Click this link to read a post I like on the clusterheadaches.com message board...

May 15^th, 2025 at 6:26pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New to CH

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

New to CH (Read 1588 times)

Insomnia

CH.com Newbie

Offline

I Love CH.com!

Posts: 3

New to CH
Jan 17^th, 2013 at 12:25am

Hi, I'm Mike. I recently found out I have chronic CH. As horrible as having CH is, I am glad to finally know what is wrong with me. I have been suffering for 4 years now and have seen literally a dozen doctors. Next week I have to stay at this hospital in Chicago for 5 to 10 days for treatment. I'm really nervous about the whole thing, but I am really looking forward to not having to take ~30 Advils a day. Does anyone have any tips or advise while I'm being treated?

Thanks, and I'm really glad to have found this site!

-Mike

IP Logged

Click Here to visit the CH.com Facebook page!

CDog CH.com Veteran Offline Posts: 163 Rockies Gender:	Re: New to CH Reply #1 - Jan 17^th, 2013 at 1:57am What kind of treatment are they doing?
Back to top	IP Logged

wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: New to CH Reply #2 - Jan 17^th, 2013 at 8:19am This sounds unusual. Who diagnosed you and what was proposed? Advil won't do anything as a rule, except tear at your body. Please give us some more information. blessings. lance
Back to top	IP Logged

BobG

CH.com Hall of Famer

Offline

Posts: 6422
St. George, UT
Gender: male

Re: New to CH
Reply #3 - Jan 17^th, 2013 at 8:22am

30 Advils a day? Damn! Could be that is causing rebound attacks. There are many treatments to be tried. Ice or heat packs, oxygen, imitrex, prednisone, verapamil, energy drinks, vitamins,....
Try to find what works for you. 5 to 10 days in the hospital is a long time and there probably no guarantee it'll help.
Read all you can here. There is relief available.

Stay stressed. Never relax. Never sleep. Ever.

IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: New to CH
Reply #4 - Jan 17^th, 2013 at 9:04am

Welcome to the board. While you're waiting for your appointment, keep reading on the board and educate yourself as to the treatment options that are working for real life CH'ers! First and foremost...like right now!Follow this link to the medications section of this board and read the post "Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

It’s a vitamin/mineral/fish oil supplement, all over the counter stuff, that’s providing a lot of relief for people who have tried it, it’s healthy for you even without CH! I've had episodic ch about 37 years, been pain free for 3 years since starting this regimen. About 70% of those responding to the survey are showing positive results. Please give it a look see.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

Bob Johnson

CH.com Alumnus

Offline

"Only the educated are
free." -Epictetus

Posts: 5965
Kennett Square, PA (USA)
Gender: male

Re: New to CH
Reply #5 - Jan 17^th, 2013 at 9:40am

Please tell us where you live. Follow the next line to a message which explains why knowing your location and your medical history will help us to help you.

CLUSTER HEADACHE HELP AND SUPPORT › GETTING TO KNOW YA › NEWBIES, HELP US...HELP YOU
=========
When you get home from the hospital give us a detailed report of what treatmetns you received.

Next step will be to start some solid learning about Cluster. You'll be living with it for years and personal knowledge of how to care for yourself is an essential survivial skill as well as a source of confidence which overcomes anxietyl/fear.

We can feed you some good material to help with the learing. But for now, try and relax and let the hospital staff be your guide. A lot of advice from us, at this stage, will only serve to confuse.

Bob Johnson

IP Logged

Cruzs1

CH.com Newbie

Offline

I Love CH.com!

Posts: 1
Arlington, VA
Gender: male

Re: New to CH
Reply #6 - Mar 2^nd, 2013 at 11:42am

Hello, I am new to the site, and have been suffering with CHs for about 15 yrs. I am currently going through my longest episode (7 weeks). I've tried a number of different treatments. Finally, my doctor has put me on Verapamil, which seems to be working. I started taking the medication two days ago, and it seems to be working. I have a concern though, and that is atrioventricular block and bradycardia. Has anyone had any experience with taking this drug longtime and any of these sides effects? It would be greatly appreciated.

IP Logged

Mike NZ

CH.com Hall of Famer

Offline

Oxygen rocks! D3 too!

Posts: 3785
Auckland, New Zealand
Gender: male

Re: New to CH
Reply #7 - Mar 2^nd, 2013 at 2:58pm

Hi and welcome

Two days is a bit too soon for verapamil to be taking effect as it typically takes around 10 days for a dose change to become effective.

Verapamil does have side effects with the more frequently reported here being constipation. It can result in changes to the PR interval as measured on an ECG, which is why people should get regular ECGs done whilst on verapamil, however for the vast majority of people if the PR interval is changed by verapamil then coming off the verapamil restores it.

Since verapamil reduces blood pressure and we normally need fairly high doses for CH prevention, for people with already low blood pressure the maximum dose they can take is limited.

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!