Guiseppi
CH.com ModeratorCH.com Alumnus
   
Offline

San Diego to Florida 05-16-2011
Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender:
|
Did an archive search these are the only two references I could find, the first one was from 2009 the second is from 2002 more related to an overdose of prednisone causing issues:
2009 posting:
It has been awhile since I posted, and though lots have changed (finished from Graduate School!) I want to keep this post to a medical type question...
Although I was diagnosed with CH awhile back my wife and I are having some doubts.
A little history is in order.
When my life with CH first started I lost weight...50 pounds in four months! At first we thought I was having thyroid problems, which plague my family and I thought it was just my time (not joke--all of my five siblings, my father, his siblings, and his father have had to have their thyroids' removed because of Greys disease). It turned out my thyroid wasn't the problem, and we started watching my stomach. I have had trouble with my stomach and bowels for as long as I can remember and thought that might be it. All of this went by the way side when the CH started and up until a month ago we didn't give another thought.
Anyway, about a month ago I started losing weight again (15 pounds in four weeks--during the holidays no less) and sure enough another "never-ending cycle" started. A week ago an ER doctor (yep--I had to go to the ER to try and get some relief from the devil--something I am not proud of) told me that there is a excellent possibility I have Crohn's disease.
My wife began the due diligence, and discovered that one of the Extraintestinal symptoms is Uveitis. While I don't think that anyone can mistake the pain of a CH, I am wondering if there is a connection here.
What I asking is if anyone here has Crohn's and Clusters, or am I just being nuts in thinking there is a connection here?
Thanks all--I hope the New Year is as Devil Free for All of Us.
Jmonty154
2002 posting:
Title: prednisone Post by claudiamoore on May 30th, 2002, 8:25am --------------------------------------------------------------------------------
I took 16,000 millagrams of prednisone through a wrong prescription. I took it orally in January 2001 over a 14 day period. Since then I have had postier uveitis, floaters flashers, macular puckers in both eyes, 6 retina tears and holes (laser repaired), and now my disc to cup ratio is 7. Necular medicine showed damage in every area of my body. Blood in my urine. I feel this all has to do with the massive dose of steroids. I have cushing syndrom. No one in my town knows what to do or much about steroids induced ocular problems. Is this something anyone can help me with? Any steriod experts? I took more prednisone than has ever been taken in history. Any suggestions? Claudia
|