Maybe I was misunderstood because I am in no way anti-DJ. I thank DJ very much for creating this board. I remember the 2 boards before this one!  I just think that (at that time) the rules applied to newbies and the like, but not to some of the others. I won't name names, so lets call this guy "Jonny the jackbutt" the pirate flag waver. He did nothing but be-little me over and over and over and say BS that was not true. I was forced to quit working back then because of relentless chronic clusters and with a family to support, I had no choice but to apply for disability (GSK required me to at least apply for disability). It was the only way I would be able to get the Imitrex I was requiring at the time. Well, this Jonny the Jackbutt did not like that at all and he went off over it! I think it's great if he was able to continue to work, drink beer everyday, all while having clusters. ?./././ ok?! He sure was nice to me face-to-face at NASHCON 04' though. (He didn't become an arse until after NASHCON) Probably because I towered over him. He's a lot bigger & much tougher behind a keyboard. He coerced his 'friends' into joining his anti-UNsolved terror campaign to rid the board of me, despite the knowledge I have about clusters, doctors, clinics, medications, and treatments. Nothing else mattered to them then because I was on disability. I guess that made me seem to weak to be a member of the board or maybe too weak to have clusters at all, IDK.Apparently disability was a BIG NO-NO back then. I'm not sure how the board collectively stands on the disability issue now. There's still at least 1 member here that I've only seen chime in on a few posts and it has been nothing but negativity out him so far too (but not towards me), but I haven't said anything to him. If the moderators on this board do not see him do it, or choose to turn a blind eye, there's nothing I can do. Personally I think he's going to chase away some people that really do need help and possibly would've found that help right here ... if they had a chance to stay.
And yes, I was there when "Chuck's Attack" was filmed in Vanderbuilt-Tennessee by Justin D. Ott. I'm also in that "Clusterheads" documentary Justin did. I was interviewed across from the hotel in that park. It was about a 10 minute interview all together. (Not sure what he edited). That was the first time I had ever met another clusterhead and I believe there were approximately 80 clusterheads there. It was an experience to actually KNOW for the first time that I'm NOT suffering alone and that there really were others with this horrific beast that did understand for a change ! People I believed really knew how I felt at times ! It was an eye-opening experience to say the least.

I4B

I4B,
Many people shared your views about him, but I liked Jonny. 

-Gregg in Las Vegas

I appreciate and support Vickie for her comments in posts 23 & 27.

It doesn't foster the purposes of this site to walk around in the "cow pies".

"Take your life in our own hands, and what happens?
A terrible thing: no one to blame."

                             -Erica Jong

I think its great to know what works for you when nothing else did. Someone is giong to need that information, your probably not the only person that has or will go that route to get the relief they need. Its a valid medication for a horriffic condition ! and I thank you for the information.

I'm surprised this thread was not closed, a lot of the responses after the OP's really don't want me to stick around as someone new... I've always appreciated the privacy I had with my medical history, never thought I'd share some of it on the internet and I'm sure I'll never share all of it. I don't know what this young man has been through... I don't see why people have to attack him but for there own enjoyment. Its disgusting on a website that suppose to help. I'm not sure the dark days are behind here, you're just convinced your in the light. I don't see many people taking the high road... everybody here has been shit on in life in some way with CH, why shit on each other.

All CHers have bad days, but when you have a good day, it might be best to make amends.

My mother would, too often, make some snotty, cutting, our just plain stupid comment to someone. If she was called on the crack, the stock replly was, "I was just being honest!"

The response was her "perfect" protection against  being aware of the quality, appropriateness, or harm of her comment.

She could never grasp that her self-deception was a greater sin than the other person's "bad" behavior.

The OP is pretty much dead dick right on.  Remain in denial, but people don't participate, and don't revisit because of the 6th grade "click" mentality that the board often portrays.   Now watch.......10 of you will Cut in Paste me n tell me how silly I am .....

Now watch.......10 of you will Cut in Paste me n tell me how silly I am .....

Me no comprendy.

This is so sad that after visiting this site for over 7 years and suffering CH since 03 I will not be returning. You all blow me away. This guy Zacsz is in as much pain as the rest of us, says he has tried everything and you condemn him for using opiates/narcotics!  Big damn deal! If it works for him that is his business and his road to hoe. Plenty of people have heart attacks and strokes from overusing triptans and give me a freaking break regarding the damn mushrooms, that just isn't for everyone. No wonder he feels angry, withdrawn and hurt.  This is in no way a support site! 

Hi All,
I thought this thread was dead and buried.

Hoppy.

I keep hoping this thread will die. I've thought about hiding it and may yet. This board accomplishes so much good every day. So many hundreds of people are given a second chance at life because of this board. But, like the media, we tend to obsess on the occasional problem, and ignore the hundreds of successes.

My suggestion:

Do NOT respond to this post for any reason.

If you are tempted to respond to this post, instead, find another post where someone needs help...and help them.

That's the true purpose of this board.

Joe