that its time take a pill. This happened to me Saturday after drinking on Friday, and then Friday afternoon after having a few drinks Sunday afternoon. (Don't think I'm a big drinker I do enjoy a drink now and then I am a 27 year old trying to enjoy life) Sadly this happens more than I'd like it to.
I also have another problem that I cant seem to figure out as well. I say that I drink enough water a day but it still doesn't seem like enough. So (mainly on the weekends) I like to sleep in and it seems that if I sleep for more than 8 hours my brain feels DRY and BOOM cluster headache. I'm still new at this and trying to figure out how to avoid these problems and try to live a young adult life.
ANY IDEAS???


Ideas?....(1) read info here on this website about proper treatment, (2) understand pills are worthless for aborts, (3) don't drink any alcohol while in cycle and (4) be extremely thankful you are lucky enough to get 8 hours sleep. Wink

-Gregg in Las Vegas
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Wishing everybody at CH.com less pain w/ more productivity in their lives in 2014
 
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clusternewbie8
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Re: Triggers
Reply #36 - Feb 13th, 2012 at 3:19pm
 
LasVegas wrote on Feb 13th, 2012 at 2:11pm:
clusternewbie8 wrote on Feb 13th, 2012 at 1:14pm:
WHYYYY Is it that EVERY TIME I want to drink Beer, or Wine I get the extreme pain over my left eye.. Its like a lightning bolt over my face.. It then starts to make my neck and ears warm, and then its ON... once that starts to happen I know that its time take a pill. This happened to me Saturday after drinking on Friday, and then Friday afternoon after having a few drinks Sunday afternoon. (Don't think I'm a big drinker I do enjoy a drink now and then I am a 27 year old trying to enjoy life) Sadly this happens more than I'd like it to.
I also have another problem that I cant seem to figure out as well. I say that I drink enough water a day but it still doesn't seem like enough. So (mainly on the weekends) I like to sleep in and it seems that if I sleep for more than 8 hours my brain feels DRY and BOOM cluster headache. I'm still new at this and trying to figure out how to avoid these problems and try to live a young adult life.
ANY IDEAS???


Ideas?....(1) read info here on this website about proper treatment, (2) understand pills are worthless for aborts, (3) don't drink any alcohol while in cycle and (4) be extremely thankful you are lucky enough to get 8 hours sleep. Wink

-Gregg in Las Vegas


I wish I know when my cycles were.. I havent really figured that part out yet. I guess when I do I can then figure out when I can and cannot drink. Such a BUMMER !!  Cry
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JessieD
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Re: Triggers
Reply #37 - Mar 22nd, 2012 at 3:41pm
 
My triggers are:

Extreme heat (especially after being in air-conditioning and then walking out into extreme heat - that will bring me to my knees)
Freshly cut grass
Wood burning fires (or the ash left afterwards)
Aspartame
Cigarette smoke (actual or residue)
Soy protein (the powder stuff one might use in protein drinks)
Barometric pressure changes (specifically when a storm is moving in)
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AubanBird
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Re: Triggers
Reply #38 - Mar 22nd, 2012 at 8:43pm
 
i used to think beer is a trigger for me.  not so much anymore...

one thing that WILL trigger for me is anxiety.  i HATE feeling anxious.

lately i can drink beer and be fine, however  i get hit about once or twice a day due to work related anxiety, usually me worrying about getting hit while at work Angry go figure Roll Eyes

fortunately, they dont last very long and rarely get above a 6.  once the pain starts, i forget about whatever it was that was making me anxious.
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Re: Triggers
Reply #39 - Mar 22nd, 2012 at 9:43pm
 
New here and somewhat new to CH (mis/undiagnosed until recently). So far triggers for me have been beer and hot dogs (probably anything with nitrates, but the hot dog has kept me from trying to find out). Cigarette smoke isn't necessarily a trigger for me, but it doesn't help either.
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Guiseppi
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Re: Triggers
Reply #40 - Mar 23rd, 2012 at 8:54am
 
We have a lot of members who are heavy smokers, none have ever posted they found smoking to be a trigger. Many have quit smoking, hoping that might stop CH. It' didn't.

Dr. Goadsby says the biggest problem with CH'ers smoking is the health conditions that long term smoking cause, will prevent the patient from availing themselves of many of the CH abortives, especially those in the triptan family. Just one more reason to quit! Wink

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Bree
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Re: Triggers
Reply #41 - Mar 23rd, 2012 at 3:14pm
 
I just pieced together that every Friday I'm totally knocked out after I take my kids to the pool.  I believe the smell of the chlorine is a trigger for me.  On a side note, I started Verapamil and Imitrex nasal spray.  I took a shot of the spray this morning as the sun was coming up on my drive to work (another trigger for me) and half way through my day I feel better than I have in a year!  I'm ready to shout from a mountain top!
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Guiseppi
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Re: Triggers
Reply #42 - Mar 23rd, 2012 at 5:28pm
 
Great feeling when you have some tools to slay beasty with isn't it! Smiley

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Mike NZ
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Re: Triggers
Reply #43 - Mar 23rd, 2012 at 7:07pm
 
Bree wrote on Mar 23rd, 2012 at 3:14pm:
I'm ready to shout from a mountain top!


Simply amazing the change when you get some control back from the beast.

May you continue to have reasons to shout from the mountain top for a long time to come.
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Re: Triggers
Reply #44 - Apr 2nd, 2012 at 1:51pm
 
Only three for sure:

- Even the smallest amount of any type of alcohol
- Extreme heat (especially after being in air-conditioning and then walking out into extreme heat )
- Daylight Savings Time Change.
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Re: Triggers
Reply #45 - May 7th, 2012 at 1:34am
 
- One sip of booze. I cannot drink beer ever (allergic) no wine or mead (sulfur stuff). However, whiskey yup one sip can trigger me.

- Weather changes leave me whimpering in a corner wishing to pass out. The pain in my neck, back, tailbone, hips and CH's are made so much worse by the weather pattern.

- Smells (perfumes), Lights (walking into Best Buy has caused insta CH with a rebound panic attack) and Sounds (drums)

- Stress, ending of stress, good stress

- Seeing the doctor. I am phobic of Doctor which is sad since I am so sick

- Not enough or too much sleep

- Hunger

- Mgraines and vice versa

- MSG in any of it's sneaky forms, Aspertame, Splenda (mostly Migraines though for Splenda)

- Flare in neck or back pain

Sometimes there is no rhyme or reason to the CH.
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superhawk2300
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Re: Triggers
Reply #46 - May 8th, 2012 at 8:58pm
 
Any amount of alcohol. I had a suppliment I was taking that had alcohol in it and I took something like 1/2 an eyedropper full. WHAM! Every. Time.

I was driving the other day and the car ahead of me hit a skunk. a minute later I got a big hit that raced up the kip scale; had to pull over.

So I can avoid the booze pretty easy. Hopefully the skunks will leave me alone for a few more weeks.
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Re: Triggers
Reply #47 - May 8th, 2012 at 9:18pm
 
Alcohol & naps. I don't mind never drinking, but I wish I could just lay down for a lil nap sometimes.
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Re: Triggers
Reply #48 - May 19th, 2012 at 5:54am
 
Alot of my triggers have been mentioned. But here's one that nobody talked about yet:

MARIJUANA


A joint is a garanteed kip9 within 20 min!!
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Patience and fortitude conquer all things
 
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