Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
ThaNk YoU!!!!!! (Read 2135 times)
Tiffany.S
CH.com Junior
**
Offline


I Love CH.com!


Posts: 47
La Paz, Bolivia
Gender: female
ThaNk YoU!!!!!!
Oct 22nd, 2013 at 5:42pm
 
I wanted to thank everyone on this site as you all have been of soooooooooooooooo much help and support. Still in cycle..8th week in, do not know when it will end, but fighting it off with 02 and sumax...luckily on Sunday, I get my first Imitrex kit...and Zomig inhalable spray form the united states...so that does comfort me for worse case scenarios.

You guys are amazing Smiley

Greetings
Back to top
  

"When the power of love overcomes the love of power, the world will know peace"
https://www.facebook.com/tiffany.schmidts  
IP Logged
 
Guiseppi
CH.com Moderator
CH.com Alumnus
*****
Offline


San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: ThaNk YoU!!!!!!
Reply #1 - Oct 22nd, 2013 at 6:58pm
 
Good on YOU for taking the active role in fixing yourself! Wink Hoping you saddle the beast soon.

Joe
Back to top
  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
IP Logged
 
maz
CH.com Hall of Famer
*****
Offline


I Love CH.com!


Posts: 1071
Hampshire, England
Gender: female
Re: ThaNk YoU!!!!!!
Reply #2 - Oct 22nd, 2013 at 7:20pm
 
Hi,
Hope you get good relief from your new meds. Let us know how you get along.
Good luck
Maz.
Back to top
  
 
IP Logged
 
Mike NZ
CH.com Hall of Famer
*****
Offline


Oxygen rocks! D3 too!


Posts: 3785
Auckland, New Zealand
Gender: male
Re: ThaNk YoU!!!!!!
Reply #3 - Oct 23rd, 2013 at 2:55am
 
Well done on being so proactive for yourself. I hope that they work well for you.
Back to top
  
 
IP Logged
 
Bob P
CH.com Hall of Famer
*****
Offline


Shut up Bob!


Posts: 4573
Clio,California
Gender: male
Re: ThaNk YoU!!!!!!
Reply #4 - Oct 23rd, 2013 at 8:24am
 
Be very careful mixing the triptans.  It's a big no no!
Back to top
  

Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.  "SHUT UP HUB!"
WWW  
IP Logged
 
Tiffany.S
CH.com Junior
**
Offline


I Love CH.com!


Posts: 47
La Paz, Bolivia
Gender: female
Re: ThaNk YoU!!!!!!
Reply #5 - Oct 23rd, 2013 at 3:07pm
 
Yes, read a loooooooooooooooooot about triptans and not going to mix them, since a Neurologist here gave me 2 diferent triptans (sumatriptan and rizatriptan) and combined with amitriptiline I started having really bad tachicardia, so dug into the net and found that there are some medicines that can not me mixed. Went to a cardiologist just get a check up, and everything is ok. Sometimes these Neurologists make me angry! But anyway...I guess internet is better than all the specialists I have seen in my country.

Ordered everything I need for the Vit d3 regime, ordered some melatonin...will only have the Zomig and the Imitrex for worse case scenarios.  Going to use the 02 , ice and only sumax for now, as it does help getting all of that in 2 weeks, so meanwhile I will not the beast win or  get me down. Smiley
Back to top
  

"When the power of love overcomes the love of power, the world will know peace"
https://www.facebook.com/tiffany.schmidts  
IP Logged
 
Hoppy
CH.com Alumnus
***
Offline


LAUGHTER IS THE BEST MEDICINE


Posts: 1890
Perth WA
Gender: male
Re: ThaNk YoU!!!!!!
Reply #6 - Oct 23rd, 2013 at 3:52pm
 
Hi Tiffany,
Glad to read you are getting all the vitamins so that you can
start taking the vitamin D3 Regime. Just don't expect to
have instant relief. It can take up to 3mths to kick in as it
did for me, but now touch wood i'm cluster free.  Smiley

Good Luck, Hoppy.
Back to top
  
 
IP Logged
 
Tiffany.S
CH.com Junior
**
Offline


I Love CH.com!


Posts: 47
La Paz, Bolivia
Gender: female
Re: ThaNk YoU!!!!!!
Reply #7 - Oct 23rd, 2013 at 4:35pm
 
Thank you Hoppy Smiley I know it takes some time to kick in, but knoooow that it will work.

Bad thing is that there is no such test of the 25 oh d here :/ so do not know how I will be monitoring my levels
Back to top
  

"When the power of love overcomes the love of power, the world will know peace"
https://www.facebook.com/tiffany.schmidts  
IP Logged
 
maz
CH.com Hall of Famer
*****
Offline


I Love CH.com!


Posts: 1071
Hampshire, England
Gender: female
Re: ThaNk YoU!!!!!!
Reply #8 - Oct 23rd, 2013 at 5:07pm
 
You can buy the test on line and do it yourself. You send it off and they send you the results. I know it's available in USA and England so may be worth looking in your area. Sorry I can't post a link but if you google 25(OH)D some thing may come up. Here in England it costs about £25-30.
Back to top
  
 
IP Logged
 
Tiffany.S
CH.com Junior
**
Offline


I Love CH.com!


Posts: 47
La Paz, Bolivia
Gender: female
Re: ThaNk YoU!!!!!!
Reply #9 - Oct 23rd, 2013 at 8:33pm
 
Thank you Maz! will try and get the test Smiley

Back to top
  

"When the power of love overcomes the love of power, the world will know peace"
https://www.facebook.com/tiffany.schmidts  
IP Logged
 
Hoppy
CH.com Alumnus
***
Offline


LAUGHTER IS THE BEST MEDICINE


Posts: 1890
Perth WA
Gender: male
Re: ThaNk YoU!!!!!!
Reply #10 - Oct 23rd, 2013 at 8:54pm
 
Hi Tiffany,
I'ts best to do the test after being on the regime for 1mth
to see where your vitamin D level sits. It needs to be around
80 ng/ml serum concentration to get the best result.

Hoppy.
Back to top
  
 
IP Logged
 
Tiffany.S
CH.com Junior
**
Offline


I Love CH.com!


Posts: 47
La Paz, Bolivia
Gender: female
Re: ThaNk YoU!!!!!!
Reply #11 - Oct 24th, 2013 at 12:04am
 
Hoppy I have a question for you, talking about the whole vitamin D3 regime...I was thinking about something. I do realize that when I am doing a lot of outdoor activities ( I am a photographer so I am out and about...) When I am in cycle and am out, and have a lot of sun I notice that my attacks at night are not aaaaaaaaaaaaaaaaaaas bad. I wonder if that has anything to do with how Sunshine helps the body sinthesize vitamin D? hrmmmmm...it is odd though, but I have noticed that. If I am out on a shoot, or out on a walk in the sun, my night hits might be a kip 6 compared to kip 9. Lately since I don't get out much, could it be that the lack of sunshine might potence my attacks? I also work at a pharmaceutical company and when I am locked inside with no sun , (in cycle) I do realize that they are worse. Just thought about all of this....
Now the odd thing is that, heat...at night, does trigger an attack. My CH are only at night times, have almost never had them being awake. And all I know is that my temperature rises a looooooooooooooooooot and can't stand heat.
Back to top
  

"When the power of love overcomes the love of power, the world will know peace"
https://www.facebook.com/tiffany.schmidts  
IP Logged
 
maz
CH.com Hall of Famer
*****
Offline


I Love CH.com!


Posts: 1071
Hampshire, England
Gender: female
Re: ThaNk YoU!!!!!!
Reply #12 - Oct 24th, 2013 at 3:42am
 
Heat is a known trigger for some people. Especially if you are active, ie. excersise in the heat for example. Your theory about lack of sunshine making it worse sounds feasible to me. Just keep taking the vitamins then it won't matter.
Maz.
Back to top
  
 
IP Logged
 
Hoppy
CH.com Alumnus
***
Offline


LAUGHTER IS THE BEST MEDICINE


Posts: 1890
Perth WA
Gender: male
Re: ThaNk YoU!!!!!!
Reply #13 - Oct 24th, 2013 at 7:19am
 
Hi Tiffany,
I've posted a thread heat and sun a trigger. I thought this
might help answer some of your  Questioning.

Hoppy.
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!