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Inositol (Read 1088 times)
mar768
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Inositol
Dec 26th, 2012 at 12:51pm
 
I read an old thread about Inositol.  I have had clusters for over 20 years and also suffer from ocd and anxiety. I have been using oxygen for the clusters, which has been great.  This past summer, I started taking Inositol for my ocd.  I am now in a cycle of clusters and have noticed that they have not been as bad as in the past.  This is the first time in 20 years they have not reached high numbers on the kip scale.  I'm wondering if there is a correlation with the Inositol.  Has anyone else experienced this?
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Bob Johnson
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Re: Inositol
Reply #1 - Dec 26th, 2012 at 3:46pm
 
This one is so old that it's not mentioned in association with headache for ages. The most current meds for Cluster are reviewed in the PDF file below. Suggest you print copies for you and any doc you see--to see if they are up to date and to guid discussions about treatment options.

If at all possible, find a headache specialist. Far too many docs lack basic training and experience with Cluster. Too many have floundered for years before finding the skill they need.
===
LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register; On-line screen to find a physician.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
=====
Helpful to explore these sources:


Three sites which are worth your attention: medical literature, films, plus the expected information
about CH.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
------

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register Search under "cluster headache"
-------
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
  Full of articles, blogs, book: written by one of the best headache docs in the Chicago area.
  Worth exploring. The latest book is in e-book edition, $10; comprehensive and worth buying for
  a careful read.


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Bob Johnson
 
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Re: Inositol
Reply #2 - Dec 26th, 2012 at 4:37pm
 
It's a form of sugar.

         Potter
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Brew
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Re: Inositol
Reply #3 - Dec 26th, 2012 at 4:59pm
 
It is also, from my understanding, used to cut illicit street drugs and as a stand-in for cocaine in the movies and on TV (because of its powdery texture and the fact that it's only about 50% as sweet as sucrose).
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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
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Guiseppi
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Re: Inositol
Reply #4 - Dec 26th, 2012 at 7:55pm
 
I've never seen anyone post about that medication, but who knows! One of the most frustrating aspects of CH is it's constant morphing, leaving it's sufferers always wondering how much their treatment/life style is affecting the beast, and how much is entirely coincidence!

Glad to hear you're havieg an easier go round this cycle, hoping it ends soon for ya.

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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