Howdy all..... I am currently on Topamax and it has been doing wonders however past couple of days I have been having those alarm headaches but they aren't intense like I need my sprays it just a oh my god my head is pounding let me take my anxiety pill and low dose bayer ( no caffeine) see how that works and I am okay but it always happens at the same time 4 am past couple of days which when I started getting clusters it happened late night 3 am but they were more intense usually lots of crying couldn't sleep but my current clusters are less intense no sprays needed and I usually do not use those unless it is intense since my insurance is kinda stingy with those anyways... My question is this... What's going on? I have been doing great topamax working smooth but last couple of days I have been awakened by these alarm headaches not intense but still annoying and I still get headaches during the day but it's due to sinus problems ( I think) since I live in a very,very high pollen area.  Glad I found this forum and maybe someone can help with my cluster headache question thanks in advance!

Janie

I'd echo what Lance suggested. If the Topomax isn't bringing relief, then you owe it to yourself to explore other options. You ought to also take a look at the Vitamin D3 regimen that quite a few people, including myself, have found some decent relief from. All the best.

It's not uncommon for medicines to stop working periodically or even permanently when dealing with clusters . You may want to look into something else if the Topomax continues to fail to bring relief.

Consider asking your doc about  a dosage adjustment on the Top. But first, anything stopping you from swallowing a pill on schedule, regardless of work?

Print the PDF doculment, below, and use it to talk about options with your doc.