Click this link to read a post I like on the clusterheadaches.com message board...

May 13^th, 2025 at 5:14pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › ECH change in cycle length

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

ECH change in cycle length (Read 1717 times)

kittyfantastico

CH.com Newbie

Offline

I Love CH.com!

Posts: 5
Gender: female

ECH change in cycle length
Mar 8^th, 2012 at 7:01am

For the last 12 yrs or so i have had a bout every 12-18mths approx lasting a maximum of 37days. Attacks ramp up slowly for the first week, are the worst during wks 2 and 3 and then start to tail off, as soon as i get 1 or 2 pain free days i know it's almost over. However, this time i am 10wks into a bout which started the same as usual but although the attacks lessened around wk5 (as usual) they haven't stopped. If anything they seem to be stopping and starting i'm having pain free periods of up to 6 days (which is lovely) but then i get hit again. I've also been out drinking on more than one occasion and have suffered absolutely no ill effects from this, no attacks at the time and no attacks for several days after. WTF is going on??

IP Logged

Click Here to visit the CH.com Facebook page!

wimsey1

CH.com Alumnus

Offline

I Love CH.com!

Posts: 2457
MA
Gender: male

Re: ECH change in cycle length
Reply #1 - Mar 8^th, 2012 at 8:11am

It's the unpredictability of the Beast. We want to tame it so we can know when and how we will be called upon to fight back, but seldom does it turn out that way. When and where were you diagnosed? What prevents and abortives do you use? It's certainly time for a reeval if not for more aggressive front line action. Blessings. lance

IP Logged

Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: ECH change in cycle length Reply #2 - Mar 8^th, 2012 at 8:33am Well, Lance is on target, of course, but he left out: God has a sense of humor. <bg>
Back to top	Bob Johnson IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: ECH change in cycle length
Reply #3 - Mar 8^th, 2012 at 10:33am

but he left out: God has a sense of humor

Sadly, I ususally don't get it! Grin

Sadly it's what they said. The first 20 years of my CH you could set the atomic calendar by the beginnings and ends of my cycles, they were so predicatable. Hit my 40's and they went all over the place. 2 year remissions, 8 month cycles, it's just the beasts nature to morph. As Lance mentioned, do give us a detailed account of your treatment regimen, we may be able to collectively give you some ideas to run past your doc. Wishing you peace and some pain free time soon.

joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

kittyfantastico CH.com Newbie Offline I Love CH.com! Posts: 5 Gender:	Re: ECH change in cycle length Reply #4 - Mar 8^th, 2012 at 11:04am Thanks for all your replies, i just use o2 and Imigran shots, at this point i'm not prepared to consider preventative meds. I don't like to put drugs etc into my system unless it's 100% necessary, and having heard about the side effects etc of the other options i'll be steering clear of those as long as i possibly can!
Back to top	IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: ECH change in cycle length
Reply #5 - Mar 8^th, 2012 at 11:11am

You also might want to explore our sister site:

clusterbusters.com

They explore some "optional" treatments, some legal some not, to deal with CH. Their success rate is pretty phenomenal. Then visit the meds section of this board and read the post "123 pain free days and I think I know why" A daily regimen of Vitamin D-3, zinc, calcium citrate, magnesium and fish oil. It's cheap, good for you even without CH, and is also providing a lot of relief for CH'ers. Worth a read.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

kittyfantastico CH.com Newbie Offline I Love CH.com! Posts: 5 Gender:	Re: ECH change in cycle length Reply #6 - Mar 8^th, 2012 at 11:15am Thanks Joe x
Back to top	IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!