I know all our heads feel like that but my head always feels that or like it has just exploded or will just explode any minute. Has anybody out there failed to respond to pretty much everything that has been thrown at them and yes I am seeing a neurologist that specialises in cluster headaches and he has even drafted in a colleague I am still waiting for botox but not really too willing to do it. I have tried the 123 Batch thing and followed it religiously nothing yet and it's been 3 weeks, my nose is killing my from the oxygen that I am guzzling in an attempt to survive. Right now I'm on Topamax and Imigan injections it just about stops me going mad

Anyone else out there had a similar experience?

I have been through all the usual meds and none of them work. I have chronic cluster all day every day coupled with chronic daily migraine I am just a walking headache at this stage

Cailin

Hiya! 

Welcome to the club ...

I have been walking around in a haze just shy of two months now.  It goes anywhere from a 1 to a 10 back to a 1.  I'm sure you can relate! 

I've tried many medications and OTC remedies, some with minimal luck, others with ZERO luck.  Then I found this site.  So now, I'm trying things on here ... If they work, SUPER!  If not, well, I'm not any worse off than I am now. 

It gets hard, the depression and lonliness is the worst.  Crying because life outside the 4 walls of your home still carries on with or without you is the hardest for me.  I've missed birthday parties, holidays and even spent a vacation in the hospital because I couldn't stop vomiting from the pain.  I just wanted to go home, but driving 12 hours home was out of the question.  So I had to stick out a miserable week! 

I like to buy myself flowers when I go to the grocery store.  Or buy myself something good to eat ... just for myself.  It's the little things that we need to get us through the day.  I'm not talking about spending a ton of money every day .... just take time to smell the roses!  Tomorrow is another day and we'll have to find something else to get us through that day too. 

It's the little things ... one day you will get there too.  You'll find something that gives you relief! 

I wish you the best!
-Melissa

Some of what I am about to write is unrelated to anyone else in particular, but not the end result. That is pretty much on point.

In November '11 I was in a car accident. Rear ended. Up until that moment, the beast was under control. Got hit at most 1 or 2 times a day, often with days offf, and seldom during REM. After the accident, well...it's been a party for the beast. Back to every day, 2-6 times a day, with 2 or 3 during REM. I've been going to PT for a sore neck hoping that would help bring the beast back under control as well.

So far? Nothing. In fact, yesterday the therapist manipulated some neck muscles near my occipital and within seconds a hit came. It lasted all day and persisted even with an imitrex shot. I aborted each new hit, every 45 minutes, with O2 but they persisted until I took another trex injection at night. Did sleep through the night but I wonder what today will hold.

While all dayers aren't the norm, I do understand and have had them in the past, with yesterday the most recent. For me they seldom rise above a KIP 3 or 4 but persist and drive me nuts. But a good nights sleep and I'm ready to take on the day, and the beast, again.

We are eternal warriors in the conflict over pain. Blessings. lance

I'm with you Cailin. Just came back from the HA specialist on Tuesday with (in addition to my Topamax, Cambia and Sumavel) a script for Verapamil and Prednisone. After a brief 4 week cycle in October, I started a cycle Dec 1 that has been the worst I have ever had, with the worst pain that lasts 18 hours a day, with brief periods of relief mid-day, coupled with migraine-like symptoms. Maybe many of us are experiencing the effects of the bizarre weather patterns.....

MeL wrote on Feb 1^st, 2012 at 6:40pm:

What a lovely, lovely thing to say, especially to another who could use it so much.

Ah, ch.com.  Where else would you live?