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Belgian sufferer (Read 735 times)
Daan
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Leuven, Belgium
Gender: male
Belgian sufferer
Apr 8th, 2013 at 2:18pm
 
Hey guys,

At this moment I'm a 22 years old, I'm currently in my final year at college. There are two main reasons why I'm giving this forum a try:
    [1] I'm in the middle of a cluster, I'm trying to get rid of this damn cluster since 4 weeks.
    [2] My graduation is in January 2014, so I should try to find a job. But how did you guys handle your CH at work?


Please share your thoughts & thanks for reading  Wink
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« Last Edit: Apr 8th, 2013 at 2:18pm by Daan »  
 
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wimsey1
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I Love CH.com!


Posts: 2457
MA
Gender: male
Re: Belgian sufferer
Reply #1 - Apr 9th, 2013 at 7:56am
 
Daan, welcome. Here's some info about how to get started effectively battling the beast:

1. Find a good headache specialist-this is imperative. You don't say if you are seeing your GP, a general neuro, or a specialist. In the long run, you want the specialist.

2. Start a prednisone taper (starting around 80mg/day) You don't say you tried this but a bunch of us found good relief this way while waiting for a longer term preventative to kick in.

3. Start a preventative working up to a high enough dose to be effective in treating CHs, like 240mg/day verapamil increasing as directed up to 960mg/day. Other preventatives include Topamax, carbomazapine, oxycarbomazapine, and more. Pay attention to the doses-often we hear I tried that but the dose was too low to be effective.

4. Get an effective oxygen setup: a nonrebreather mask and a regulator that will go up to 25lpm along with a 3 liter bag. See optimask. Chugging an energy drink at the start of an attack and then hitting the O2 can be very effective.

5. Get effective abortives, like imitrex injectables-pills are too slow-or Migranal nasal spray, it's an alternative to triptans. I use both.

6. Keep a log or journal of your attacks, and learn to use the KIP scale at left. This may help to identify some triggers for you. Some are fairly common to all of us, like alcohol, but even that isn't universal.

It's a long list, but it returns to you the power needed to manage the beast. Good luck and God bless. lance
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Bob Johnson
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Kennett Square, PA (USA)
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Re: Belgian sufferer
Reply #2 - Apr 9th, 2013 at 4:26pm
 
When you are in work situation, clearly it's essential to have found a preventive med which works for you.

Second coinsideration is: finding an abortive medication in a form convenient and relatively private to use.

Injection sumatriptan is the fasest acting but requires some privacy to use. Abortives are available in pill form and, while a bit slower acting, have obvious advantages.

While the pill form of sumatriptan is quite effective, if your doc will allow a trial, Some of us have found this pill almost as quck actint as the injection suma:
--
Headache 2001 Sep;41(8):813-6 

Olanzapine as an Abortive Agent for Cluster Headache.


Rozen TD.
Department of Neurology, Jefferson Headache Center/Thomas Jefferson University Hospital, Philadelphia, Pa.

OBJECTIVE: To evaluate olanzapine as a cluster headache abortive agent in an open-label trial. BACKGROUND: Cluster headache is the most painful headache syndrome known. There are very few recognized abortive therapies for cluster headache and fewer for patients who have contraindications to vasoconstrictive drugs. METHODS: Olanzapine was given as an abortive agent to five patients with cluster headache in an open-label trial. THE INITIAL OLANZAPINE DOSE WAS 5 MG, AND THE DOSE WAS INCREASED TO 10 MG IF THERE WAS NO PAIN RELIEF. THE DOSAGE WAS DECREASED TO 2.5 MG IF THE 5-MG DOSE WAS EFFECTIVE BUT CAUSED ADVERSE EFFECTS. To be included in the study, each patient had to treat at least two attacks with either an effective dose or the highest tolerated dose. RESULTS: Five patients completed the investigation (four men, one woman; four with chronic cluster, one with episodic cluster). Olanzapine reduced cluster pain by at least 80% in four of five patients, and TWO PATIENTS BECAME HEADACHE-FREE AFTER TAKING THE DRUG. Olanzapine typically alleviated pain within 20 minutes after oral dosing and treatment response was consistent across multiple treated attacks. The only adverse event was sleepiness. CONCLUSIONS: Olanzapine appears to be a good abortive agent for cluster headache. IT ALLEVIATES PAIN QUICKLY AND HAS A CONSISTENT RESPONSE ACROSS MULTIPLE TREATED ATTACKS. IT APPEARS TO WORK IN BOTH EPISODIC AND CHRONIC CLUSTER HEADACHE.

PMID 11576207 PubMed

--------------------------------------------------------------------------------


Olanzapine has a brand name of "Zyprexa" and is a antipsychotic. Don't be put off by this primary usage. Several of the drugs used to treat CH are cross over applications, that is, drugs approved by the FDA for one purpose which are found to be effective with unrelated conditions--BJ.
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Since this abstract was first posted Zyprexa has appeared in some lists of recommended meds for CH. [BJ]
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Determine what legal protections you have because of illness. Will, for example, on the job attacks endanger your job.
===

Print the PDF file, below, and use to discuss treatment optons with your doctor.
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Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register (96 KB | 16 )

Bob Johnson
 
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