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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New cluster headed guy!

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New cluster headed guy! (Read 1371 times)

KegKe

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New cluster headed guy!
Sep 4^th, 2013 at 4:55pm

Hey

I'm Kevin From Belgium Cool

. i'm 29 years old. First of all i would like to say sorry for my language! I can speak it pretty well but writing is something different.

Anyway, why i'm here... I'm having clusters since 4 years. It started in Indonesia on summer holiday (that suckt). Whent trough several tests and nothing was found. I've gotten some heavy migraine medication but it wasn't working. Since then I tried to drink a red bull when cluster was kickin' inn. It worked for a long time but it was disturbing me from sleep. When sleep was finaly found "the beast" woke me up.

Damn i'm glad i found this place on the net. So i'm starting to read this forum and hope i can find some good solutions for this! I can use it!

I'm a teacher, if this would happen during a lesson! It would be the whorse nightmare ever! Glad i never had one @ work!

Thanks for creating this Forum!!

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Bob Johnson

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Re: New cluster headed guy!
Reply #1 - Sep 4^th, 2013 at 5:07pm

This is not a disorder which you can safely diagnose or treat. There are many disorders which mimic Cluster headache but which are not headache disordes. Some of them are quite serious. self-diagnosis and treatment is simply not wise.

I'd encourage you to start searching you health care system for a headache specialist or, if this doesn't give any results, ask the social service/workers in you local hospital for information. They may know either of a specialist or know about physicians who have experience and skill in treating headache disorders.

In many ways, your health care system is better than ours in the U.S. and I would be surpised if you can't find a good specialist.

Bob Johnson

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KegKe

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Re: New cluster headed guy!
Reply #2 - Sep 4^th, 2013 at 5:34pm

My docter has "diagnosed" cluster headaches. After several researches. But indeed what you say is true! Our system is so much more easy than yours. I really do understand.

The only thing my docter couldn't help me with was finding the right specialist. I've done all the test even Cancer and all those things that went trough my mind. But nothing came out. That is the reason why i'm here after 4 years. I don't believe in docter google...

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LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: New cluster headed guy! Reply #3 - Sep 4^th, 2013 at 5:55pm Kevin, You might consider checking into these 3 specialists in Belgium who other CH'ers have recommended... Belgium Luc Herroelen Leuven, Vl-Brabant Paul LOUIS Antwerp Michelle Cordonnier Marchin (Ereffe) Lg Good luck -Gregg in Las Vegas
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KegKe CH.com Newbie Offline I Love CH.com! Posts: 5	Re: New cluster headed guy! Reply #4 - Sep 5^th, 2013 at 6:10am Ok i'll do that! Thanks Gregg!
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wimsey1

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Re: New cluster headed guy!
Reply #5 - Sep 5^th, 2013 at 8:19am

Hello Kevin, and welcome! While you are searching for a specialist, it does sound like your current doctor is sympathetic. Have you looked into oxygen? Or Imitrex? They can both be very effective in aborting a cluster. You must use oxygen as we describe at left, and Imitrex needs to be used carefully. Good luck and God bless. lance

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KegKe CH.com Newbie Offline I Love CH.com! Posts: 5	Re: New cluster headed guy! Reply #6 - Sep 9^th, 2013 at 5:50pm Ok! So I went to see my docter again! First we'll do some scans a E.G. Scan and a C.T. scan... I'm going there wednsday! Hope It doen't bring bad news! After this we'll go through the oxygen story! I'll keep you peoples updated! Kind greetings Kevin
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KegKe CH.com Newbie Offline I Love CH.com! Posts: 5	Re: New cluster headed guy! Reply #7 - Sep 9^th, 2013 at 5:56pm hey sorry guys for the !!! haha something went wrong here! I'm not yelling at you!
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