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Linda_Howell

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ah, the indignity of it all
Feb 22^nd, 2013 at 10:47pm

Jim and I go to a new Iranian restaurant tonight in Madisonville. Yes, you heard me right. Iranian restaurant in Kentucky. Go figure.

We have a great dinner and there are 4 others in the room. We're talking, having a great time and it turns out the woman in the group is a pharmacist at CVS. I say kiddingly to her...lower the price of Imitrex. LOL

Her husband says I used to take Imitrex for cluster headache.

O.K. as Joe would say...my spidey sense is aroused.

Me: you have cluster headaches?
Him: yes. about 3 years ago.
Me: Tell me your symptoms
Him: dark room, aura, throwing up, etc.etc.etc (everything.. Migraine symptoms)

Me: ever have running/stuffy nose, watery eyes, feeling like you have to bang your head, can't sit/lay still?

him: oh no...but it was definetly Clusters. Doc told me so. Lord, please don't let me bite my tongue clear off. I may need it to educate someone...anyone else)

On the way to the car, Jim says to me in his best Val Kilmer from "Tombstone" voice...."Your strain was mo than you could bare"

Me: Why Ike...what evah do ya mean"

And the educating goes on. Just not from me tonight. Pfffttt Angry

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Hurt people.....hurt people. Think about it.

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: ah, the indignity of it all Reply #1 - Feb 22^nd, 2013 at 11:40pm We've been successful just enough in getting our message out there that CH is now the diagnosis du jour, being used for every thing from hangnails on up. Two steps forward . . . on step . . . Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

BarbaraD

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Hugs to ya

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Re: ah, the indignity of it all
Reply #2 - Feb 23^rd, 2013 at 8:55am

Linda I FEEL your pain...

Once in an IRS audit - I got hit - explained to the woman that I had to GO and why. She calmly told me, "My son has THOSE and he just soaks his feet in hot water - you should do that!"

I THREW a file at her and told her I was going back to my office and get her butt fired and I DID. She was UNeducatable!

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What don't kill ya, Makes ya stronger!

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: ah, the indignity of it all Reply #3 - Feb 23^rd, 2013 at 9:01am Honestly? I would have gotten the name of the doctor (without going into detail to the stranger) and took it upon myself to write a lovely letter later on.
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

tachead CH.com Junior Offline I Love CH.com! Posts: 93	Re: ah, the indignity of it all Reply #4 - Feb 26^th, 2013 at 11:12pm Oh I love that.! Your no headbanger...or daisy, as it goes. Your a daisy if you do. tachead
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AussieBrian

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CH - It's all in your
head!

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Cairns, Qld, Australia
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Re: ah, the indignity of it all
Reply #5 - Feb 27^th, 2013 at 1:25am

The herbalist has positively diagnosed me with CH of the left hip and prescribed goji berries but my astrologer said, "No, not with Venus on the cusp of Uranus!"

My friends at SynusBuster all agree that I need help, but my accupuncturist has faith even after all this time.

You should reccommend these specialists to your friend, Linda, and give him a fighting chance.

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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

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Carl D

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Re: ah, the indignity of it all
Reply #6 - Feb 27^th, 2013 at 9:07am

If I had a dollar for every time someone has said, "Oh I get those" or "I know 'so and so' has Clusters."

Of course, I always ask the exact same questions. Where do you feel the pain? How long does it last? Does it hit several times a day.

What I find frustrating is, here I have had them most of my life. I know the second I feel that twinge in my eye or my temple that one is about to come on. I know when I am "in for it."

I guess I'm one of the lucky ones though. It only affects one side, mostly my eye, temple... and that thread coming from the eyeball through the base of my skull trying to yank it out.
I'd HATE to be one of those Clusterheads who get them all over the front & back of the head, all day, for days on end. I don't think I could handle that, without a couple of Tylenol and a warm cloth (as has been suggested to me.) Roll Eyes

I feel yer pain, Linda.
Carl D

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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: ah, the indignity of it all Reply #7 - Feb 27^th, 2013 at 8:20pm People like this should be forced to wear locaters so we wouldn't be arrested for beating them to death....better still experience a cluster....no not even I am that nasty. You did well Linda! Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Charlie
Back to top	« Last Edit: Feb 27^th, 2013 at 8:21pm by Charlie » There is nothing more satisfying than being shot at without result---Winston Churchill IP Logged

Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: ah, the indignity of it all Reply #8 - Mar 8^th, 2013 at 1:53am Carl, since I live so close to Rosemont I'll be happy to bring you some warm cloths when you come to the CB convention. That was funny. Brian, Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: ah, the indignity of it all Reply #9 - Mar 9^th, 2013 at 6:36am Quote: Venus on the cusp of Uranus!" You can have that removed you know?
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

Chuh CH.com Junior Offline I Love CH.com! Posts: 31	Re: ah, the indignity of it all Reply #10 - Mar 9^th, 2013 at 8:06am This is so funny, I love you guys. Sometimes laughter is the best medicine. For the first five years my wife always wanted to give me a face massage. Now she runs to hide under the bed with the dog.. Just kidding.. we don't have a dog. Peace of mind
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Louise Barham

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Re: ah, the indignity of it all
Reply #11 - Mar 9^th, 2013 at 12:06pm

Thanks everyone, I really needed a laugh today. But it is sad. I have people tell me all the time, oh I know, I have migraines and they are really painful. I, too, bite down. It is not they are not painful. However, with a daughter with migraines and a son with CH, I would take the former everyday over the latter.

It's a shame I can't locate that ole' country doctor that "cured" my mother's migraines. I mean seriously!! He gave her an injection of rattle snake venom. She never had another headache. Wonder if it would work for CH. where is a good ole' country doc when you need one?

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Louise&&Mother of CH son

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Jeannie

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Live, Laugh, Love....

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St Louis, Missouri
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Re: ah, the indignity of it all
Reply #12 - Mar 9^th, 2013 at 4:04pm

My friend's son has migraines. At a neuro appt she mentioned to his Dr that she had a friend who had clusters. He told her that "your friend may have MIGRAINE clusters, but she does NOT have true clusters. Women don't get them."

It's hard enough to get people to understand what we go through without someone you've never met diagnosing you. I have learned to hold my tongue though. Sometimes there is just no changing peoples' minds.

Jeannie

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"It's all a grand illusion when you think you're in control." ~ Kenny Chesney

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: ah, the indignity of it all Reply #13 - Mar 9^th, 2013 at 4:10pm Jeannie wrote on Mar 9^th, 2013 at 4:04pm: He told her that "your friend may have MIGRAINE clusters, but she does NOT have true clusters. Women don't get them." He ain't seen what I've seen.....
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Zazzed

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Re: ah, the indignity of it all
Reply #14 - Mar 9^th, 2013 at 11:24pm

More often than not I just tell people I get really horrible headaches.

Although it does not do justice to what I actually go through its far easier than trying to explain just what they are and how horrible they truly are! The people that are close to me know how bad they are and that they are more than just a headache or migraine. When I was talking to my grandfather about it, he used to get migraines, and he said "I know how horrible mine were, but I cant even imagine what your going through. Pain in your head is the worst"

Sometimes its nice to have people appreciate just how horrible they are without having to explain it.

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« Last Edit: Mar 9^th, 2013 at 11:24pm by N/A »

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: ah, the indignity of it all Reply #15 - Mar 10^th, 2013 at 10:34am [i]Sometimes its nice to have people appreciate just how horrible they are without having to explain it. [/i] It's why I hang out here so much! Joe
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: ah, the indignity of it all Reply #16 - Mar 10^th, 2013 at 7:24pm Jeannie, everyone knows wimmenz don't get clusters! Dr's like that are morons and ought have their licenses under review for malpractice. Just my opinion, I know, but how many people have had their lives ruined because of some imbecilic "medical" opinion such as that? Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

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