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WARNING-vitamin "D" (Read 27679 times)
neuropath
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Re: WARNING-vitamin "D"
Reply #25 - Jan 19th, 2014 at 4:17pm
 
This "warning" should not pertain to the Vit D regimen but to all information, experience and best practice we share in this forum.

Batch and most others who post experiences and discoveries do so not on the basis of proof achieved through clinical trials but through research and accumulated empirical data, which, if credible, offers an opportunity to others to get into the subject matter and to determine for themselves whether this approach is the right one for them.

Overdosage, toxicity and other risks are part and parcel of EVERY cluster treatment available to us and it goes without saying that Vitamin D3 too carries risks on numerous levels.

At the same time, if compared to the risks of long-term verapamil, lithium, triptan or steroid use, the dosages that are being suggested for Vit D and that are achieving very notable results fall far short of what many of us have risked previously with other therapies that were half as successful.

One glass of red wine a day has a therapeutic value, 3 bottles will kill you. The same applies to any other ingredient we use in our therapies, including Vit D.

Vitamin D at the dosages being discussed here is used for the  long-term treatment of other illnesses. It goes without saying that levels must be monitored, as with everything else.

I have unsuccessfully tried the regimen twice but will try it again. It could well be that the prospect of a treatment whose only side effect is healthy looking skin is too tempting for many of us to try too hard and too quickly...and fail as a consequence.

My next attempt will be when I am completely out of high cycle and when I can gradually, at my own pace, build up and monitor reasonable levels of VitD and all supplements, one step at a time.

Although the debate about risk is important, more important still is the fact that ALL viable treatments for CH, baring few, were discovered by sufferers and that these have brought more relief to us than the combined efforts of neurology and pharmaceuticals.

Whether the treatment is for us is for us to decide as informed adult sufferers, who have gone through the whole gambit of alternatives.

Hats off to Batch for not only devoting himself to the regimen but also to never having to wait for more than a day to get considered and intelligent feedback of every stage of the regimen I was in.

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AussieBrian
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Re: WARNING-vitamin "D"
Reply #26 - Jan 19th, 2014 at 5:31pm
 
I second the motion.
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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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Emjay
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Re: WARNING-vitamin "D"
Reply #27 - Jan 29th, 2014 at 7:56am
 
It has been two weeks off the D3.  Had a hit last night, first one since last June when I started the regimen.  It was Kip 6 when I treated with an Imitrix injection.  I decided to go back on the D3 at 10K.  I do not want to start a cycle if I can help it.  I see the neurologist on the 10th so I will get tested then.  Batch, you must be spot on with the half life!
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Emjay
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Re: WARNING-vitamin "D"
Reply #28 - Jan 29th, 2014 at 7:59am
 
I third the motion!  Batch and so many of you others have made the isolation less of an issue and pain management a realistic goal.  I can't express the depth of my gratitude.
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