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Gator Bill

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When the going gets tough...the
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Deja vu
Mar 24^th, 2013 at 7:59pm

Hi all, I am back. Went chronic 2 years ago after 30 episodic. After six unbearable months, you guys recommended the Chronic Cocktail including lithium and verapamil. This worked very well until a couple of months ago when attacks become more frequent leading to daily the last 2 weeks. I have increased lithium to 1500 seems to help but getting tremors.

Any suggestions? Also, is there a home oxygen machine that delivers 15LPM?

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Brew

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Re: Deja vu
Reply #1 - Mar 24^th, 2013 at 8:54pm

Have you tried the vitamin D3 regimen? I was episodic for 12 years, chronic for 8, and was having good success with the cluster buster methods until last March. Went on this regimen and have been pain free - totally pain free - since May, 2012.

I'll never go back to mainstream pharmaceuticals again.

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Wayne

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Re: Deja vu
Reply #2 - Mar 24^th, 2013 at 9:37pm

I had a very similar experience to you Gator when, after a good while happily pf on the cocktail it slowly stopped working. It seems that the body slowly gets used to the drugs and they lose their effectiveness. I had to wean myself off them and stay drug free for 3 weeks. When I started on the meds again, just verapamil, it was back to its good old self. It was a horrible 3 weeks but well worth it.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Deja vu Reply #3 - Mar 24^th, 2013 at 11:27pm I'd second Brews suggestion Gator, I've been pain free 3 years after 35 years of episodic. The D-3 is cheap, good for you even without CH, and with an 80% success rate it's the newest latest and greatest. Joe
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Callico

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Re: Deja vu
Reply #4 - Mar 25^th, 2013 at 10:36pm

I agree with the others on the Vit D regimen. It has not totally made me PF, but it has made a great difference for me!

If you will look on the left you will see "Oxygen Info" highlighted in yellow. There is not a "machine" that will produce that high a flow of O2, and what machines there are don't produce more than 85-91% oxygen, which is not effective for CH. They are designed for COPD or cancer issues.

Years ago I was put on the Chronic Cocktail and had to pull off of it due to side effects that I still suffer from 8 yrs later. I weaned myself slowly and substituted Kudzu for equal or better results than I ever got with Verap and Lith, AND with no side effects. Enter Kudzu in the search box at the top left of the screen and you will find several threads about it. I recommend you look into it.

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; You will have to detox completely, which will probably not be fun, but it has done wonders for 87% of those who have tried it.

Jerry

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Gator Bill

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When the going gets tough...the
tough suck O2!

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Re: Deja vu
Reply #5 - Mar 31^st, 2013 at 6:38pm

Thanks guys! You deserve a lot of credit for keeping this site going by your unfailing presense for years and the knowledge you share with us all old and new.

I was already taking D-3 as part of the cocktail but only around 3000iu. I an going to up it to 10k and drop the lithium and verapamil for a while. Will let you know.

Do you think kudzu is worth adding?

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Deja vu Reply #6 - Mar 31^st, 2013 at 9:41pm I never tried the Kudzu so no help there. I do NOT use the kudzu with the D-3 and am still pain free after 3 years, for the what it's worth dept! Joe
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Callico

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Re: Deja vu
Reply #7 - Apr 1^st, 2013 at 6:28am

Kudzu would be entirely your decision. Do your homework first before trying it. I don't believe there would be any problem with combining it with the D3 regimen, but I cannot say with certainty. If mine get any worse I'm going to add it back in and see if it will work again.

The best source I found for it was Swansonvitamins.com Superb service, and they will price match anyone. I used Natures Way because it has a certified potency in each capsule, which with some others can be all over the place.

One other word of advice that is very important! You are on rather high dosages of the cocktail. DO NOT come off of it all at once! You must taper yourself off a bit at the time. Otherwise you may have reactions that will make CH seem pale.

Jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Gator Bill CH.com Newbie Offline When the going gets tough...the tough suck O2! Posts: 22	Re: Deja vu Reply #8 - Apr 7^th, 2013 at 11:30am Hi guys, Great news so far! I increased my D-3 to 1000 and added in Kudzu. PF for 6 days! Knock on wood. Thanks again.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Deja vu Reply #9 - Apr 7^th, 2013 at 2:20pm That's awesome news gator hoping it continues! Joe
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Balanchine

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Re: Deja vu
Reply #10 - Apr 8^th, 2013 at 10:33pm

Great to hear, Gator. (and being from miami I love the dolphins hat!)

You might also look into buying a tank of welder's 02. Tell them you're a metal sculptor if they ask. For about 300 bucks I got the whole kit, 80 cubic foot tank and the proper regulator, etc. Then I just go for a fillup at 23 bucks a pop whenever I need it.

Keep us posted.
David

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