Here's hoping you're one of the ones for whom it works quickly.

You should get the 25(OH)D serum test, just so you have a baseline to which you can compare future results. They're not that expensive. Most labs will only charge you what they get from the insurance companies if you're paying cash.

5 days in the books and still feeling generally awesome! Woke up with a minor CH two nights ago but 5 mins of O2 knocked it out and I slept we'll the rest of the night. Tempted to try a beer test today...

Tried the beer test yesterday and drank through the afternoon from 3-9, 5 beers total. No problems until I awoke with a bad one at the end of my first REM cycle. Knocked it out with an injection and went back to sleep. Maybe next weekend will work better...

so were the beers worth it? they rarely are.

just to throw my 2cents in:

I've been PF for 15 months

10,000 IU D3
500mg Magnesium
500mg Potassium
500mg Calcium Citrate
2400mg fish oil

It's been working well, no HA's, no bad side effects

coming up on 3 years pain free after 30 plus years of episodic. I'm NEVER going off the D-3 Regimen. 

Joe

yesdog27 wrote on Jun 10^th, 2013 at 1:00pm:


This might explain it. You need the extras, like magnesium and calcium, for the vitamin D3 you take to be converted into the active form that your body uses.

Thanks for the feedback! I now have the correct magnesium and have been taking it for a few days. I broke down and got an occipital nerve block yesterday at the urging of my Nuero  and wife. Not as much as a shadow since the nerve block 24 hours ago. I also had my D3 level checked and it is at 110. Going to stick with it and hopefully when the nerve block ends it will be smooth sailing.

Hi Yesdog,
You wrote, " Whats the hell going on." Be patient. My last
episode was Spring 2012 when i started the D3 Regime and
for the first time in 43yrs suffering from CH's they were all
over the place i wondered what the hell was going on it was
driving me crazy not being able to catch them in time but i persevered with the D3 Regime
through the cycle and kept on it until my next cycle was due
Fall 2013 guess what not a shadow in sight and Winter is here
down under. Heading for Europe and the UK in there Autumn
this year so keeping my fingers crossed  no CH's as thats
when mine kicked off back in 1969. I have always avoided
going back at that time of year, so here's a test.
So i wish you luck you keep pain free on D3 as i am.
Hoppy.

yesdog27 wrote on Jun 15^th, 2013 at 6:24pm:



I can relate to the high test results.  One & half years ago I tested at 103 ng/ml and had no relief whatsoever from the vitamin regimen.  It doesn't work for everybody even when your test results are flagged High!  However it does work for many, so try it!

I started this vitamin regimen again a couple weeks ago to hopefully prevent anticipated cycle this Fall.  Regardless of how high my ng/ml is this time, I am still doing it as anything this life offers as a nightmare is better than CH's!

-Gregg in Las Vegas

Well, I was still getting hit hard every night about midnight without relief for over a week. I changed two things at the same time so not sure what to credit but have my suspicions. I started another prednisone taper (my third this cycle) and did not get a PF break until the fourth day which makes me suspicious that it is the prednisone. If it works for me it usually works right away. I also upped my doses of magnesium citrate from 400 mg to 800mg and fish oil from 2000 mg to 4000 mg starting on the same day as the pred taper. On the fourth day after this change I began a pain free Tim that is now finishing its second full day. Last CH I had was around midnight 2 nights ago. I can't express how wonderful a full nights sleep felt last night, although you all know exactly what I mean.

Any feedback on the magnesium citrate dose at 800 mg or the fish oil at 4000 mg? Are these normal doses for any of you, seem high or low? Could this be what changed the game for me with D3? I had a test a couple of weeks ago and was at 110 ng/ml and still getting hits.