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D3 Whooo Hoooo! (Read 21984 times)
Batch
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Re: D3 Whooo Hoooo!
Reply #50 - Dec 11th, 2012 at 10:02am
 
Tim,

Be sure to take along the following graphic when you see your neurologist...  A picture is worth a thousand words...

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Print the attached file and take it along as well...  It should ease any worries about vitamin D3 intoxication.

Take care,

V/R, Batch
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
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Tim Cobb
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Re: D3 Whooo Hoooo!
Reply #51 - Dec 13th, 2012 at 7:56am
 
Thanks again I will.
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AppleNutClusters
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Re: D3 Whooo Hoooo!
Reply #52 - Dec 13th, 2012 at 8:34pm
 
Batch, that's a really good explanation of why some people (like me) probably need to check in with an endocrinologist as you and others have suggested. I'm looking forward to seeing one soon in order to find out why I don't respond to D3. I will certainly report back what I find out.
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Batch
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Re: D3 Whooo Hoooo!
Reply #53 - Dec 14th, 2012 at 6:51am
 
ANC,

There are a couple things to try in order to improve the preventative effects of the anti-inflammatory regimen while you're waiting to see an endocrinologist.

The first is the baking soda tonic...  Your systemic pH may be at the low end of the normal range (too much acid) for one reason or another. 

As this condition can trigger a level of vasodilation that makes most cluster headache abortives and preventatives ineffective, drinking a baking soda tonic 4 to 5 times a day should neutralize enough stomach acid to elevate your systemic pH to the alkaline side of neutral (above a pH of 7.4).  A systemic pH above 7.4 acts as a vasoconstrictor so it should make preventatives and abortives more effective.

In other words, drinking a tonic made with a half teaspoon of good old Arm & Hammer baking soda in 4 ounces of cold water four times a day, (2 hours after eating), and right before bed might just do the trick...  The directions are on the box.

If you don't have any baking soda (sodium bicarbonate - NaHCO3), try an Alka-Seltzer.  It contains a combination of aspirin, citric acid, and sodium bicarbonate (baking soda).  When dissolved in water or the stomach, it has pH is 9.2 so should make short work of a low systemic pH condition.

If a low systemic pH is not the problem, it's possible calcium homeostasis is preventing 25(OH)D from being metabolized in the kidneys into the active hormonal form of vitamin D3, 1,25(OH)2D3 (calcitriol). 

Calcium homeostasis and vitamin D3 metabolism are interrelated processes that work together to maintain the total calcium serum concentration in a very narrow range.

As the total calcium serum concentration approaches the upper end of the normal range, this condition signals the parathyroids to slow or stop production of PTH (parathyroid hormone)... 

As PTH is essential in the metabolism of 25(OH)D into calcitriol, a drop in PTH slows or stops production of calcitriol and that can stop or hinder the preventative effect we get from vitamin D3. 

As calcitriol is also essential for pulling calcium from the gut and pushing it into the blood stream, a drop in calcitriol results in a drop of the total calcium serum concentration. 

As these two processes are autonomous and run all on their own...  the only thing we can do is bias them by changing the intake of vitamin D3 and or calcium supplements.

As your 25(OH)D was ≥92 ng/mL, and that should be high enough to prevent your CH if it's being metabolized into calcitriol.  Stopping the the intake of calcium supplements for a week or so should increase production of calcitriol and that should increase the preventative effect of vitamin D3.

Hmmm...  I know that may be confusing...  Just chalk it up to better living through chemistry...  and a yin-yang thing that maintains total calcium serum concentration in a very narrow range... 

In short, skip the calcium supplements for a week and see what happens.  If you're eating a well-balanced diet you're likely getting sufficient calcium to maintain bone mineral density.

Now if that wasn't confusing enough, there's another path where 25(OH)D is metabolized into calcitriol, but it doesn't occur in the kidneys...  It called the autocrine mode of vitamin D3 metabolism that enables gene transcription and it takes place at the cellular level within all the different types of body cells... 

In this case, the metabolism of 25(OH)D into calcitriol is controlled by retinol (vitamin A - β-carotene) not PTH.  Magnesium and zinc are also essential in this process.

Vitamin A is hard to find, but it's readily available in other formulations like Centrum Silver, the "old foggy" vitamin and mineral supplement. (That's what I take)...  You can also get it from the carotenoids found in carrots, sweet potatoes, spinach, kale, collard greens, papaya, bell peppers, and tomatoes.

Hope this helps...

Take care and please keep us posted...

V/R, Batch


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AppleNutClusters
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Re: D3 Whooo Hoooo!
Reply #54 - Dec 14th, 2012 at 6:52pm
 
Batch, that's certainly more than helpful! I have to assimilate technical concepts pretty quickly at my job, so I have no problem with the complexity. It makes sense, what you're saying. Thanks!
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Clusterman59
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Re: D3 Whooo Hoooo!
Reply #55 - Dec 15th, 2012 at 10:30am
 
Don't you just love the way Pete explains things!
The man definitely know what he's talking about and has the research to back it up! So sorry the D3 isn't helping you yet but the endocrinologist should be able to give you some answers.....Johnny Smiley
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Tim Cobb
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Re: D3 Whooo Hoooo!
Reply #56 - Dec 16th, 2012 at 9:53pm
 
The other day before I had a chance to read this I had a bout of indigestion and mixed up Grandma's cure baking soda and water, funny thing and I didn't think about it until right now the normal 2 visits that I have were very minor that day. Now I don't know how that could have made that difference but the 9:30am hit was so minor that I went right back to sleep no O2 or trex and the 2:30 pm hit took about 8 min of O2 and was more of a shadow than a CH. I have been maintaining 20,000 of D3 10 when I get up at 6pm and 10 right before I go to bed.
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AppleNutClusters
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Re: D3 Whooo Hoooo!
Reply #57 - Dec 17th, 2012 at 10:31pm
 
Thanks, Clusterman! I'm still working on it, but I'm not giving up.
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Clusterman59
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Re: D3 Whooo Hoooo!
Reply #58 - Dec 20th, 2012 at 8:45pm
 
That's great my friend!
I am glad you are giving this 100% of your effort and i truly pray for you that it works so keep hanging in there and keep us posted.....Johnny Smiley
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Clusterman59
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Re: D3 Whooo Hoooo!
Reply #59 - Dec 20th, 2012 at 8:50pm
 
That's GREAT news Tim!!
So happy for you!! I think you will be totally pf soon and enjoying the good life! keep us posted on your progress and  pf wishes to you my friend!! Smiley
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ressa36
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Re: D3 Whooo Hoooo!
Reply #60 - Dec 28th, 2012 at 5:49pm
 
Does anyone think that there would be any issues with taking such high doses of vitamin D? it looks as though it could result in hypercalcemia, atherosclerosis, and higher risk of kidney stones, among other things. I know that anything is better than getting hit, but should I be concerned about these things? my family has a history of high blood pressure and stroke. thanks!
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Re: D3 Whooo Hoooo!
Reply #61 - Dec 28th, 2012 at 6:12pm
 
ressa36 wrote on Dec 28th, 2012 at 5:49pm:
Does anyone think that there would be any issues with taking such high doses of vitamin D? it looks as though it could result in hypercalcemia, atherosclerosis, and higher risk of kidney stones, among other things. I know that anything is better than getting hit, but should I be concerned about these things? my family has a history of high blood pressure and stroke. thanks!

That's what the FDA would have you believe. Because there's no big pharma money to be made in vitamin D3.

It's bullshit.
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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
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Tim Cobb
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Re: D3 Whooo Hoooo!
Reply #62 - Dec 29th, 2012 at 11:38pm
 
Well went 6 days almost PF some real mild shadows and then wham only about a K-2 so not to concerned more concerned that I may have gone chronic since its been 7 going on 8 months now. Still taking D and will see Doc first week of Jan. Yes I will make sure I take all of this info to her.
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« Last Edit: Dec 29th, 2012 at 11:42pm by Tim Cobb »  
 
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Reply #63 - Dec 30th, 2012 at 9:01am
 
Chronic, by definition, is going one year without a pain-free break of 30 days or more.
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Clusterman59
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Re: D3 Whooo Hoooo!
Reply #64 - Dec 30th, 2012 at 2:43pm
 
Following Batches regimen has been proven to be safe as the body can produce alot more than 10,000 iu of D3 daily just hangin in the sun so followed properly and getting your 25 ohd tests regularly there should be little concern of safety here however on another note everyone is different and some may not be able to tolerate oral D3 or other supplements so for general purposes though this is a safe regimen and is helping so many to become pain free from cluster headaches....Johnny Smiley
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« Last Edit: Dec 30th, 2012 at 3:00pm by Clusterman59 »  

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Re: D3 Whooo Hoooo!
Reply #65 - Dec 31st, 2012 at 1:04am
 
thanks Brew
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Tim Cobb
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Re: D3 Whooo Hoooo!
Reply #66 - Mar 19th, 2013 at 12:04am
 
Have seen the Doc and showed her the info, Shes reviewing it. She had heard of the d connection but had seen little info on it. I gave her a small book to review. I am continuing to take 20,000 units a day also taking Varapamil and using O2 for flairs. Have had shadows about once a week and a few CH since the beginning of the year. I have only had to use trex 2 or 3 times since the beginning of the year. Doc should give me the order within the next few days here so until I am going to continue what I have been doing. Now for the kicker if I miss 2 doses in a roll of the d-vap regime I get the shadow so I will wait for results and go from there.
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Re: D3 Whooo Hoooo!
Reply #67 - Mar 20th, 2013 at 9:43am
 
Hi all,
   I am supposed to go to the lab and get my levels checked today, but upon further inspection,  my "new" doctor, wrote my script that says just , vit D levels, CBC, etc.   is that the right test for the 25ohD, test that I should be getting?   Im confused.......    help anyone? Undecided
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Re: D3 Whooo Hoooo!
Reply #68 - Mar 20th, 2013 at 11:08am
 
My neuro wrote the same thing. Sure enough the lab knew to check for the right thing.
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Clusterman59
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Re: D3 Whooo Hoooo!
Reply #69 - Apr 11th, 2013 at 12:31pm
 
Yes Chris that is correct and it is the 25 ohd test to check your D3 levels and as long as your doc says to check D levels it is the same... Johnny.... Wink
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« Last Edit: Apr 11th, 2013 at 12:34pm by Clusterman59 »  

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Clusterman59
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Re: D3 Whooo Hoooo!
Reply #70 - May 19th, 2013 at 11:40am
 
Just went through a week where I got hit 5 days in a row after switching D3 brands to a cheaper discount brand and paid for it after 191 days CH free on the regimen.
I have seen that there have been some tests done in Europe on different brands of D3 and some are grossly deficient in the actual amount of D3 in them. My recommendation is to use a reputable brand such as Batches recommended "Kirkland" brand from Costco or I take "Natures Made" brand and "GNC" is another good one that comes to mind as i know several folks using it with good results.
The brand I switched to that was obviously deficient was "Rite aid" brand but may have just been a fluke?? I don't know for sure but about 8 days after switching from Natures made to the Rite aid brand is when I got hit.
I had the opportunity to bust so i did and have been CH free for a week now and have not restarted the D3 regimen to see if it was the busting that worked and it appears that the busting has worked and I am going to give it some time to see if the CH free effects will continue but have all intentions to continue the D3 regimen for the great benefits that it has regardless of being CH free as I have no doubt that the regimen will continue to keep me CH free and feeling good!...Wink
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« Last Edit: May 19th, 2013 at 11:57am by Clusterman59 »  

Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
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Re: D3 Whooo Hoooo!
Reply #71 - Jun 8th, 2013 at 4:22pm
 
I posted this on another thread as well. I hope it will help the other 30%.

Its also important to know where your d3 is coming from as most company's derive it from lanolin in sheeps wool. If you are sensative/allergic to wool, I would look into d3 that is derived from vegitable sources. Also you do need to supplement the d3 with the omega 3 fish oil. I use the omega 3 fish oil and the omega 3 flaxseed oil. And it is also important to take Magnesium along with it. Magnesium aids in d3 absorbtion. I'm not sure how much magnesium to take, but I have seen reports of ppl taking upwards of 1600mg's. Recommend talking to you doc about how much to take. Hope this helps.
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« Last Edit: Jun 8th, 2013 at 7:34pm by Kevin Z »  
 
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Re: D3 Whooo Hoooo!
Reply #72 - Jun 8th, 2013 at 6:38pm
 
Between 400mg/day and 500mg/day is the recommended
daily amount of Magnesium Citrate you should be taking.
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Re: D3 Whooo Hoooo!
Reply #73 - Jun 8th, 2013 at 7:49pm
 
Yes 280-300mg for women and 270-400mg for men. Being especially careful if you have kidney problems. Thanks for correcting me. But I have heard of ppl taking a lot more. Check with your doctor first. Of course.
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Re: D3 Whooo Hoooo!
Reply #74 - Jun 9th, 2013 at 2:30pm
 
For this vitamin regimen, Magnesium Citrate 400mg daily is recommended. Wink

-Gregg in Las Vegas 

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