Anyone that believes that cluster headaches can be cured by digging around in one's ass for stray fecal matter should expect a fair amount of negative responses when publicly proclaiming such a theory. No matter how well intentioned, such an hypothesis invites ridicule.

What the OP got in this thread is far better than he would have received here a just few short years ago.

The OP is invited and encouraged to stick around....read....learn and find things that will genuinely help his fight against clusters.

I'm not certain in your interpretation of my post as to how this could Relate to your post, you might want to study it a bit further, do you have daily occurrences of CH ?

Falco wrote on Apr 15^th, 2013 at 6:41pm:

Nope I'm pf for over 3000 days thru the real deal......busting.  I do poop every day though..just sayin.

              Potter

Busting Hmm had to check that, once again you have commented on my post but you did not seem to understand as to what exactly i am saying, I will Dumb it down for you, Through no external requirements i  no longer get CH! my last recent on slot was imedeatly curtailed and i live free of CH.
Busting, i looked it up, O2 cost money, vitamin d3 cost money and the description of your busting regiment has many facets to it`s implantation and quite complicated and it also seems that the war goes on for you for you will half to continue busting were my war has ended for me.
You clam 3000 days, are you "busting" ? i am combined over over 8395 days and counting of complete remission of my CH.

The term busting :

Hey Christine,

I'm sorry the anti-inflammatory regimen isn't working to prevent your CH just yet...  Do you still have oxygen therapy available to knock down/abort the CH attacks?

Yes, it's possible you're among the 20% who don't have a favorable response... 

That said, we're beginning to understand there is usually a reason or reasons why some CH'ers don't respond to this regimen...  so don't throw in the towel just yet...  There are also a lot of benefits to vitamin D3 therapy beyond preventing CH...

The general approach at this point involves "tuning" the regimen.  You've already elevated your 25(OH)D into the green zone so stick with your present dose of vitamin D3... 

Now we need to look at ways to ensure the 25(OH)D that's not being metabolized by the kidneys to maintain calcium homeostasis has everything it needs to be metabolized extrarenal (outside the kidneys) at the cellular level throughout the body... and brain to 1,25(OH)2D3, calcitriol.

This path of vitamin D3 metabolism is called the autocrin/paracrine route that enables genetic expression.  It requires vitamin A (retinol) to metabolize 25(OH)D into 1,25(OH)2D3 and more vitamin A in order to bind at a vitamin D3 receptor (VDR).

Viral and bacterial infections can also soak up available 1,25(OH)2D3 activating your immune system's T cells.  Have you had a cold, the flu or an allergic reaction over the last few weeks?

I realize this is so much mubo jumbo and that you want to know the time, not how to build a Swiss watch... so here's what's worked for other CH'ers who elevated their 25(OH)D into the green zone, but didn't experience a significant therapeutic effect...

1.  Quit the calcium supplements for a week or two.

2.  Increase the magnesium intake to 1000 IU/day.  Magnesium citrate or magnesium gluconate have much better bioavailability than magnesium oxide...

3.  Make sure you're taking vitamin A (retinol) at RDA...  ~ 700 mcg (2,333 IU) for women.

4.  A low systemic/arterial pH (too much acid) can also interfere with just about any CH preventative.  The steps you can take here include a change of diet to make your system more alkaline (less acid)... 

Cut back on red meat, cut out sugars, gluten and peanuts...  Eat a GOMBS diet with a handful of Greens, Onions, Mushrooms, Beans/Berries and seeds a day. 

You can find more about the GOMBS diet at the following link:

Falco wrote on Apr 15^th, 2013 at 7:54pm:

That's not busting. You might want to check

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Dear Linda_Howell

  Offensive posts you say! then copy and PM throws and i will refrain

I challenge anyone to find the truth offensive and for PM i see that the prejudice comes out in people more so than a public posting and i believe that a public forum is a better venue than being one liner and responding privily all should see the conversation between postings, so far all i see in the postings is one liners equating my post with,now Monkeys and others regarding the posting and this is offensive, not only to me but others reading these posts i have placed, I seen your post regarding your in counter with a patron in a dinner and you needed to restrain your self from embarrassing your self or the other patron regarding the new ounces between Migraine and Cluster headaches, so what you did was bite your tong and let them go on in life ignorant that they have migraine instead of cluster, this may take them many more years of pain and you deprived them of your astonishing insight into your expertise in the field of Head pain.
  May be you should bring more of your insights to my posting than the one liner Resistance you are portraying at this time, Do you have anything intelligent to post to me ?
My CH started when i was in grade 7 and i was young as well
but i watched bugs bunny and the road runner hour so i have a bit more insight.  i never considered responding to postings with prejudiced comments all tho at the time there was no venue to do so and yet you allow ignorance in others and they now can not be helped.

Falco wrote on Apr 15^th, 2013 at 9:54pm:


  This post proves the theory of crap in crap out.

               Potter

Ok

Linda_howell exclamed:

Falco,

   I refuse to copy and paste all the offensive posts of yours.  Please understand that there are very young people who read this forum.  (YES...kids get CH too and they come here often)

   Please refrain from anymore references as in one of your most recent posts.  Like Bill Mingus has said...please do some reading around here for information on the latest treatments so you can be informed and keep your offensive posts to private messages.

  Thank you.  Thank you very much. 

dos this clear things up ? or would you like me to read and explain it to you ?

This message is to Bob p, Aussie Brian, Jimi, Jacki, Brew, Seaworthy, Linda_Howell, brain_cramps

There are over 600 people that viewed my post, out of them you are few, your posts are short and uninformative (no INFO) your comments are not supportive as the web_sight suggest it is, with regards to "Support Group" for CH suffering.
So brain_cramps What is it you don`t understand about my post, another one liner like HUH, or is it DUH , or maybe DOGH in the famous words of Homer Simpson ?

Falco wrote on Apr 15^th, 2013 at 11:56pm:


..........and the horse goes around with his foot on the ground!

deltadarlin wrote on Apr 16^th, 2013 at 8:32am:


    Shit for brains might be apropos for some.

         Potter

Falco wrote on Apr 15^th, 2013 at 11:54pm:


"HUH?" implies that I don't understand what you are getting at whereas "DOH!" implies that I somehow did something wrong.  (That very rarely happens.  )

I hope this further clarifies my earlier post.