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New Girl!! (Read 1271 times)
honeyolivia
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New Girl!!
Jan 25th, 2012 at 11:27pm
 
Hello everyone. Please bare in mind that i do not know much of the lingo here(i literally just joined a few minutes ago) but i really would like some advice & describe my experience.

I am 18 and I have never really suffered from headaches my entire life..maybe 3 TOPS! I am pretty sure that i suffered an cluster headache episode(?) about one week ago. The episode lasted for maybe 2 weeks.

My eyes had been runny & sensitive for a few days before the headaches started. The headaches started out "light", almost like a normal headache but daily. My nose was stuffy and my eyes were watery so i just thought it was my asthma/allergy's kicking up.
Then I started to get to the point of needing pain medication to help me get threw the night(which did not work). Soon after that(im guessing the peak?) the pain started to be debilitating, i could barely keep still.

Symptoms ::

Pain -
It was like a balloon being blown up inside my head, then taking my head and slowly but constantly bouncing it on a floor covered with glass, and on top of that covering my left eye with fire ants.

First my nose would get stuffy & then start to run, the pain would come and my left eye would start to tear up & close.

My pain was on my left side.

After a week i would get the most painful clusters at night. Also after a week i could barely keep my eyes open and my head up during the attack.

Time -
My headaches started out once a day, twice daily, then 3-4 daily at the same exact time each day. 
My pain lasted about 30 min to 1 hr.

I have not been to the doctor since i honestly did not know what was going on.
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wimsey1
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Re: New Girl!!
Reply #1 - Jan 26th, 2012 at 7:33am
 
Hey there, Olivia, and welcome. Fire ants, huh? So you're in the south somewhere. That'll teach you to roll around on the ground. Seriously, though, you describe pretty well what it can feel like to get a cluster hit. And while we each have our own way of describing the beast, for me the most telling (apart from the usual symptoms listed) is the regularity of the hits. While I know of no other headache that comes in clusters like these, it is possible. I would recommend you take the cluster quiz at the left. Journal your hits and what does or does not work. Find a good headache specialist in your area and bring all the info with you. And do it even if you go out of cycle. That way you already have a foot in the door and with any luck, a plan to attack the beast when he returns. There are some OTC recommendations that you could try in the meantime: melatonin at night, energy drinks at onset, Batch's Vitamin D regimen...that sort of thing. Read around the site, and if you have any questions, don't hesitate to ask. God bless. lance
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Bob Johnson
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Re: New Girl!!
Reply #2 - Jan 26th, 2012 at 7:57am
 
Please tell us where you live. Follow the next line to a message which explains why knowing your location and your medical history will help us to help you.

Cluster Headache Help and Support › Getting to Know Ya › Newbies, Help us...help you

You can add your location by editing your profile. CP Member --> profile
BUT, Please!, don't post your messages at this location. They won't get the attention you want: use the appropriate sections which follow.
==============
LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
=====



Cluster headache.
From: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register (Orphanet Journal of Rare Diseases)
[Easy to read; one of the better overview articles I've seen. Suggest printing the full length article--link, line above--if you are serious about keeping a good medical library on the subject.]

Leroux E, Ducros A.

ABSTRACT: Cluster headache (CH) is a primary headache disease characterized by recurrent short-lasting attacks (15 to 180 minutes) of excruciating unilateral periorbital pain accompanied by ipsilateral autonomic signs (lacrimation, nasal congestion, ptosis, miosis, lid edema, redness of the eye). It affects young adults, predominantly males. Prevalence is estimated at 0.5-1.0/1,000. CH has a circannual and circadian periodicity, attacks being clustered (hence the name) in bouts that can occur during specific months of the year. ALCOHOL IS THE ONLY DIETARY TRIGGER OF CH, STRONG ODORS (MAINLY SOLVENTS AND CIGARETTE SMOKE) AND NAPPING MAY ALSO TRIGGER CH ATTACKS. During bouts, attacks may happen at precise hours, especially during the night. During the attacks, patients tend to be restless. CH may be episodic or chronic, depending on the presence of remission periods. CH IS ASSOCIATED WITH TRIGEMINOVASCULAR ACTIVATION AND NEUROENDOCRINE AND VEGETATIVE DISTURBANCES, HOWEVER, THE PRECISE CAUSATIVE MECHANISMS REMAIN UNKNOWN. Involvement of the hypothalamus (a structure regulating endocrine function and sleep-wake rhythms) has been confirmed, explaining, at least in part, the cyclic aspects of CH. The disease is familial in about 10% of cases. Genetic factors play a role in CH susceptibility, and a causative role has been suggested for the hypocretin receptor gene. Diagnosis is clinical. Differential diagnoses include other primary headache diseases such as migraine, paroxysmal hemicrania and SUNCT syndrome. At present, there is no curative treatment. There are efficient treatments to shorten the painful attacks (acute treatments) and to reduce the number of daily attacks (prophylactic treatments). Acute treatment is based on subcutaneous administration of sumatriptan and high-flow oxygen. Verapamil, lithium, methysergide, prednisone, greater occipital nerve blocks and topiramate may be used for prophylaxis. In refractory cases, deep-brain stimulation of the hypothalamus and greater occipital nerve stimulators have been tried in experimental settings.THE DISEASE COURSE OVER A LIFETIME IS UNPREDICTABLE. Some patients have only one period of attacks, while in others the disease evolves from episodic to chronic form.

PMID: 18651939 [PubMed]




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Bob Johnson
 
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Guiseppi
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San Diego to Florida 05-16-2011


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Re: New Girl!!
Reply #3 - Jan 26th, 2012 at 8:56am
 
Welcome to the board Olivia. CH often starts out more randon, especially in younger people, sometimes taking several years to establish any kind of pattern. As Lance mentioned, if it is CH, you have a lifetime condition. Do not wait until you are in the middle of another cycle before you begin to seek a diagnosis.

Follow the links Bob gave you and get a referral to a headache specialist neurologist. Keep a diary of your headaches, as detailed as is possible. There are hundreds of headache types, and the final diagnosis will be in the details. Good luck!

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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honeyolivia
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delaware
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Re: New Girl!!
Reply #4 - Jan 26th, 2012 at 9:40pm
 
Thanks everyone.

I changed my profile and
I will post in the "Help" thread.

I wish i had known about this before the headache happened but of course i wouldnt have known that i was going to get an cluster headache Angry
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Bob Johnson
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Re: New Girl!!
Reply #5 - Jan 27th, 2012 at 9:06am
 
Now that you are "established" here, post your treatment questions in the Medications/Treatments section.
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Bob Johnson
 
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