It's very premature to assume you have Cluster. Without a good diagnostic work-up your flying blind for there are a number of disorders which appear to be Cluster but which are, in fact, not headache disorders.

Second issue is whether the neuro knows anything about headache. It's amazing how little education/experience most neuros have in this complex area of medicine. See this doc and see what comes of it, i.e., does he seem to know about how to Dx you.

If you have any doubts, seek a headache specialist.
---
LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.


2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or ; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
=====
Please tell us where you live. Follow the next line to a message which explains why knowing your location and your medical history will help us to help you.

Cluster Headache Help and Support › Getting to Know Ya › Newbies, Help us...help you

You can add your location by editing your profile. CP Member --> profile

What is the treatment plan? Med, dose, frequency....

Your outline in reply #4 is so unorthodox and lacking in the names of the specif meds used that it's impossible to go beyond saying, "I'm confused!"

How aout giving up a report in a week or two about the results of this treatment you outlined. What would really be helpful is if you would get names of the meds being used. Don't be shy about asking directly; write the name down. You have an absolute right to this information.

I think tha only then can we get some idea of whether this Clinic understands Cluster.

Don't know why you are "going in for O2 treatments". You should read the oxygen info link carefully and understand how CH sufferers need to use it. It is an on demand thing...
They also don't seem to be using the standard front-line medications for CH... but maybe they have something else in mind. Keep us posted.