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Thanks CH.COM (Read 1427 times)
Jamz
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Thanks CH.COM
May 9th, 2013 at 1:39pm
 
Thank you all.

My last visit to the Nuero has resulted in O2 and Imitrex injections. Of course I am fighting my "insurance" company on the O2. They want to charge me $120 a month!? Well, that is not going to happen. I will have to work something else out on that matter. Though the severity and frequency has gone down substantially. The first CH in a week happened earlier today...

Anyhow, words can not express my gratitude for you folks that put this website together, and everyone that posts. Sharing your stories, your awesome since of humors, and advice has helped me through this difficult time tremendously.

God Bless

James
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« Last Edit: May 9th, 2013 at 1:40pm by Jamz »  
 
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Guiseppi
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Re: Thanks CH.COM
Reply #1 - May 9th, 2013 at 2:51pm
 
Try and work with the insurance company but if that fails:

Renting an E-tank from PMS on my own: $4.50 a month
Each refill runs between $12 and $15
A regulator can be head off of E-bay for under $40
A Non Re Breather Mask is another $25

Their math doesn't work!

Once I stressed with Kaiser the difference in the cost per abort of Imitrex vs. oxygen, they couldn't wait to get me set up. Pennies per abort vs. $100-200 per abort!

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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marsik_thestrong
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Re: Thanks CH.COM
Reply #2 - May 31st, 2013 at 4:25pm
 
Guiseppi wrote on May 9th, 2013 at 2:51pm:
Renting an E-tank from PMS on my own: $4.50 a month
Each refill runs between $12 and $15
A regulator can be head off of E-bay for under $40
A Non Re Breather Mask is another $25

Their math doesn't work!

Once I stressed with Kaiser the difference in the cost per abort of Imitrex vs. oxygen, they couldn't wait to get me set up. Pennies per abort vs. $100-200 per abort!

Joe


Joe,
What is your PMS?

I don't have insurance and called Walgreens they say it would cost $395/month including everything (refills, equipment lease, delivery) to supply me with O2. Shocked 

Also, they said that they didn't know of any company that was allowed to work with public (non-licensed parties for this kind of stuff) to refill O2.
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Guiseppi
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Re: Thanks CH.COM
Reply #3 - May 31st, 2013 at 4:43pm
 
It's a local medical supply store, Professional Medical Supply, located on Arnelle in the city of El Cajon California.

I brought them my prescription for medical oxygen. I'd rent 2 E tanks at a time, and would bring them in for refills. I did this for well over 15 years. The counter girls hated me because I paid out of pocket and it always took them 10 minutes to figure out how to do it without an insurance company involved.

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Joe
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« Last Edit: May 31st, 2013 at 4:43pm by Guiseppi »  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Callico
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Re: Thanks CH.COM
Reply #4 - Jun 1st, 2013 at 1:09am
 
Years ago, before Walgreens bought out my local provider I used to have two M tanks with a Y so I could run two regulators, plus I had 8 E tanks.  Because my ins didn't cover it I had to pay out of pocket, but they gave me a real good price, actually below what they charged the Ins co.  Problem is now that Walgreens doesn't carry higher than a 15 lpm regulator, and they won't allow a Y or for me to use my own reg, so I've been without for some time now.

Try to find a small independent company that will work with you.  You can probably do better than you think you can.  If you can't make that work buy a welding tank and go on your own.  Same stuff, different tank.  Works the same, and usually less expensive.

Jerry
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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)
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marsik_thestrong
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Re: Thanks CH.COM
Reply #5 - Jun 1st, 2013 at 4:25pm
 
Thanks Jerry and Joe.

I'm exploring the options of getting O2 now. 

I've been trying energy drinks and started the vitamins too. With this, I bore through with the last CH on my own without imitrex injection. It hurt a ton with all the symptoms and stuff as usual but the pain wasn't suicidal.
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Clusterman59
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Re: Thanks CH.COM
Reply #6 - Jun 1st, 2013 at 5:36pm
 
This is a thread I put together to make it easier for folks without insurance to get set up with o2. Don't get discouraged as there is alot of info there but most of it is how to set up the system with 20 feet of hose so you can walk around while using the o2 it is alot easier than it sounds but the real simple method is the "Hose Barb Method" at the bottom of my first post and all you have to do is buy or rent the welders tanks that you need (See Tank chart) and get a welders regulator, hook a hose barb to it and connect the medical tube with your mask and your in business. I would suggest reading my whole first post to educate yourself on the system. Be sure that when getting the tanks that you tell them (IF ASKED) you are a welder or learning to weld and don't tell them you are using it to breath or they won't give it to you. If you have any questions I would be happy to help you get set up if you chose to try this method. It really puts out high flow o2 as high as you'll ever need (25 lpm) and works wonderfully on kickin a CH's ass! This system has been used for years without any problems and is a safe method...
Best of luck!!...Smiley...Johnny

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« Last Edit: Jun 1st, 2013 at 6:02pm by Clusterman59 »  

Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
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repguy2020
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Re: Thanks CH.COM
Reply #7 - Jun 14th, 2013 at 1:14am
 
Welcome Jamz and good luck with your headaches. You're in the right place -- among friends.
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