A quick about me for you all. I'm 21 years old, and pride myself in teaching myself anything and everything I can. I've taught myself a tremendous amount of music theory so far this year, along with how to play the piano and ukulele. I want nothing more than to be able to make beautiful music that others can lose themselves in, and find comfort in as I have in others music. My passion is nothing more than music and knowledge.
My Ordeal (Sorry if it's a bit lengthy, but I need to get this out):
I haven't had a cluster headache for the past 3 years. I had moved to a higher altitude and thought that the CHs may have disappeared with the cleaner air. Obviously, finding myself here introducing myself, I was wrong. I was first diagnosed at the age of 17. My father saw the immense pain I was in and immediately recognized it as a Cluster Headache, which he also suffers from. He immediately took me to the doctor and I was put on quite a variety of drugs to get the pain down. During my High School years I experienced several attacks while at school, one such time the Nurse sent me back to class and wouldn't allow me to go home or take medication. Unluckily, on this day I knew what these felt like without medication, as many of you do. I was heavily involved in our Theatre program and ended up missing our Tech Week due to these. Shortly after I was ostracized because I should have "worked through it". I had clusters all through my Junior + Senior year at school, and more often than not would not be able to take any medication until after school hours. They subsided shortly after I graduated.
In recent years I've been working as a Server at a rather poorly ran restaurant. Along with Cluster Headaches I also suffer from having a slightly misshapen spine and have some problems with my knees. I feel as my body is already falling apart while still in my youth. I've always been dragging a bit behind my co-workers with knots in my back the size of golf balls (not an over-exaggeration). I've always felt like the Managers looked down on me, when I gave it all I had and did my best to mask the limp I have. Today, after finally getting over a rather vicious cold that had stolen my voice, I get back to work, ready to work! Not more than 15 minutes in to my shift the world around me falls apart and blurs together. I could hardly see straight, felt faint, and everything was far too bright to be able to work properly. I immediately alerted my managers that I needed a moment to sit down, thinking it was just a remnant of the cold I had gotten over. After 20 minutes of this I realized that my condition wasn't improving and asked to leave. They frowned, and allowed me to go home. The moment I got home I realized exactly what was happening and my heart sunk. I called my Doctor got an appointment that was almost immediate, and made it there before the pain started peaking. They put me on oxygen for about 30 minutes, gave me a shot of something in my tuckus, and allowed me to be alone in the room until the pain subsided. This was the most frightening experience I've had in several years, and it helps even writing this out, knowing that you can relate.
Anyways, I get home with medication, some muscle relaxers and some preventative medications and decide to call my work and let them know how I was and what had happened. I was greeted with sarcasm from my manager, not knowing how terrible I felt having to leave work, let alone deal with a Cluster Headache. I've been dealing with these Headaches all day, been enraged at my work, and feel let down in myself for having to leave work even though it was necessary. I also fear for the upcoming weeks or months. I no longer remember what my cycles were like, or if they'll evolve in to something much worse this time. I hope to find some relief and support from all you other unlucky ones out there. Best wishes - Vol
Edit: Upon reading around the forums some, I see a lot of effort focused on proper diagnoses through specialists. I've been through several specialists and plan on seeing more about these. I've researched the subject a tremendous amount and am extremely certain at this point that I do suffer from CH and not a Cluster-LIKE disorder. Though I am still pursuing the possibility in hopes of finding relief from these.