Click this link to read a post I like on the clusterheadaches.com message board...

May 15^th, 2025 at 2:12pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Hello - New to the site

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1 2

Hello - New to the site (Read 5755 times)

didgens

CH.com Junior

Offline

I Love CH.com!

Posts: 54

Re: Hello - New to the site
Reply #25 - Aug 1^st, 2013 at 2:08pm

one more bit, maybe CH sufferers Cholesterol substance (the provitamin D3) isnt working right is is in short supply.

"To make vitamin D, your skin needs adequate exposure to the sun. Your skin contains a cholesterol substance called provitamin D3 that reacts with the ultraviolet-B (or UVB) rays in sunlight to form vitamin D3. From there, the body takes over, first passing the vitamin D through the liver and then through the kidneys, converting it along the way into the form that the body needs [source: National Institutes of Health]."

IP Logged

HeadVise

CH.com Newbie

Offline

Posts: 13
Hastings Mi
Gender: male

Re: Hello - New to the site
Reply #26 - Aug 1^st, 2013 at 9:56pm

1 pill 4 times daily 3 days, 3 times daily 3 days, 2 times daily 3 days, 1 time daily 3 days if the O2 doesn't help.

As far as O2 masks how does the one DJ sells compare to a a mask I can pick up for a few bucks?

Guiseppi wrote on Aug 1^st, 2013 at 11:16am:

How did he tell you to use the prednisone? Most of us use it as a transitional med.......something to keep beasty at bay while your prevent (Verapamil) ramps up. I typically did my prednisone on a taper......2 days at 80 mg, 2 days at 70 mg, tapering down to zero. That gave me a guarantee block against beasty until my lithium....my prevent......was at a high enough level to keep beasty more in control.

I'd suggest scoring a non re breather mask as you'll see MUCH shorter abort times. The one DJ sells on this site gets high marks from those who use it:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Sounds like you have a sound battle plan...that's well over half the battle won!

Joe

IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: Hello - New to the site
Reply #27 - Aug 2^nd, 2013 at 9:17am

Sadly I don't have any personal experience with the mask as I use a demand valve set-up. Start with the inexpensive mask.....assuming it's a non re breather. For the 02 to be really effective, you need to get 100% oxygen to the lungs, at a rate to support hyper-ventilation. Re breathers allow exhaled air back into the lungs, diluting the oxygen, which increases the abort time. So if you can find an inexpensive/non re breather, give it a shot.

The prednisone taper is pretty much how I do mine. Hope the 02 proves the magic for you that it's been for me.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

Pages: 1 2

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!