Love these first posts.  Stick around and read read read.  Gettin educated is a first priority.

          Potter

 

Hi

I think you are spot on. The cause of CH is properly do to an imbalance in our microbiome. Acetium is perhaps a solution, but a combination of a good probiotic and prebiotic are effective too.

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How to make yourself look credible
1. Claim that vinegar acid cures or helps cluster headaches.
2. Claim that cluster is caused by an inbalence in microbes.
3. Link to two studies that do not have anything to do with cluster headaches.
4.??????
5. Profit

Isto wrote,

I have been happily without cluster headache attacks for 2 years now.

I believe that this is because of acetaldehyde blocker called ACETIUM (contains L-cysteine amino acid which react in stomach with acetaldehyde).

I read lots of articles and web-discussions about trickers for cluster headache.  To my surprise quite a many of those were somehow related to acetaldehyde (alcohol, yogurt ext).

At the same time the product called acetium was invented and appeared to market (I think it is originally targeted preventing stomach cancer).

So I started using this...and my spring and autumn cluster attacks never appeared again...

I have also noted that things before triggering my cluster don't have any effect (alcohol, stress, little sleep ext.).

Any experience?? Comments??

It's all in your head "HYPOTHALAMUS" not in your stomach
that cause  .

Hoppy.

Hi nhs,
Your links have nothing to do with   


Hoppy.

What potter said.

I no longer discount anything nhs has to say. I ridiculed him when he recommended vitamin D, and now I realize I was wrong, having become one of the more vocal vitamin D3 converts.

I for one thought our posts were quite constructive, to
enable debate.

Hoppy.

Isto wrote on Oct 14^th, 2013 at 12:34pm:


   Well sir I see you poppin in and out daily.  Have you read any of the self help links on the board?

           Potter

Hello,

Thanks for your comments (most of them quite funny .
 
I am somewhat surprised, because none/or very few have had any interest why I ended up to testing acetium/acetaldehyde blocker (normally >50% of people should be in this category).

And yes, I have tested during last 10-15 years close to everything (except mushrooms and LSC). 

Those who might be interested more please read below. Others please don’t, because the text might irritate you (there is no links to the references and text is not that scientific)

Brg. Isto

Substance that are sometimes mentioned as triggers for cluster headache;
Alcohol
-      One of the best known “starter” of Horton headache. A product of alcohol metabolism is acetaldehyde is created when the alcohol in the liver is broken down by an enzyme called alcohol dehydrogenase.  Microbes in mouth produce more acetaldehyde from strong liquour than mild drinks.  Better to avoid drinks that have high acetaldehyde content (because of production methods) like sherry, strong fruid liquid, calvados ext.
Nitrates, nitric oxide producing substances
-      This is not clear to me (is there connection to acetaldehyde?), though I have found an article “Mechanism for the inhibition of aldehyde dehydrogenase by nitric oxide” (which could mean that there is after all a link between acetaldehyde and nitrates).
Food that may contain acetaldehyde
-      Products may come to contain acetaldehyde during the production process (e.g. fermentation) or acetaldehyde can be added to a product to improve its taste and smell. Food products containing acetaldehyde: yogurt, fruit juice, pureed fruit (even baby food), preserved vegetables, soy sauce, vinegar products.
Aged and Cultured Dairy Products
-      Cultured dairy products include buttermilk, sour cream and aged cheeses such as  blue cheese, Brie, Cheddar, Swiss, Gouda, mozzarella, Roquefort, Stilton,  Parmesan, provolone and Romano. If you suffer from frequent headaches, avoid or  limit these foods. If you enjoy dairy products, choose those that are less  likely to cause symptoms. Such foods include homogenized 2 percent or skim  milk, American cheese, cottage cheese, ricotta cheese and cream cheese. A  modest serving of yogurt, approximately one-half cup, is also acceptable
Smoking
-      Smoking is one of the most common and strongest cluster headache triggers. Tobacco smoke contains acetaldehyde
Ripe fruit
-      Contains some amounts of acetaldehyde
Sugar
-      Candida (yeast infections) is often related to cluster headache and sugar is typically related to candica. Candica produce as side product acetaldehyde
Strong-smelling substances, such as solvents, perfumes, petrol, etc
-      Some this type of volatiles may contain acetaldehyde. It has been reported that persons that are very sensitive to acetaldehyde will feel sick and are very sensitive for smells of solvents ext. (like person in hangover is sensitive for strong smells)

Substance that are often used for self-treatment;
Magnesium
-      Magnesium helps break down acetaldehyde in body (magnesium may be used to help enzyme (aldehyde dehydrogenases) function).  Magnesium supplements have been shown to be of some benefit in about 40% of patients who have low serum levels of magnesium.
Curcumin
-      Polyphenol which has evidence of reducing acetaldehyde concentration of the blood.  Curcumin has been mentioned as one possible herbal treatment for cluster headache.
Oxygen
-      This is a mystery to me (=did not find relevant articles about this)
-      There is articles about atomic oxygen reacting with acetaldehyde where the reaction results are acetic acid, CO, CO2 and formaldehyde (but there should not be atomic oxygen in the body)
Water
-      Drinking excess of water is mentioned helping (during attack)
-      Not clear if this is related to acetaldehyde (personally I think it might be similar case as preventing hangover with drinking water)

Other issues of interest;
Oral hygiene
-      By lowing the microbial levels in the mouth also reduce alcohol based acetaldehyde formation.  Better to get periodaltal disease treated.
Disulfiram (= Antabus)
-      Not mentioned as a trigger, but of interest me anyway. Inhibits acetaldehyde dehydrogenase, the enzyme responsible for the metabolism of acetaldehyde.  It would be great if someone of us (= Horton effected people) would dear to make an experiment (might be extremely painful, but might give one indication of the reason for cluster headache!!!).

Isto wrote on Oct 17^th, 2013 at 9:47am:

  You must have googled every thing in your post.  Except Oxygen for CH.  I googled for you,
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  The evidence is overwhelming.

             Potter

Having only been on this board for a few months, maybe i am still too new to say how things are.  But here goes.  I think that when veterans and old timers on this site see a new poster posting advice that is out of the norm, it makes them weary.  In the few months I've been on this site I do notice a lot of new folks hopping on and posting advice with their first post, without having read anything on the board or even introduced themselves yet.  I think its natural to be skeptical of new ideas when it comes from a stranger.  Like I said, I'm still a newbie myself.  When I came here I knew nothing of Clusters, but I have learned much since then. I guess my point is for new folks - get to know us and let us get to know you before you post your CH cure that can seem like its from left field...