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Constant scalp pain (Read 4403 times)
cbo
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Constant scalp pain
Jun 25th, 2013 at 12:35am
 
Hello, I'm still new to this forum, but I can tell you that this place has been a lot more help than my family Dr. The question I have, is ever since my first episodes of headaches about 5 weeks ago, I have a really bad scalp pain on my headache side. It really hurts to to barely touch my scalp, or even comb my hair on that side, the pain is constant and has never gone away yet. Is this a common symptom? If so, does it eventually go away? If it does, will it return with my next cycle ? Also, is there any treatment? Thank you in advance for any replies.
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Hoppy
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LAUGHTER IS THE BEST MEDICINE


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Perth WA
Gender: male
Re: Constant scalp pain
Reply #1 - Jun 25th, 2013 at 1:17am
 
G'day Chris,
Are you still in a cycle and getting attacks, if so i'ts quite
normal to be tender to touch the top of your head on your
cluster side. If you are coming out of a cycle, again you
could be getting shadows, the Beast saying by for now,
again this is normal in some sufferers, and should soon
subside. It could also be a rebound headache caused
by any med's you are taking. If it persists then i suggest
you see your GP.

Hoppy.
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cbo
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Re: Constant scalp pain
Reply #2 - Jun 25th, 2013 at 1:44am
 
Yes, definitely still in cycle and getting attacks, but again this is the first cycle I've ever had in my life . I noticed the scalp pain before I had my first headache , at the onset of horners syndrome, and was just wondering if was typical and temporary. I got a haircut the other day, and was almost in tears from the barber.
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Hoppy
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LAUGHTER IS THE BEST MEDICINE


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Perth WA
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Re: Constant scalp pain
Reply #3 - Jun 25th, 2013 at 2:28am
 
Chris, i feel for you, they are shadows, it's the Beast
introducing himself and letting you know there is an attack
on it's way. Are you on the D3 Regime or oxygen,? on the
left of this page. These options wer'nt available to me
in my 43yrs of suffering. I started on the D3 Regime during
my Spring 2012 cycle, and for the first time in 43yrs no
Fall CH's. The curtains are slowly closing on me now but
after suffering most of  my adult life to CH attacks i'm certainly going to grab every moment now.

Hoppy.
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« Last Edit: Jun 25th, 2013 at 2:42am by Hoppy »  
 
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Bob Johnson
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Re: Constant scalp pain
Reply #4 - Jun 25th, 2013 at 4:05am
 
During the early months (or longer) of a new Cluster picture showing itself symptoms can vary in place, intensity, quality, etc. It may take months before a stable picture emerges.

Not a problem. Patience!

I recall that sensation during my early onset period: area around the temple was so sensitive that waving my hand over the area, moving the hair, triggered mild pain. Then it disappeared.

It can be an amusing disorder!
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Bob Johnson
 
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TeeJ2379
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Re: Constant scalp pain
Reply #5 - Jun 25th, 2013 at 6:48am
 
CBO - sounds like you and I started this around the same time.  I got what you are describing as well - so yes its normal.  Get on the d3 and a good preventive like Verapamil if you aren't already - Im at 240mg and my attacks have decreased a good bit.  Still have the scalp pain and the shadows as well, but less intense as I've been on the d3 and verapamil.
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« Last Edit: Jun 25th, 2013 at 6:49am by TeeJ2379 »  

Pain is a wonderful teacher and motivator...
 
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Traveller
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Re: Constant scalp pain
Reply #6 - Jun 25th, 2013 at 4:38pm
 
Agree - scalp pain was a sure sign for me.  Seems to be a fairly common occurrence, though I was never quite sure whether it was the CH, or the result of the Verapamil.  Either way, when I get occasional twinges now and then, I immediately tap my scalp to see if it hurts. So far, well over one year since my last cycle and the scalp is fine.  Now, if I could grow some hair out of my scalp...
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lbh
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Re: Constant scalp pain
Reply #7 - Jun 25th, 2013 at 9:54pm
 
I think I've heard that, if you have scalp tenderness, you might be a good candidate for a nerve block.  Google occipital nerve block or peripheral nerve block and cluster headache.  The reviews on the message board are mixed, but there's new research that looks promising as the techniques are refined.
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stel
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Re: Constant scalp pain
Reply #8 - Jun 30th, 2013 at 9:31pm
 
I'm so glad you posted this... it never occurred to me that the pain I was feeling in my scalp was related to being in a cluster cycle!
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