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JackBurton

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How high has your BP gone up during a CH?
Jan 14^th, 2012 at 7:57pm

Hello, I am new. I posted an intro in another thread. I was recently diagnosed with CH after a trial of O2 in the ER resolved it. I've been to the ER 6 times in the last year because of headaches more painful than childbirth, I guess Kip 9-10? They can last hours so I am doing research for when I see the headache specialist.

My question is how high how has other people blood pressure has gone up during a CH? Consistently each ER trip it has been averaging 180/120. I do not have hypertension at all, not during pregnancy. Is this normal? Thanks.

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jon019

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Re: How high has your BP gone up during a CH?
Reply #1 - Jan 14^th, 2012 at 11:52pm

JackBurton wrote on Jan 14^th, 2012 at 7:57pm:

Hello, I am new.

Hiya JB...welcome aboard...grab an oar and row...aint no passengers on this boat....

I posted an intro in another thread. I was recently diagnosed with CH after a trial of O2 in the ER resolved it. I've been to the ER 6 times in the last year because of headaches more painful than childbirth, I guess Kip 9-10? They can last hours so I am doing research for when I see the headache specialist.

You already got it most figured out...O2 is the ticket...get yourself a rig and a bottle...see the O2 link to the left. ER?...waste of time, money, and anguish...999/1000 they won't get it....

My question is how high how has other people blood pressure has gone up during a CH? Consistently each ER trip it has been averaging 180/120. I do not have hypertension at all, not during pregnancy. Is this normal? Thanks.

Again..ER a waste...read, read, read everything here. BP WILL go high with extreme pain, aggitation, fear....it is a symptom of the condition...it don't mean NOTHING beyond that. Treat the condition... BP is the least of your worries.....

Best,

Jon

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: How high has your BP gone up during a CH? Reply #2 - Jan 15^th, 2012 at 12:01am I'm not sure how someone would go about trying to measure my BP during a CH. All I want to do is to grab my oxygen and work on killing the CH off.
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JackBurton

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Re: How high has your BP gone up during a CH?
Reply #3 - Jan 15^th, 2012 at 12:27am

I have oxygen, on a pred taper while verapamil builds up, and started the anti inflammatory regimen described by Batch. Evidently the magic words "cluster headache" got my PCP to listen instead of just trying another useless triptan. Trust me, I did not want to go to the ER but the pain was so very bad I irrationally thought I was going to die.

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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3708 Bremerton, WA Gender:	Re: How high has your BP gone up during a CH? Reply #4 - Jan 15^th, 2012 at 7:22am Hang in there JB and welcome aboard. You've come to the right place. It also appears you're on the road to taking control of your CH... Good on you. Please keep us posted on your progress with the anti-inflammatory regimen or if you have any problems with your oxygen therapy. Take care, V/R, Batch
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Tara Ann CH.com Alumnus Offline It's always darkest before the dawn. Posts: 2719 North Carolina, USA Gender:	Re: How high has your BP gone up during a CH? Reply #5 - Jan 15^th, 2012 at 10:43am I just am here to say 'here, here' and welcome to this misfit fam
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JackBurton

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Re: How high has your BP gone up during a CH?
Reply #6 - Jan 15^th, 2012 at 3:35pm

Thanks everyone. I am definitely a misfit. LOL.

I am just trying to gather info from other people's experiences because I don't exactly fit into what I've read about cluster headaches, for instance when they get to a high level of pain they can last for 6-8 hours. And I don't have this urge to move, if anything I want to be stock still. But on the other hand, O2 has worked to knock it down twice recently.

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Traveller CH.com Veteran Offline Posts: 148 Tampa, FL Gender:	Re: How high has your BP gone up during a CH? Reply #7 - Jan 15^th, 2012 at 3:46pm I am on Verapamil. I don't think I have blood pressure anymore
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: How high has your BP gone up during a CH? Reply #8 - Jan 15^th, 2012 at 3:51pm Gosh, I wouldn't have the slightest clue as to my blood pressure during a hit. I can't imagine slipping on the ol' BP cuff at a time like that, and I religiously stay away from emergency rooms for anything related to CH.
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LasVegas

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Re: How high has your BP gone up during a CH?
Reply #9 - Jan 15^th, 2012 at 5:49pm

Brew wrote on Jan 15^th, 2012 at 3:51pm:

Gosh, I wouldn't have the slightest clue as to my blood pressure during a hit. I can't imagine slipping on the ol' BP cuff at a time like that, and I religiously stay away from emergency rooms for anything related to CH.

Could not have said it better! Wink

-Gregg in Las Vegas

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Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: How high has your BP gone up during a CH? Reply #10 - Jan 15^th, 2012 at 7:11pm JackBurton wrote on Jan 15^th, 2012 at 12:27am: ...but the pain was so very bad I irrationally thought I was going to die. There's nothing 'irrational' about that, darlin'.
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Re: How high has your BP gone up during a CH?
Reply #11 - Jan 15^th, 2012 at 10:45pm

Hello,

I was on Verapamil once for about a week or so. I was sluggish and felt like i was gonna poop my pants all the time. It didnt do a damn thing for my CH.

Go to Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

and read.

Head on the Ball...
Coach Bill

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boy i cant wait till it's my turn to give him a headache. paybacks a bitch

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AubanBird

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Re: How high has your BP gone up during a CH?
Reply #12 - Jan 17^th, 2012 at 5:34am

I don't know the actual number, but high enough to cause severe petechia and sub conjunctival hemorrhaging. Bled through the skin of my face and eyes. My squad leader thought I was dying. Poor guy was so freaked out and worried that he literally dragged my kicking an screaming self to the aid station, where I was finally diagnosed. Good man.

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Lior BD CH.com Newbie Offline Always forgive your enemy nothing annoys them more Posts: 10 Modi'in Israel Gender:	Re: How high has your BP gone up during a CH? Reply #13 - Jan 17^th, 2012 at 7:52am Never taken my BP during a HA, but i have taken my pulse, and it is 99 beats per minute.
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JHK07 CH.com Junior Offline I Love CH.com! Posts: 98 Gender:	Re: How high has your BP gone up during a CH? Reply #14 - Jan 17^th, 2012 at 2:52pm My norm is 110 or 120 over something good.. (70 ish) After a bad bout 1 night, I got in to the Doc next day before noon. My BP was very high for me, though I don't know the exact #. (guessing 150++ over something ) This was "recovering", not actually during an episode.
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Shuli

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Re: How high has your BP gone up during a CH?
Reply #15 - Jan 17^th, 2012 at 3:05pm

Hey -
Just last week, I had a level 2 shadow at the neuro's office right before getting a nerve block. He had to take my vitals before the procedure and my pulse was 105 and BP 120/60. My normal BP is around 100/60.
I'm on 360mg of Verapamil, btw.
Immediately after the Occipital Nerve Block (which aborts the CH), my BP went back down to 103/60 and heart rate started dropping as if I were recovering from a workout.

It's the first time I ever had any measurement of this sort during any shadow or attack of CH.
I can not imagine what the BP or heart rate would be at level 10.

thought it was very interesting.

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big jake CH.com Newbie Offline I Love CH.com! Posts: 8	Re: How high has your BP gone up during a CH? Reply #16 - Feb 13^th, 2012 at 8:19pm mine has been as high as 180-190/130 or so. if i go to the ER they ussually give me somthing to knock me out(ussually dilaudid) i deal with it now the best i can and avoid the ER if possible.
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thebbz Ex Member	Re: How high has your BP gone up during a CH? Reply #17 - Feb 13^th, 2012 at 10:23pm For me high BP comes with the CH. Might have something to do with the pain or the anticipation of it. all the best the bb
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amct15

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Re: How high has your BP gone up during a CH?
Reply #18 - Feb 14^th, 2012 at 6:42pm

I actually did have a hit once while in my neuro's office. The intern was able to check my BP during the hit, I don't recall the exact figures but it was significantly higher than usual... that 180/120 range sounds about right. It's crisis range... but all due to the pain. I was actually curious at the time if cranking that BP cuff on the arm might help the pain. It didn't. As a side note, I believe Imitrex will cause a rise in BP that may still show up 12-24 hours after use.

Andrew

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