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  New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Changes in my headaches after years
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Changes in my headaches after years (Read 932 times)
zenobia48
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Changes in my headaches after years
Jan 19th, 2013 at 12:34pm  
My CH always were cyclical, coming in bunches during the spring and fall.  Now they seem to be coming at all different times and no longer fit any pattern.  Has this happened to anyone else?  Another new thing is I find my limbs sort of jerking or convulsing after the headaches.  My Dr. said it was myoclonic, but I don't think it fits that pattern.  Does this sound familiar to anyone?  Thanks for your help!
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Guiseppi
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Re: Changes in my headaches after years
Reply #1 - Jan 19th, 2013 at 2:27pm  
The pattern changing...yeah, that happens A LOT. One of the more annoying traits of CH is just when you think you have a good handle on how your CH's run, they totally change.

The jerking limbs stuff....I have not heard of that. What kind of meds does your doc have you on, could they be causing these side effects???

JOe
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wimsey1
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Re: Changes in my headaches after years
Reply #2 - Jan 21st, 2013 at 7:44am  
I've not experienced what you describe, but since even hiccups can be termed myoclonic, your doc may have just been describing the incident rather than diagnosing it. Still, since myoclonus can be a sign of something more serious, did your doc suggest a full neurological workup? If not, I would note how often this occurs, keep a ledger on it, and insist on an explanation. As far changing patterns, yup. Sucks, but there it is. blessings. lance
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trapper rich
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Re: Changes in my headaches after years
Reply #3 - Feb 20th, 2013 at 3:37pm  
i too thought i had them figured out,HA!!! July-Oct. every other year, then BAM i got caught so surprised i totally forgot about clusters, but with the internet i had, a brain tumor, or mini-stroke, or ms, or glaucoma,lol, then i remembered cluster-heads- i was so freaked i forgot my password, had changed my email, couldn't log in so created a new acct. but it took 2 days blaming the add.min WHY would they want me to read those funny letters & numbers when it hurts to open my eyes?,lmao just my cluster making me nuts,lol, but finally got back, now i'm doing d-3, so far only 2 wks but seeing results and i have a safe place to be  Smiley like my family in A.A., clusterheads saved my day Wink all i know is ''this to shall pass'' wishing all a pain free day Smiley
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