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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Some of you guys may remember me...

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Some of you guys may remember me... (Read 1301 times)

Jim R

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Always question authority....

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Laconia, NH
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Some of you guys may remember me...
Aug 8^th, 2013 at 3:25pm

...from several years ago. I haven't been on since then because I lost my login and password in a laptop debacle. I am an episodic. I have been PF for three years and thought I was done (58 now and my neurologist told me as my arteries hardened I could expect relief - well, that's good and bad, because they have come back...)

I am unemployed, have no health insurance, have 3 nasal snorts of imitrex left, no O2 and no way of getting any. I am thinking this might be from the decreasing light and maybe my arteries NOT hardening. But whatever, I am dreading this. For the last 3 nights, I have not wanted to go into REM sleep because I am scared. So, I haven't slept. And I am very irritable and have one coming on now. I need the support. Welcome back, clusterbud!... Cry

"Hammer of the Gods..." (pounding on my head...) Proud member of OUCH&&Episodic Clusterhead since 1978

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Guiseppi

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San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
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Re: Some of you guys may remember me...
Reply #1 - Aug 8^th, 2013 at 3:55pm

Good to see ya Jim, sorry beasty is back. Great news for ya, I'm 3.5 years pain free on the neswest big thing since oxygen:

Follow this link to the medications section of this board and read the post

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It’s a vitamin/mineral/fish oil supplement, all over the counter stuff. It’s up to an 81% success rate of those who try it and respond to the survey so you’re just shooting yourself in the foot if you don’t give it a shot. Best of all, it’s healthy for you even without CH!

As of January 20, 2013, the compiled raw data indicates an efficacy of 80%. 240 out of the 300 CH'ers who have started this regimen and stayed on it for a month or more have experienced a significant reduction in the frequency and severity of their CH... 78% of the 300 CH'ers experienced a pain free response and 60% of the 300 have remained essentially pain free. Episodic and chronic CH'ers respond to this regimen at roughly the same rate.

Preliminary survey results indicate most of these CH'ers were pain free before the end of the third week with some responding in a little as 12 to 24 hours. The average time to respond is five days

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Some of you guys may remember me... Reply #2 - Aug 8^th, 2013 at 4:10pm I can attest to this treatment as well. It has kept me pain-free for over a year now.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

wimsey1

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I Love CH.com!

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MA
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Re: Some of you guys may remember me...
Reply #3 - Aug 9^th, 2013 at 7:55am

Welcome back, Jim, and condolences on needing to be here. We certainly understand the fear and the pain. And so far you have related what you "can't" do. Now we need to hear what you are doing to take control of this instead of letting the beast lead you around on a leash. The D3 regimen is a good thing. So is welder's O2. Energy drinks do help. I take a double Monster slammed down when a hit is coming. And some pharmaceutical companies will assist with med refills if you are unable to afford them. There's more but you know the drill: attack the pain as best you can. God bless. lance

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Some of you guys may remember me... Reply #4 - Aug 9^th, 2013 at 11:53am Jim, Like Lance said, go the welders oxygen route. You won't need a doctors script and I have found that a very large tank of welders to be cheaper than a large tank of medical 02. The last time I had mine filled it cost 26.00 and lasted me through MANY headaches. Linda
Back to top	Hurt people.....hurt people. Think about it. IP Logged

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