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elana

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time change/ daylight savings
Mar 26^th, 2012 at 3:24pm

Does anyone else get attacks soon after the time change? My last attack happened 2 weeks to the day after daylight savings time and unfortunately it happened again today... I had read that the change could cause distruptions in the circadian rythyms (huge trigger for me) and I was just wondering if anyone else has this happen and if anything at all can prevent it...today is a really really bad pain day Sad

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: time change/ daylight savings Reply #1 - Mar 26^th, 2012 at 4:14pm I noticed several years ago the difference time change made to me, but I'm chronic. I believe it makes a difference in some of us, but I don't know that we can make a blanket statement about it. Jerry
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Ant

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Re: time change/ daylight savings
Reply #2 - Mar 26^th, 2012 at 10:52pm

Mine just started back up this last weekend. It always happens this time of year. One thing I have been thinking though is that mine all occur after I hit REM sleep or I am in a deep dream. The reason I know this is because its like I'm stuck in the dream but cant wake up, once I do its already full blown. O2, nothing helps and I just have to ride the wave...does anyone else feel this way? Sad

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wimsey1

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Re: time change/ daylight savings
Reply #3 - Mar 27^th, 2012 at 7:31am

I know my body doesn't like any changes: in time, the weather or whatever. That's probably not unusual. However, I'm not sure there's a correlation to the CHs I get. Like Jerry, I am chronic. But even chronics have "good" and "bad" cycles. The one thing I do know, the beast loves REM sleep as previously mentioned. I will use O2 for the first three times I'm awakened, and if they're still hitting me when I fall back asleep, I'll use Migranal or Imitrex. Blessings. lance

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elana

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Re: time change/ daylight savings
Reply #4 - Mar 27^th, 2012 at 8:47am

nothing seems to be helping this time around... I havent tried 02 and my doctor (of course) is on vacation. I used an ice helmet and took a max-alt...knd of shaved the worst off but it was still there lurking. I wonder if non sufferers understand what it feels like to be afraid to go to sleep because you know its gonna be bad when you wake up. this is so awful.

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wimsey1

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Re: time change/ daylight savings
Reply #5 - Mar 28^th, 2012 at 7:12am

Make getting O2 your highest priority. You should get a large tank (J or H) and several small E tanks. The large tank for when you're home and the E tanks for traveling. I keep an E tank next to my bed so I don't have to go far to abort the hit. Injectable sumatriptan is faster even than Maxalt. Let us know how you make out. Blessings. lance

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elana CH.com Newbie Offline I Love CH.com! Posts: 5	Re: time change/ daylight savings Reply #6 - Mar 28^th, 2012 at 10:56pm I already have a doctor's appt set up for next week to get the O2. In november (daylight savings) the attack lasted 5 days, this time around I'm on day three but it sems to be abating a little bit...crossing my fingers!!! Thanks, as always, for all your support and understanding...you guys are a godsend!
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Ant

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Re: time change/ daylight savings
Reply #7 - Mar 29^th, 2012 at 10:07am

I do have 02 but the doc will only give me 8 LPM. I know I can buy a different regulator on ebay. If I catch it in time the 8 LPM will work sometimes or at least make the cluster tolerable. I also take Butalbitol which seems to abort the headache as well. I don't care for my current Neuro so I'm trying to find a new one. In the mean time what do you guys recommend for a prophylactic as well as an abortive besides O2? I will be seeing my family doctor today for some meds and a referral to a different Neuro, would like some suggestions.

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: time change/ daylight savings Reply #8 - Mar 29^th, 2012 at 2:32pm Go for oxygen with a higher rate. Simply amazing what that can do to kill a CH.
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CHMatt

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Re: time change/ daylight savings
Reply #9 - Apr 2^nd, 2012 at 1:43pm

I'm chronic too and the time change seems to be one thing that makes mine worse too. For the past two springs I've had the headaches pop up and never put together that it could be the time change. This year, one week to the day after the time change mine broke through the current meds that had lasted fine since last spring. Retracing when they started the past two years indicates that it seems to be related to the time change.

I added 10 mg melatonin to the current cocktail of meds and am getting only 2 or 3 a week now, which is entirely acceptable. Good luck!

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brian trudeau

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his arms are around me
and his tounge in my
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Re: time change/ daylight savings
Reply #10 - Apr 2^nd, 2012 at 1:56pm

Hello once again everyone.
Mine started again on the spring equinox starting with low level pain (enough to wake me up still) and been increasing in strength since. Sucks big time but not like I have not done this all too many times before.

just been arguing with my new insurance company about getting my o2 for last 2 weeks since they want my pulse ox reading to be below 88% My doctor is writing a note to the insurance company to explain it is not for low oxygen levels but that is my only course of treatment and just praying his letter works.

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...but then you make me crawl..and I cant be holding on to what you got...when all you got is hurt...

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Guiseppi

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Re: time change/ daylight savings
Reply #11 - Apr 3^rd, 2012 at 9:41am

Brian, go to the meds section and check out the post "123 pain free days and I think I know why." A simple vitamin/anti inflammatory regimen that's providing a lot of relief, up to full remissions. Pennies a day, good for you even without CH, worth a look see.

That whole 02 saturation level sh$#!! God the insurance companies can be stupid! Grin

Wishing you speed on that subject!

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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