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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › hi im new to a suport group

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hi im new to a suport group (Read 691 times)

spencerk91

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hi im new to a suport group
Jan 11^th, 2012 at 6:45pm

Well I have hadthe headaches sence I was 21 I'm 28 nowand trying every posible way to make it not be clusters but it is sinking in more then anything right now sence my cycle is starting again I have resently had a doctor tell me that they are clusters I diagnosed my self with quiz on here and with other quizes that I have found and verything poins to this I guess I'm a lucky one so far I'm on a verapemil and when I gt them if I can't get to the oxygen I have the sumtriptan shots and imatrex to hopefully kill them today has been great for me just a bite here and there bu nothing like last week I get them threw ou the day and night half of the time I don't want to sleep I don't want to do much. I d smoke if someone can come forward and tell me somthingto do I would greatly appresate it I do drink also but haven't had a drop sence they started its just been water water water lol sometimes a coke I'm oppen to all suggestions hope to hear from you huys thanks for your time

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Guiseppi

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Re: hi im new to a suport group
Reply #1 - Jan 11^th, 2012 at 6:51pm

Welcome to the board Spence, are you working with a headache specialist neurologist? My guess is yes since your treatment regimen speaks to someone who knows their stuff. Take a look at this link to make sure you're getting the maximum benefit from your oxygen, minor tweaks in the delivery system can have dramatic affects on abort times:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Then go to the meds section of this board and check out the thread, "123 pain free days and i think I know why". A daily vitamin/anti-inflammatory supplement, all over the counter stuff, that's providing a lot of relief to members of the board.

As to alcohol, a large percentage of CH'ers find this to be arapid trigger when in cycle. On cycle a beer will have me getting hit within 10 minutes. Off cycle thankfully it's not an issue! Wink

If by smoking, you're reffering to weed, stay away from that stuff when on cycle. It's a vaso-dilator, all of our treatments for CH are vaso-constrictors, weed on cycle is asking for a barn burner hit! Shocked

Glad you found us, welcome home. What part of the world do you hail from??

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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spencerk91 CH.com Newbie Offline I Love CH.com! Posts: 2 Gender:	Re: hi im new to a suport group Reply #2 - Jan 11^th, 2012 at 10:09pm I don't smoke weed just cigs I have tryed weed before and that was a bad idea just like you said and ill look at the link t thanks for the reply ad I'm in southeren california
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: hi im new to a suport group Reply #3 - Jan 11^th, 2012 at 10:31pm YAY!!! Another "right" coaster, there are so few of us! Joe
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coach_bill

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Re: hi im new to a suport group
Reply #4 - Jan 12^th, 2012 at 6:23pm

Hello,

Go to Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

;

I know it may seem crazy... But it works. The 1st thing you need to understand is this : Everything comes from somewhere, Every pill that doctor gives you is made of something right? A Plant, A root, A bone, a fish, tree bark?? It all comes from something.

So is it that hard to beleive that what may help us may come from a mushroom or a seed? It makes more than enough sence to me.

Hit to win...
Coach Bill.

boy i cant wait till it's my turn to give him a headache. paybacks a bitch

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