Click this link to read a post I like on the clusterheadaches.com message board...

May 15^th, 2025 at 6:08pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Old school warrior new to site

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

Old school warrior new to site (Read 1018 times)

desertrat55

CH.com Newbie

Offline

I Love CH.com!

Posts: 2

Old school warrior new to site
Jan 18^th, 2013 at 2:56pm

Hiya folks Cool

Ive dealt with the beast for about 19 of my 47 years . About 2002 i finally got an answer to what i had been dealing with i have ECH and wish none of us had to be here. On the other hand ITS SO COOL to find out there is other people that unfortunately/ actually know of this condition. It gets to be a drag explaining every time some one asks ( partly because i hope in my world / heart that the info i give helps someone somewhere some how) so i give all the info i can in hope that knowledge is ammo to fight the battle that we fight never give up brothers and sisters we will prevail . I went through my battle 11/29/12 to 1/3/13 2 or 3 a day which was odd for me my average is 2 mos a year 1 episode a day . I havent had a round like that for 10 years. i will take time to post what has seemed to work for me and hope it helps Thanks to all who help

B back soon
Desertrat55

IP Logged

Click Here to visit the CH.com Facebook page!

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Old school warrior new to site Reply #1 - Jan 18^th, 2013 at 3:42pm Welcome to the board rat! Glad you found us. Start reading like a madman as there is no more powerful weapon against beasty then knowledge. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Old school warrior new to site Reply #2 - Jan 18^th, 2013 at 6:02pm Hi and welcome Tell us more about what you've tried for your CH, what works and what doesn't and we'll be able to give you some advice based on our experiences.
Back to top	IP Logged

wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: Old school warrior new to site Reply #3 - Jan 21^st, 2013 at 7:46am Welcome,desertrat. As the Joe and Mike have said, we'd be happy to hear what is working and what isn't. We're especially interested when someone like you comes along because often treatments aren't based on the best of recent research. So drop us a line, and God bless. lance
Back to top	IP Logged

desertrat55

CH.com Newbie

Offline

I Love CH.com!

Posts: 2

Re: Old school warrior new to site
Reply #4 - Jan 23^rd, 2013 at 1:03pm

The medical world has run me through the triptans , oxy, all the big name pain killers, and prednisone , man its tough to remember all the things that have been tried . At this point i have found that tramodol ( ultram ) works if i can get it in fast enough that being said as with all the rest of us the big IF ( that part sucks ) when it takes in time i get relief before about 5 on the kip scale , on the other hand i get to play with the beast for about 1 to 1.5 hours. Another thing that helps is my martial arts training when i was younger i was tought to focus energy to accomplish things and have found focusing the pain away ( as best as one could ) seems to take a slight edge off of the intensity . Im going back to the docs this year to see if there is anything new or helpful in the medical world Undecided

and will keep updated info every time i find it. Its great to know there are people who genuinly understand what we go through wishing all PF days talk to you soon . Cool

Desertrat

IP Logged

Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Old school warrior new to site Reply #5 - Jan 23^rd, 2013 at 4:14pm If you have Cluster AND "all" the standard meds don't work for you--perhaps you don't have Cluster. Link to: cluster-LIKE headache. Section, "Medications, Treatments, Therapies --> "Important Topics" --> "Cluster-LIKE headache"
Back to top	Bob Johnson IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Old school warrior new to site Reply #6 - Jan 24^th, 2013 at 3:28am Or it is possible that you were not given high enough doses of the medications for them to become effective. Either way, I'd work with a headache specialist to see what they can do to help.
Back to top	IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!