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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › new strange symptoms

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new strange symptoms (Read 1325 times)

Bonnie lee

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new strange symptoms
Jan 22^nd, 2012 at 5:25pm

I went a whole month and a half without any headaches!!!! A wonderful thing until this past thursday. Bad headache but with this one there was no pain unless i turned my head. if i kept my head in one place there was no pain. But if i moved it it was excruciating behind my left eye where the pain usually is when i get my other headaches.
I was so afraid to move my head. I was able to lay down but i just layed there motionless. i think i fell asleep because the next thing i know i am awoken by my husband who was checking my pulse and yelling my name.
He said when he came in to check on me i hadnt moved since the last time he checked. its all just scary.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: new strange symptoms Reply #1 - Jan 22^nd, 2012 at 6:08pm Never heard of that as a symptom of CH. Not to sound alarmist, but I think you should get in to see your headache specialist right away.
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Bonnie lee CH.com Veteran Offline I Love CH.com! Posts: 131	Re: new strange symptoms Reply #2 - Jan 22^nd, 2012 at 6:14pm i have an appointment with john hopkins next wensday. it hasnt happened again. but if it does i will be sure to go to the neurologist before my appointment.
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: new strange symptoms Reply #3 - Jan 22^nd, 2012 at 6:29pm Bonnie, like Brew said...in my 24 yrs. of dealing with Cluster headaches and all the experts I've heard speak on this condition of ours I have never ever heard this symptom. I'm glad you have an appt. with John Hopkins so they can diagnose you properly. Please let us know what the results are, O.K.? Linda
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: new strange symptoms Reply #4 - Jan 22^nd, 2012 at 6:35pm WOW! New one on me too, I'm with the others, ANY change in symptoms that significant warrants a trip to the doc. Good luck with the appointment. Joe
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Bonnie lee

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Re: new strange symptoms
Reply #5 - Jan 22^nd, 2012 at 7:37pm

Thanks guys! I was diagnosed with the clusterheadaches by my neurologist but now i am kind of having second thoughts about the diagnosis. i will be sure to let you know what they say at johns hopkins.
The last time i saw the neurologist he did another MRI this one around the orbits of my eyes becuase i had an episode of blindness in my left eye for about 30 seconds with one of my headaches. He also did another test to check for any occlusions in my arteries in my neck. They both of course were negative.

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BlueDevil CH.com Junior Offline I Love CH.com! Posts: 52 Australia Gender:	Re: new strange symptoms Reply #6 - Jan 24^th, 2012 at 5:31am I am wondering if it could be a musculoskeletal issue with your neck? Was it turning your neck that created the pain or any sort of head movement?
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Bonnie lee CH.com Veteran Offline I Love CH.com! Posts: 131	Re: new strange symptoms Reply #7 - Jan 24^th, 2012 at 12:27pm It was with any sort of head movement. Really strange
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