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Thunderclap Headaches (Read 6018 times)
Mom of Two
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Thunderclap Headaches
May 14th, 2013 at 2:25am
 
Hello all Smiley

I don't suffer from Cluster headaches. I have primary recurring Thunderclap headaches. I haven't been able to find a support group for people with Thunderclaps, so I felt Clusters would understand this type of headache the best.  Wink

I'm recently new to all this. It all started a couple of weeks ago. After experiencing the "worst headache of my life". I thought I had an aneurysm rupture and called my PCP. I was having difficulties speaking due to the pain. The nurse told me to go straight to the ER, which I did. After a normal CAT scan and a spinal tap I was cleared to go home. Four days later I had a follow up at my PCP and it happens right in her office. I think it scared her to see it happen. The next thing I know I have a Neurologist appointment 2 days later, which I find amazing because I wasn't able to get an appointment for another 4 weeks.

My Neurologist diagnosed me with Primary Thunderclap Headaches and Exertion Headaches. I'm currently taking Propranolol, but it's not working. He also scheduled me for an MRI/MRA, coming up Wed morning, just to be on the safe side. I don't have a history of headaches or migraines, neither do any family members.

I really hate this!!! I'm afraid to drive anywhere or do anything, thinking what if I have an attack in public or worse, what if I'm behind the wheel with my children in the car. Sad All of this is terribly frustrating and confusing, not understanding why it started out of the blue.

Thank you all for listing to me. Embarrassed

Terri
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wimsey1
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Re: Thunderclap Headaches
Reply #1 - May 14th, 2013 at 8:01am
 
I'm sorry, both for your pain and for the fact that I know nothing about your condition. I do know something about pain, and the fear of a sudden onset of a terrible attack, both of which are your lot as well. What has your research turned up regarding treatments? God bless. lance
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Mom of Two
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Re: Thunderclap Headaches
Reply #2 - May 14th, 2013 at 8:43am
 
Thanks Lance. Treatments are trial and error, it's not a common issue. The Neuro said he sees maybe 5 patients a year for Thunderclaps.

How does everyone deal with the horrible pain? Pain meds are a joke, they take way too long for any relief, in essence, they don't work. 
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Bob Johnson
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Re: Thunderclap Headaches
Reply #3 - May 14th, 2013 at 9:43am
 
A search of the web site of one of the best headache docs in the country revealed little of help.
========
"Orgasmic and Exertional Headaches: The Same or Different?
Although orgasmic headaches and Exertional headaches are two separately classified disorders, they have many similar characteristics. This led a recent study to review the degree of overlap of these two relatively uncommon primary headache disorders in terms of coexistence, symptomatology, and response to treatment with indomethacin, a medicine to which both conditions are known to frequently be responsive to. For the study the records from a headache care and research center were queried for all patients with headaches associated with sexual activity, orgasmic-type. These patients were then retrospectively reviewed to see how many of their headaches also met IHS criteria for primary Exertional headaches, primary thunderclap headaches, and migraine with or without aura. The patient’s responsiveness to pretreatment with indomethacin was also reviewed. A total of 15 patients met the criteria for primary headache associated with sexual activity, orgasmic-type. Of these 15 patients, 10 also fulfilled the IHS criteria for primary exertional headaches, 4 met the criteria for primaryTHUNDERCLAP headaches, and 7 had a history compatible with migraine with our without aura. All patients diagnosed with primary headache associated with sexual activity, orgasmic-type, responded well to pretreatment with indomethacin, as did all who treated preemptively for primary exertional headaches. The study concluded that 66.7% of patients seen for primary headaches associated with sexual activity, orgasmic-type also fulfilled the IHS criteria for primary exertional headaches, and all who treated preventively with indomethacin responded well. This led the authors of the study to assert that because these two unusual headache types appear to have much in common; it is conceivable that they may actually be two slight variations of the same underlying disorder. The relationship between orgasmic-type headaches and exertional headaches warrants further research."

Ask you doc about a trial of Indocin. It's a fast acting med and no side effects of concern if dosing is moderate and/or brief.
==========
From a different source.

Curr Pain Headache Rep. 2013 May;17(5):334.
Headache attributed to cranial or cervical vascular disorders.
Kapoor S.
SourceUniversity of Kentucky, Lexington, KY, USA. sidkapoor@uky.edu

Abstract
Cranial or cervical vascular disease is commonly associated with headaches. The descriptions may range from a thunderclap onset of a subarachnoid hemorrhage to a phenotype similar to tension type headache. Occasionally, this may be the sole manifestation of a potentially serious underlying disorder like vasculitis. A high index of clinical suspicion is necessary to diagnose the disorder. Prompt recognition and treatment is usually needed for many conditions to avoid permanent sequelae that result in disability. Treatments for many conditions remain challenging and are frequently controversial due to paucity of well controlled studies. This is a review of the recent advances that have been made in the diagnosis or management of these secondary headaches.

PMID:23584563[PubMed]
====
Curr Pain Headache Rep. 2013 Jun;17(6):337.
Primary exertional headache: updates in the literature.
Halker RB, Vargas BB.
SourceDepartment of Neurology, Mayo Clinic College of Medicine, Scottsdale, AZ, 85259, USA, halker.rashmi@mayo.edu.

Abstract
Primary exertional headache (PEH) has been recognized by the International Headache Society as a primary headache diagnosis since 1994. It is an uncommon, self-limited, and short-lasting disorder that is precipitated by exertion and is frequently comorbid with migraine. PEH shares a number of features with other headache disorders, including thunderclap headache, primary cough headache, and headache associated with sexual activity. Upon its initial occurrence, PEH requires a thorough neurologic evaluation and imaging studies to help eliminate possible underlying secondary causes, including subarachnoid hemorrhage and sentinel bleed. Although PEH is incompletely understood with regard to its epidemiology and pathophysiology, it is generally considered to be a benign disorder that is self-limited and responsive to trigger avoidance and indomethacin.

PMID:23606018[PubMed]
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« Last Edit: May 14th, 2013 at 10:07am by Bob Johnson »  

Bob Johnson
 
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Risingson
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Re: Thunderclap Headaches
Reply #4 - May 14th, 2013 at 4:24pm
 
Hi. i'm sorry your going through this. i've never heard of these either, so would be wrong to say what works for ch, as it could be complete waste of time, money and may lead you to more pain. one of the most important things i have learned here is that knowledge is without a doubt power. do as much research as you possibly can. dont leave it all to your dr., no matter how caring they are. do your best to find others with the same type of headaches and see what has actually worked for them. dont give up, keep looking and working with your doctors. wish you the very best and to be pain free quickly. God bless
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wimsey1
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Re: Thunderclap Headaches
Reply #5 - May 15th, 2013 at 8:31am
 
As Bob points out Indocin is worth a shot. If it works, it will feel like a miracle. If it doesn't, it's one more thing to cross off the list. God bless. lance
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wimsey1
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Re: Thunderclap Headaches
Reply #6 - May 15th, 2013 at 8:37am
 
Mom of Two wrote on May 14th, 2013 at 8:43am:
  How does everyone deal with the horrible pain? Pain meds are a joke, they take way too long for any relief, in essence, they don't work. 


This is the million dollar question, isn't it? I believe all of us deal with the pain by searching for, and employing, an effective abortive. For many of us that is O2, and Imitrex, and for some, Migranal. Others run, walk, pound their heads, drink energy drinks real fast, use frozen peas on their temples, or sit in blazing hot showers/poke their heads into a/c units. The point is, we deal by looking for ways to abort.

Now, since aborting a CH is a hit or miss proposition, we do eventually learn its patterns and learn to anticipate the attack. Unlike thunderclap headaches, CHs are more or less brief...although a few minutes of a hit feels like an eternity.

Keep looking for ways to intervene when your beast shows up. You might even try some of the stuff we're doing. Who knows? It wasn't all that long ago the collected wisdom of the medical community taught O2 was not good for migraines. Then, presto, somehow it turns O2 can be helpful for some. There ya go! blessings. lance
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CHsRtheDeviL
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Re: Thunderclap Headaches
Reply #7 - May 24th, 2013 at 1:36am
 
I dont know about other people I think everyone might do something different.  I dont know what thunderclap HA are, never heard of them.  Like most here though I know about pain.  I dont have O2 or imitrex injections, no insurance.  So when I get an attack I have to ride it out.  Sometimes I'll take a super crazy hot shower dont know why but it usually calms me down and I can ride out the most severe part of it.  Other times if that doesn't work I'll walk from the front of my house to the back as sitting still or laying down is not optional.  Sometimes I just get down on my knees hold my head and rock back and forth like I'm praying or something.
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bex_81
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Re: Thunderclap Headaches
Reply #8 - Aug 16th, 2013 at 2:12pm
 
Hi,

I have just found your post, I have joined this site for the same reason.

I had a TCH on sunday afternoon felt like someone had hit me on the head with a hammer thought I was dying and then started vomitting and husband rang for help and was told by NHS direct (helpline number in england) to go to urgent care.  The lady there said its a migraine take these codiene tablets.  The problem was by the time I had got to urgent care the headache had gone and was just the aftermath.  I was told to continue taking codiene the next day.  So I went to work, felt really weird (high as a kite) but carried on regardless.  Tuesday I decided to stop codiene as I know there was no pain.  However the surreal feeling was still there and I felt woozy (water on brain type feeling) numb and ringing in ears.  People at work said you look awful, could not speak to my patients just couldn't concentrate and went downstairs to the urgent care centre, who again said its just a migraine.  Go home but do not drive so had two work friends bring me home.  Went to my GP who told me off for using codiene ("don't you know it makes headaches worse") then she said that it was the codiene making me the way I was.  When I stood up she said if its not better tomorrow go to a&e. 

No better went to a&e who scared me to death by saying we need to admit you as we think its a haemorrhage  Shocked.  Done the ct scan and the awful lumbar puncture and said oh its not a haemorrhage its a thunderclap headache and sent me home. 

Its the most scariest thing I have experience how do you cope having recurring ones? I have only had the one.  How often do you get them?! Sorry to go and on I am just so happy to have found someone who has them! Not happy that you suffer them (would not wish these on anyone!)

Do you get weird disturbances after like dizzy, speech/thought problems, ringing in ears that just doesn't seem to stop and tingling (numbness in one side of body) and wobbles to one side when walking?  if so how long do they go on for?  I have been off work 3 days now! Do you get these every time you have one? I have had no information from anyone - GP was crap! What helps get rid as mine come on so fast and went as fast!

Rebecca.
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« Last Edit: Aug 16th, 2013 at 2:13pm by bex_81 »  
 
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