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evolution

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Hi peeps
Jan 28^th, 2012 at 9:47am

I was diagnosed by my gp just over a week ago, prescribed imigran nasal spray and am now waiting to see a neuro, I have had this for the last 15 years and have been bounced from doctors to optician pretty much ever since. I had my first "headache" when I was 18 and that was the worst one so far. I have these things twice a year on average, sometimes they come, sometimes they dont but they are getting worse as time goes by. I registered on the busters site about a week ago and have pretty much lived there ever since, they are a helpful bunch and I arrived here after following a link from there.

Its nice to know I am not alone and someone else experiences this pain though I feel sorry for anyone else that does, I really do not know how chronic's manage.

Im sure I will spend some time here as I feel the need to learn as much as I can about this condition and maybe even be able to help someone else through my own experiences.

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Guiseppi

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Re: Hi peeps
Reply #1 - Jan 28^th, 2012 at 10:00am

Welcome to the board Evo!

You're at a fork in the road. Clusterbusters has one incredible track record, if that option is available to you, I'd certainly put some work into researching that. You'll still need oxygen as that's the only abort you can use when you're "detoxing" before you bust.

If you go traditional, make sure the neuro you get referred to is a headache specialist neurologist. Garden variety neuros typically do not have the experience or knowledge base to effectively treat CH.

Whichever route you go, knowledge is your best ally against the beast. Glad you found both boards.

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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evolution

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Re: Hi peeps
Reply #2 - Jan 28^th, 2012 at 3:32pm

I probably will go down the busting route but im in no rush to start popping physcotropics or prescription meds. I think I need a bit more info on this whole issue. Im pretty confident im at the end of it now, apart from a run in with some line marking spray (which I lost) I would have been PF for 4 days, he is sleeping soundly as I type now. So the way I figure is I have a while to read and learn before he wakes up again. If I knew 2 months ago what I know now this whole past episode could have been quite different (I have been up and down more than a yoyo this past week). As it is i feel I am right at the beginning of what is going to be a steep learning curve but my eyes are wide open for the first time.

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AussieBrian

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Re: Hi peeps
Reply #3 - Jan 28^th, 2012 at 6:09pm

G'day Evo, and welcome. Have a look at the Medications board (just under Gettin' to Know Ya) and check out a thread called "Time for the 75-80% to stand up and be counted". It's a fair bit of reading but it's an honest discussion on busting from many, many angles and may assist you in forming your own opinion.

Good luck and stay in touch.

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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

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evolution

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Re: Hi peeps
Reply #4 - Jan 29^th, 2012 at 9:35am

thanks for the info, thats exactly what i need. I was having a look at the u.s. study and it would seem that i have the restless leg syndrome as well (this doesnt bother me greatly but I always thought it was normal). Any ideas if there have been any UK studies? I havent come across one yet.

Thanks for the luck, I could certainly do with some of that. I am not going anywhere for a while so will definately keep updating.

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Bob Johnson

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Re: Hi peeps
Reply #5 - Jan 30^th, 2012 at 3:18pm

Please tell us where you live. Follow the next line to a message which explains why knowing your location and your medical history will help us to help you.

Cluster Headache Help and Support › Getting to Know Ya › Newbies, Help us...help you

You can add your location by editing your profile. CP Member --> profile
BUT, Please!, don't post your messages at this location. They won't get the attention you want: use the appropriate sections which follow.
===========

You have an excellent support group in the UK:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

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Bob Johnson

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thebbz Ex Member	Re: Hi peeps Reply #6 - Jan 30^th, 2012 at 10:50pm Quote: Any ideas if there have been any UK studies? I havent come across one yet. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Many...start here..do a search on Peter Goadsby. He used to be in the UK all the best the bb
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evolution CH.com Newbie Offline I Love CH.com! Posts: 10 Cardiff Gender:	Re: Hi peeps Reply #7 - Jan 31^st, 2012 at 7:55pm Thanks, cant say im keen on someone rooting round inside my head, to say im not keen on the medical profession at the moment is an understatement, it took them long enough to diagnose me, it feels like amateur hour every time i see the gp. I just hope the neuro is better. I found some good info from goadsby though.
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thebbz Ex Member	Re: Hi peeps Reply #8 - Jan 31^st, 2012 at 8:16pm Quote: to say im not keen on the medical profession at the moment is an understatement, You are not alone there my friend....it's a love hate thing....keep up the studies you are your best doctor. all the best the bb
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Andy T

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Re: Hi peeps
Reply #9 - Feb 1^st, 2012 at 7:43am

Hi there Evo

Where are you in the UK? There are at least a couple of decent Neuro's out there. Al Din at pinderfields, wakefield is my current guy, he definitely seems to know his stuff and has put me on new regimes for my next episode. I also hear the London HA centre is at the top of its game, I'm sure others could give you more details.
All the best for PF days n nights

Andrew

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evolution

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Re: Hi peeps
Reply #10 - Feb 1^st, 2012 at 4:24pm

Im in Cardiff, The university hospital of Wales is just up the road from me So im hoping they have someone pretty good there, I would imagine so but knowing my luck ill end up with the first year apprentice. Unfortunately for them im going to give them a taste of the rough ride ive had for the last 15 years all condensed into a 30 min slot.

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