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Clusterman59

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Pain free is AWESOME!!

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D3 Whooo Hoooo!
Nov 3^rd, 2012 at 2:27pm

I started the D3 treatment with Pete Batch 18 days ago and have just had my 15th strait day PAIN FREE!!! This has never happened to me in 37 years of being a mostly chronic CHer...

I have never felt so good!! !8 days ago and 37+ years past Wink

I had back to back Ch's every night and several during the day with occasional breaks except for a couple of years with 6 month cycles but the last 6 to 7 months they were 80% kip 10 I had actually passed out from the horrific intensity of these CH's.

I never had in my history with these any preventative that has worked for me since 1973.
My most sincere thanks to all here at this wonderful site and To Pete Batch for doing what I thought was impossible! Thank you all from the bottom of my heart! Wink

.....Johnny

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« Last Edit: Jul 7^th, 2013 at 1:56pm by Clusterman59 »

Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: D3 Whooo Hoooo! Reply #1 - Nov 3^rd, 2012 at 3:14pm Can you describe your regimen for the rest of us? How much did you start at, how much might you have tapered down, how much are you at right now? Congratulations, by the way. It's pretty cool, no?
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Clusterman59

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Pain free is AWESOME!!

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Re: D3 Whooo Hoooo!
Reply #2 - Nov 4^th, 2012 at 2:37am

I was In really bad shape with my Ch's and getting 10 to 15 daily, 80% were a kip 10 and also my D3 was very low at a 17ohd level. So Pete suggested I start the D3 at an excellerated dosing of 50,000iu daily for 2 weeks (which is not for everyone) and then taper down to around 20,000iu daily which I did 2 days ago.

It took 3 days at the 50,000iu level of D3 to become pain free and I have been pain free ever since....16 days now which has never happened to me!!. My Doctor at UCSD is totally on board with this treatment plan and is spreading the word!! I take the calcium at 500mg daily, the omega 3 fish oil at 1200mg daily and a centrum silver multi vitamin daily which has the magnesium, zinc and vitamin A....

I had my 25ohd lab test on friday to see were my D3 levels are at also Calcium and PTH levels so i will know monday and dose will stay at 20,000iu or eventually 10,000iu daily with a loading dose of 50,000iu once a week depending on lab results., as we want to keep my D3 level between 80 and 100 ng/ml levels. All I can say is the D3 has done for me what has never been done since 1973 and that's made me PAIN FREE!!! Whoooo Hooooo!!!!......Johnny Wink

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« Last Edit: Jul 7^th, 2013 at 1:53pm by Clusterman59 »

Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: D3 Whooo Hoooo! Reply #3 - Nov 4^th, 2012 at 6:04am Great success, Johnnie. Congratulations! Quote: Whooo Hoooo! Maybe another tuna battle soon? But better, sometimes you get a Wahoo. schools of these are in 8 packs. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: D3 Whooo Hoooo! Reply #4 - Nov 4^th, 2012 at 6:16am That is fantastic news!!
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iammelissa CH.com Newbie Offline I Love CH.com! Posts: 5	Re: D3 Whooo Hoooo! Reply #5 - Nov 5^th, 2012 at 8:41pm what is this D3 that you speak of?
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Clusterman59 CH.com Veteran Offline Pain free is AWESOME!! Posts: 237 San Diego, California Gender:	Re: D3 Whooo Hoooo! Reply #6 - Nov 6^th, 2012 at 12:28am Look at Pete Batchs post "Anti inflammatory regimen and survey" on the medications and treatments page, it will tell you all about it.....Johnny
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brian trudeau CH.com Junior Offline his arms are around me and his tounge in my eye Posts: 68 Kinde, MI USA Gender:	Re: D3 Whooo Hoooo! Reply #7 - Nov 6^th, 2012 at 1:03am Great to hear you are PF. I maybe need to increase my dosage of d3 although night time hits still have been brutal for me this past week (kip7-8) but last cycle around without the d3 batch recipie was at kip 9-10 at night time so any level lower on that scale works for me.
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Clusterman59

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Pain free is AWESOME!!

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San Diego, California
Gender: male

Re: D3 Whooo Hoooo!
Reply #8 - Nov 6^th, 2012 at 10:51am

Hey Brian!
Have you had your 25ohd lab test done yet to see where your D3 levels are? Talk to Pete about upping your dosage. If you are taking the 10,000iu daily then it can take as long as 2 months to get your body up to the target of around 80 ng/ml D3 levels where most chers become pain free. Best of luck and so sorry of your hard hits! Try melatonin 10mg at night to help you with sleep. It takes a week or so to really start working but helps greatly for most folks......Johnny

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« Last Edit: Jul 7^th, 2013 at 1:36pm by Clusterman59 »

Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
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Nancy

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I live for every pf minute

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Re: D3 Whooo Hoooo!
Reply #9 - Nov 14^th, 2012 at 9:00am

Who is Pete Batch?? And are you talking about Vitamin D?? I am ready to try anything....everything to stop these damn headaches!! I have not slept more then a few hours at a time for over 15 days. Normally Prednisone puts them back in remission after about 9 days of taking them....but not this time!! I am at day 15 and I'm about to start another 15 day treatment!! I have never had to repeat the Prednisone treatment before. I am having surgery today and wonder if the very large growth on my vocal cord could have something to do with this abnormal cluster cycle. I just pray after surgery today they will be going back in remission! I can't take this anymore! Cry

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: D3 Whooo Hoooo! Reply #10 - Nov 14^th, 2012 at 9:33am In my response to your last post, it's the post I referred you to, "123 pain free days and I think I know why" AS you can see by Johnny's hooting and hollering, the results can be amazingly fast! Doesn't work for everyone but about 75% are reporting positive results from it. Joe
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Clusterman59 CH.com Veteran Offline Pain free is AWESOME!! Posts: 237 San Diego, California Gender:	Re: D3 Whooo Hoooo! Reply #11 - Nov 14^th, 2012 at 12:26pm To answer the question "Who is Pete Batch" just go to the medications and treatments page and find the "Anti-inflammatory regimen" and survey thats were you find Petes thread.....Johnny
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Nancy

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I live for every pf minute

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Re: D3 Whooo Hoooo!
Reply #12 - Nov 15^th, 2012 at 6:30am

Thanks for the two replies as to Who is Pete Batch is and where to find the information about the D3. I had my surgery on the growth(s) on my vocal cord and they reduced the tissue in my nose to help me breath. I had a cluster as I was on the bed waiting for my turn to have surgery! I had my Imitrex injections with me and used it. Since my surgery at noon on yesterday, I am happy to report almost 20 hours of pf. I am still going to read up on the D3, I am not sure the beast is back in remission yet...but I pray they are. Thanks again Joe and Johnny!!! Wink

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: D3 Whooo Hoooo! Reply #13 - Nov 15^th, 2012 at 9:24am *I am not sure the beast is back in remission yet...but I pray they are.* Crossing fingers and toes for you, glad the surgery went well. Joe
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Clusterman59 CH.com Veteran Offline Pain free is AWESOME!! Posts: 237 San Diego, California Gender:	Re: D3 Whooo Hoooo! Reply #14 - Nov 15^th, 2012 at 1:57pm Best of luck Nancy!! I hope you stay pain free!! Best wishes .....Johnny
Back to top	Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever! Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Clusterman59 CH.com Veteran Offline Pain free is AWESOME!! Posts: 237 San Diego, California Gender:	Re: D3 Whooo Hoooo! Reply #15 - Nov 19^th, 2012 at 12:54pm 34 days PAIN FREE!! WHOOO HOOOO!! .......Johnny
Back to top	Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever! Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

japanzaman CH.com Veteran Offline I Love CH.com! Posts: 210 Fukuoka, JAPAN Gender:	Re: D3 Whooo Hoooo! Reply #16 - Nov 24^th, 2012 at 7:26am I'm also at half a year now . Still take the D3 every day.
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Paul75

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Re: D3 Whooo Hoooo!
Reply #17 - Nov 24^th, 2012 at 11:23am

Hi I'm new to the board, but have had great success with D3 after just my first day. I suffer from episodic cluster headaches, and had a bad cycle start last week.

Yesterday, I took D3 (4,000 IU in the am and 4,000 IU in the pm) and 4,800 mg of Fish Oil in the am yesterday, and noticed a HUGE improvement last night. Went from 3-4 KIP 5-6 CHs during the night to 2 KIP 1s last night. Just woke to a little pressure, and was able to easily fall back to sleep. This morning, I woke and started to get about a KIP 2-3, BUT after taking the fish oil and Vitamin D, gone, all gone!

I'll keep the board posted to see if the success of Batch's concoction continues!

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Clusterman59 CH.com Veteran Offline Pain free is AWESOME!! Posts: 237 San Diego, California Gender:	Re: D3 Whooo Hoooo! Reply #18 - Nov 24^th, 2012 at 12:53pm Paul...Thats how I started and by the third day i was pain free....38 days now!! Best of luck and may you be pf soon!
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Paul75 CH.com Newbie Offline I Love CH.com! Posts: 6 Washington State Gender:	Re: D3 Whooo Hoooo! Reply #19 - Nov 24^th, 2012 at 1:22pm Thanks Johnny, that's encouraging...I hope to report the same results soon!
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helplesswife CH.com Junior Offline I Love CH.com! Posts: 30 Ontario, Canada Gender:	Re: D3 Whooo Hoooo! Reply #20 - Nov 25^th, 2012 at 9:51am We're not seeing any change from this. Continuing anyway as it's a generally healthy thing to do, but nothing dramatic has happened and it's been about 3 weeks. He's taking 22000 IU of D3, Calcium citrate, fish oil, magnesium, zinc and a men's multivitamin. The hard hits seem to be over, but shadows are just not going anywhere.
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: D3 Whooo Hoooo! Reply #21 - Nov 25^th, 2012 at 9:56am It took me 8 weeks of 20,000 iu/day with a loading dose of 50,000 iu once a week before I saw any results. Stay with it.
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: D3 Whooo Hoooo! Reply #22 - Nov 25^th, 2012 at 9:57am Quote: The hard hits seem to be over, but shadows are just not going anywhere. You don't think this is progress?
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helplesswife CH.com Junior Offline I Love CH.com! Posts: 30 Ontario, Canada Gender:	Re: D3 Whooo Hoooo! Reply #23 - Nov 25^th, 2012 at 11:40am Not sure as it's also about the time when the cycle should be over...not sure if it's a coincidence or not. The Smaller headaches and shadows just won't go...will stay with it anyway though...
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Clusterman59

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Pain free is AWESOME!!

Posts: 237
San Diego, California
Gender: male

Re: D3 Whooo Hoooo!
Reply #24 - Nov 25^th, 2012 at 8:30pm

As Brew said you have to be patient with this as it can take over 2 months but be sure to get your 25 ohd lab test done to see where your D3 levels are, the target area is around 60 ng/ml on the low end and as high as 100 ng/ml and around 80 is optimum,so get that checked asap and then let me know where your at. I am no expert on D3 and do not pretend to be but I have learned the basics by talking to Batch often and many folks that are taking it and have learned alot about it. It sounds like you are making progress as this happens to many that i've talked to, ie: reduction in frequency and pain in your Ch and lingering shadows so HANG IN THERE!....Best of luck.....Johnny

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« Last Edit: Apr 4^th, 2013 at 12:31pm by Clusterman59 »

Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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