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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New to here not to CH

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New to here not to CH (Read 341 times)

kateb

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New to here not to CH
Sep 5^th, 2013 at 5:33pm

Hi I have had cluster headaches for 20 years and have tried just about everything under the sun to make them take a leave of absence!! Right now I am on 360mg of Verapamil everyday even when I'm not in a cycle. When I'm in a cycle which seems to be about every 3 to 4 months I do 15 liters of O2 for about 10 minutes. Works like a dream most of the time. I also use vicodin for the few I get when I'm awake. I tried Botox it lessened the intensity of the headache for a while but doesn't seem to be doing anything now. Its nice to know that there are others that have them especially women. I have met a couple of men that have them but never another woman.

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maz

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Hampshire, England
Gender: female

Re: New to here not to CH
Reply #1 - Sep 5^th, 2013 at 9:01pm

Hi kateb

Welcome to the CH family.

I'm a woman too. 63 years old - CH for 6 years but undiagnosed for the first 5.
My neuro said at first that it wasn't CH because only men get them.

I don't take a preventative as it seemed silly to fill my body with drugs every day for life, when sumatriptan auto injections work so well for me as an abortive. I do however take the vitamin D3 regime that you will find all over this site. It seems to be effective for 80% of those that try it. Been on it just over a month now, and so far so good. You will find many other suggestions here from the nicest people on earth.

Keep coming back - you will find it helps just to know there are others who share your pain (women too) and always some one to listen.

Take care
Maz.

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