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onepoint5

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Progression of time between episodes
Sep 22^nd, 2012 at 6:26pm

Thanks to the webmasters and hosts. I am new to the board and I look forward to searching the many posts. So……. I am not sure if my post will be a repeat.

Stats:
40 something.
20 plus years of clusters- only at night

6 years, episodes were 6 months apart, about 50 almost sleepless nights each episode
8 years, episodes were 1 year apart, about 50 almost sleepless nights each episode
6 years, episodes ARE 18 months apart, about 50 almost sleepless nights each episode

I read that after 24 months and/or age 50 ish they go away. Has anyone had this experience or a similar progression? Thanks

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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Progression of time between episodes Reply #1 - Sep 23^rd, 2012 at 11:07am From the age of 20 until 40 my episodes came every 8-9 months and lasted 4 to 6 weeks. At age 40 the remission jumped to 2 years but the length of the episode increased to a couple of months. Each subsequent remission got a few months longer. At age 55 they stopped. Now almost 8 years without a cycle.
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onepoint5 CH.com Newbie Offline I Love CH.com! Posts: 6	Re: Progression of time between episodes Reply #2 - Sep 23^rd, 2012 at 11:57am Thanks Bob P. fingers crossed
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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: Progression of time between episodes Reply #3 - Sep 24^th, 2012 at 11:58am Nothing's for sure with CHs. After age 50 I went chronic. Oh well. I still have hopes for over age 60 they'll disappear! blessings. lance
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Progression of time between episodes Reply #4 - Sep 24^th, 2012 at 8:33pm Many people do stop in their 50's and 60's, that being said we have board members in their 70's still getting hit. I'm 52, PF for 2.5 years, my longest remission ever. I've decided I'm cured! (shhhhh...don't tell beasty I said that it pisses him off!) Joe
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George

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Boise, Idaho USA
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Re: Progression of time between episodes
Reply #5 - Sep 24^th, 2012 at 10:43pm

I'm another clockwork episodic. For 20 years, I cycled twice annually, spring and fall. For another 10 years, cycles were once annually, in the spring. At about age 45, they switched up again--and I began cycling every 3 years, again in the spring.

In 2006, things began changing again. I went 3 years, 4 months until the cycle began in 2009. As of now, I've gone better than 3 years without a cycle.

Guess we'll see what happens. But the overall pattern is of increasing time between cycles. Will that continue? Don't know.

With luck, the thing has a lifespan. Perhaps it will be shorter than my own. Wink

Best wishes,

George

Edit to add: I'm 58 now. I started getting hit at age 13.

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« Last Edit: Sep 24^th, 2012 at 10:50pm by George »

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Farzad

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Re: Progression of time between episodes
Reply #6 - Sep 26^th, 2012 at 7:47am

Dears,
Seems mostly the lenght of PF time increases, for mine it was 1.5 year, and the start of the cycle was switching between fall and spring , and this time it started after 23 months ( around 2 years) , again in fall , perhaps considering the above postes we have a hope to have the longer PF times,except otherwise you change to the Chronic with unknown reason.

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Farzad

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onepoint5 CH.com Newbie Offline I Love CH.com! Posts: 6	Re: Progression of time between episodes Reply #7 - Sep 26^th, 2012 at 11:24am Thanks to all of you for the replies. I have never met anyone with CH… just migraines. A friend just said the other day that it was so sad that I did not know of anyone with CH. Now I do. Would have loved to make the conference.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Progression of time between episodes Reply #8 - Sep 26^th, 2012 at 1:54pm What part of the world are you in? We do mini meet and greets all the time! JOe
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Shedz CH.com Alumnus Offline OUCH UK MEMBER Posts: 532 x1\|Walsingham\|United_Kingdom\|europe\|193\|223\| Gender:	Re: Progression of time between episodes Reply #9 - Sep 27^th, 2012 at 12:56pm I'm in cycle now, been PF for over a year, it's the longest spell of remission i've had.
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