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Newbie (Read 653 times)

Mel Koga

CH.com Newbie

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I Love CH.com!

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Newbie
Oct 7^th, 2012 at 12:34pm

I just found this website and am still thanking God for you all. My husband has suffered with ch for approx. 15 years, and only for the past 5 or 6 years has he been prescribed oxygen. Before that, all kinds of tests, ineffective treatments, etc. Im sure you all know what I'm talking about. Anyway, I have a question. My husband has to wait till his headache is "full-blown" before he takes his oxygen. If he takes it at onset, it comes right back. Does anyone else have this problem?

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LasVegas

CH.com Sponsor

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Episodic CH since 11 yrs
old, now 50.

Posts: 2020
north of the 60th parallel
Gender: male

Re: Newbie
Reply #1 - Oct 7^th, 2012 at 12:48pm

If he waits too long past onset, the attack will be extremely difficult to abort. Proper o2 therapy is to begin high flow o2 at onset of attack.

"Repeat attacks" are often due to stopping o2 therapy too soon. To lessen the chances of a repeat attack, have him abort the attack (from onset), and stay on the o2 breathing normal (lower lpm) for an additional 10 minutes. This procedure has helped many CH'ers who have expressed concern of repeat attacks.

Good luck Wink

-Gregg in Las Vegas

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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Guiseppi

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San Diego to Florida 05-16-2011

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SAN DIEGO, CALIFORNIA USA
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Re: Newbie
Reply #2 - Oct 7^th, 2012 at 10:12pm

I had a similar problem with come backer attacks within 20 minutes of shutting off the 02. For many years I took a Cafergot pill...a REALLY old school CH med.... when I started the 02. 02 would kill the attack, cafergot would buy me up to 12 hours pain free time.

During my last cycle I was advised to try energy drinks instead of cafergot. Now when an attack starts, I immediately fire off the 02, while huffing the 02 I drink sugar free red bull...on the rocks.......in between breaths. The benefit appears to be two-fold. The abort seems to be more rapid, and it has the same effect of pushing the comebacker off.

They're cheap, worth a shot. One warning, if he is on verapamil I'd limit it to one or two energy drinks a day as the taurine in the drinks doesn't play well with verapamil and can cause heart issues.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: Newbie Reply #3 - Oct 9^th, 2012 at 5:30am What Joe said. The Red Bull along with the O2 works for me (and I used Cafergot for years also). But make sure the CH is totally aborted before getting off the O2 (and then give it a little mroe time to be sure). Let us know how that works for you.
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Newbie Reply #4 - Oct 12^th, 2012 at 10:06pm I can't add a thing to what the three have said. They all hit the key points. The biggest thing is don't quit to soon thinking it is all over. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

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