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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Wild Ride

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Wild Ride (Read 1649 times)

lsarver3808

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South Park, PA

Wild Ride
Jun 7^th, 2013 at 6:55am

This week has been crazy to say the least. The topamax kicked in full force on Saturday. No headaches but it stole my husband's brain. He could not function. He stopped taking it but it took until yesterday for him to return to "normal". He started a prednisone taper 2 days ago. No headaches since. Hoping that perhaps the d3 has kicked in since it has been in his system the longest. Not sure what to think since there was so much going on. Topamax was a nightmare! Thankful to have my husband back!

Lori

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LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: Wild Ride Reply #1 - Jun 7^th, 2013 at 11:36am Enjoy him while you can -Gregg in Las Vegas
Back to top	Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019 IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Wild Ride Reply #2 - Jun 7^th, 2013 at 10:13pm Make the best of the break. Get some sleep, enjoy some real life stuff and be prepared for later.
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lsarver3808

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South Park, PA

Re: Wild Ride
Reply #3 - Jun 16^th, 2013 at 10:41am

Hubby is still pain free. Prednisone taper ends on Tuesday so then maybe we will know something. Am praying he stays pain free. He is feeling wonderful now and very hopeful. Still doing the d3. For those who the prednisone taper has given a break from the cluster headaches, after it is stopped, how soon do the headaches return? Again, hoping they are in remission!

Lori

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LasVegas

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old, now 50.

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north of the 60th parallel
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Re: Wild Ride
Reply #4 - Jun 16^th, 2013 at 11:30am

lsarver3808 wrote on Jun 16^th, 2013 at 10:41am:

Within hours> Sad

-Gregg in Las Vegas

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Wild Ride Reply #5 - Jun 16^th, 2013 at 1:03pm LasVegas wrote on Jun 16^th, 2013 at 11:30am: Within hours> -Gregg in Las Vegas Yeah, that's been my experience, too. In fact, they pretty much started up again for me once I hit 20mg on the way down.
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lsarver3808 CH.com Junior Offline I Love CH.com! Posts: 62 South Park, PA	Re: Wild Ride Reply #6 - Jun 16^th, 2013 at 1:30pm Well then it might be a good sign that he is feeling better and better. Taper ends Tuesday! But as always will keep a watchful eye on him!
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japanzaman

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Re: Wild Ride
Reply #7 - Jun 17^th, 2013 at 10:44am

Many people start getting their clusters when the dosage is dropped below a certain level, but if you are already almost done with the taper and the headaches still haven't come back then there is a chance the cycle was either broken or ended naturally. Wouldn't bet on it, but I have had the same thing happen to me a few times so i wouldn't be completely unheard of.

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