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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › DAy 2 of D3 regime , Batch

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DAy 2 of D3 regime , Batch (Read 2939 times)

Strong Mama CH.com Newbie Offline I Love CH.com! Posts: 18 in the swamp, ga Gender:	DAy 2 of D3 regime , Batch Feb 11^th, 2013 at 5:55pm Already, no shadows. Starting regime again yesterday. Had bad day, lots of shadows, and two Kip 10s yesterday. No shadows today, and no pain, at all. So far. Will keep you posted.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: DAy 2 of D3 regime , Batch Reply #1 - Feb 11^th, 2013 at 7:08pm OOPS!! Should have read this post before I responded to your other post! Hope it proves the magic for him it has been for me. Joe
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Batch

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Control The Beast With
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Re: DAy 2 of D3 regime , Batch
Reply #2 - Feb 11^th, 2013 at 11:57pm

Hey Mama,

I'm with Joe. I hope your husband's response to the anti-inflammatory regimen today is a good indication of more good things to come...

Now that you've see the potential benefits of the anti-inflammatory regimen with vitamin D3... given your medical condition, I suggest your see your PCP or cardiologist about the lab test for 25(OH)D...

If the results come back as I suspect, that you're vitamin D3 deficient or insufficient, i.e., less than 32 ng/mL speak to your doc about starting this same regimen tut suite.

Oh yes... While you're at it, have your twin's pediatrician test them for 25(OH)D... Growing youngsters that age need lots of vitamin D3 and calcium... Work with your twins pediatrician and start them on the anti-inflammatory regimen at 5000 IU/day... They need a 25(OH)D serum concentration > 50 ng/mL.

My wife has been on this regimen for two years taking 15,000 IU/day vitamin D3. She feels great, looks great and has more energy than I've seen in 20 years... Neither of us has had a cold or the flu in two years and she hasn't had a migraine over that same time frame. She was a chronic migraineur prior to that... She also kicked the heck out of 75 this last Christmas. Go figure...

The only word of caution... When both you and your husband take this regimen... fertility can and will to go up... Accordingly, it's best to keep the anti-stork defenses active...

Take care, hang in there, and please keep us posted.

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: DAy 2 of D3 regime , Batch Reply #3 - Feb 12^th, 2013 at 9:21am The only word of caution... When both you and your husband take this regimen... fertility can and will to go up... Accordingly, it's best to keep the anti-stork defenses active... Hmmmm...hope Christy doesn't read this!!! Joe (yer killing me smalls!)
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Strong Mama

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Re: DAy 2 of D3 regime , Batch
Reply #4 - Feb 12^th, 2013 at 3:23pm

Hi and lol thanks for the advice. I have prevented myself from having any more, IF I did get pregnant, I would not live. So, yeah, tubed tied here. No shadows today, no headache last night, but KIP 10 about an hour after laying down for a nap today. Gave shot,and got relief. Hubby is going for a sleep study tonight. Dr suspects he also has sleep apnea b/c I have heard him stop breathing many times in the years we have been together. We will see how that goes. He is continuing the regime, so far they are preventing shadows, at least. Wink

We may not catch the beast, but we can tame it!

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: DAy 2 of D3 regime , Batch Reply #5 - Feb 12^th, 2013 at 4:47pm Successfully treating sleep apnea is one of the best things you can do to prep for battle with CH. It most likely won't help the CH, but it will put him in a better place for dealing with it during the day - well rested and truly refreshed.
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Balanchine

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Re: DAy 2 of D3 regime , Batch
Reply #6 - Feb 20^th, 2013 at 12:34pm

Rather than starting a new thread I thought I'd just add to this one. I've exchanged some PMs with the always incredibly helpful Batch in the last week so he's aware that I too have started his vitamin regimen.

Started 2/15. Last night for the first time since the current cycle began 2 weeks ago was the first I wasn't awakened at 1 or 2 am with a Kip 8+. I woke up quite a few times, but the head was reasonably quiet. I'd hit the O2 tank using Batch's deep breathing techniques for about 10 minutes a couple of hours before going to bed when I felt some tremors.

I should add that I'd also started on topiramate exactly a week ago, half a 25 mg twice a day so far and due to begin doubling it today. So it's not exactly a controlled experiment. I'm wondering in fact if I should continue with the half dose.

Ok, that's it for now.
David

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: DAy 2 of D3 regime , Batch Reply #7 - Feb 20^th, 2013 at 1:01pm Obviosuly stay in touch with your doc about upping or reducing the topirate dosing....but I'd be damned tempted to stay at the current dose and after about 2 weeks ask the doc about tapering off of it. The D-3 is working like magic for many. Here's hoping it slays beasty for you. Joe
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Balanchine

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Re: DAy 2 of D3 regime , Batch
Reply #8 - Feb 21^st, 2013 at 1:54pm

Joe, I'd already taken a full 25 mg Tope pill before reading your post yesterday. Took the second at night but then this morning said what the hell and did only half. I'll keep up the half dosing for awhile while continuing Batch's Beneficent Brew and see what happens.

It's now been 2 PF nights and, as they say, counting. And last night I didn't even have an early evening attack of the sort I've generally warded off with O2!

David

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