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Finally getting the help I need (Read 356 times)
thbaker41
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Bowlinggreen Kentucky
Gender: male
Finally getting the help I need
Sep 10th, 2012 at 3:17pm
 
Hey thanks everyone here for answering my questions first all. And well my visit with the nuro was really crazy pulled into the lot and eye was twitching so I knew it was comeing but was thinking this might be good got to his office and was in REALLY bad pain this was about five till nine and he was not in yet so his nurse freaked out and called the er to come get me that really pissed me off so I was in the er maybe five mins and the doc comes in ask what it is and says you been to see your nuro oh man I wanted to snap his head off then so back to nuro and this is my first visit with him he has been talking to my family doc for about two weeks so he had already looked at all my mri's and ct and the other test they had run. He was upset that he just missed the attack I was having. But man I could have hugged him first thing he says is Tim I believe its not your neck and your self diagnosis was spot on so to wrap this up I am getting the shots of Imetrex two a week starting me on verapanial or whatever its called and told me to work out the o2 with my insurance oh and gave me a nasel spray vol something told me my next attack take that and let him know if it helps at all. Like I said I am new to this and man I feel so sorry for you folks that have had to deal with this for like twenty plus years already well fellow ch members thanks again for all the info it was funny the nuro asked how I was able to tell him I was sure this is what it was I told him about this sight he said he has only run into two other folks with ch so far and he's still learning but I trust him he seems to care so lets hope for the best Tim
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LasVegas
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Episodic CH since 11 yrs
old, now 50.


Posts: 2020
north of the 60th parallel
Gender: male
Re: Finally getting the help I need
Reply #1 - Sep 10th, 2012 at 3:41pm
 
Hi Tim, sounds like a great start of a relationship with a doc who seems to care.  Might have to educate your neurologist, as most of them don't know as much as CH patients.  Read, read, read!

Congrats on your appt Wink

-Gregg in Las Vegas
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Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019
 
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