Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Pages: 1 2 
Send Topic Print
My D3 experience so far (12 days in) (Read 8308 times)
Jair Crawford
CH.com Junior
**
Offline


I Love CH.com!


Posts: 43
Gender: male
Re: My D3 experience so far (12 days in)
Reply #25 - Nov 11th, 2013 at 12:59pm
 
Sounds like you've been tuning your regimen pretty well. Lets hope these past few days are the results! That'd be awesome!
Back to top
  

I don't have CH. I don't know anyone in person who has CH. But I want to help. Let me know how I can spread awareness.
https://www.facebook.com/jair.crawford?ref=tn_tnmn  
IP Logged
 
Batch
CH.com Alumnus
***
Offline


Control The Beast With
O2 & D3 You Must


Posts: 3708
Bremerton, WA
Gender: male
Re: My D3 experience so far (12 days in)
Reply #26 - Nov 11th, 2013 at 7:02pm
 
Hey Hell-Jee,

Good point on the vitamin K2...  If you'll notice, with the exception of vitamin D3 and Omega-3 Fish Oil, the rest of the vitamins, minerals and supplements in the anti-inflammatory regimen are at or below the RDA.

Regarding suggested doses for vitamin K2 (MK-4 & MK-7), I went with a minimum although it was still higher than that suggested by the IOM in the RDA... 

However, at this point, there are enough studies around that suggest higher daily doses of MK-4 and MK-7 for optimum results.  On top of that, the folks at Life Extension Foundation (LEF) have done a lot of legwork reviewing studies on the optimum doses of vitamin K1, K2 (MK-4) and K2 (MK-7).

Rather than reinvent the wheel, I've updated (increased) the Anti-Inflammatory Regimen dose of vitamin K2 (MK-4 and MK-7) in line with LEF's to the following:

MK-4 1000 mcg/day,  MK-7 200 mcg/day

It only takes a small amount of Vitamin K1 to ensure proper blood clotting.  Rather than suggest a dose for vitamin K1 and run into the situation where a CH'er may be on a blood thinner like warfarin (coumadin) for what ever reason... I've left it out of the anti-inflammatory regimen and up to the CH'er and his or her physician.   

For more on LEF's take on vitamin K1 and K2, see the following link:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Take care,

V/R, Batch
Back to top
  

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
pete_batcheller  
IP Logged
 
theAnthonyCarter
CH.com Junior
**
Offline


Got Imitrex?


Posts: 65
Victoria, Virginia
Gender: male
Re: My D3 experience so far (12 days in)
Reply #27 - Nov 14th, 2013 at 10:50am
 
I'd post more of an update, but I'm still waiting on the 25(OH)D test that SHOULD be here today. Then, I still have to wait on the results following my mailing it in.

Other than that, I had a 3-day PF stretch starting last Friday, a relatively mild attack Monday of this week, and then a pretty good beater that woke me up around 2:58 am this morning. Like a dummy, I tried to tough it out at first, thinking it would be relatively mild like the Monday attack, but it ramped up pretty nicely, leaving the shot that I eventually took struggling to knock out the beast. I'm dealing with a little bit of "after-burn" today.

I will say that, I had started to return the Calcium to my regimen for the past few days just prior to this most recent attack. I'm wondering if when I stopped the Calcium part of the regimen last week, that is what led to the PF time, and now the re-addition of the Calcium has allowed the beast to break through. I'm thinking about reducing the Calcium in my regimen to every other day for a bit to see what happens. It's either that, or try adding the D3 weekly loading dose back in.

I can't complain too much though, because those PF stretches were MUCH needed. I just hope I get more of them, or better yet, a permanent PF stretch!

Hope everyone out there is doing well and enjoying PF days/nights as well!
Back to top
  

One clusterhead's cure is another clusterhead's trigger.
http://facebook.com/theAnthonyCarter  
IP Logged
 
theAnthonyCarter
CH.com Junior
**
Offline


Got Imitrex?


Posts: 65
Victoria, Virginia
Gender: male
Re: My D3 experience so far (12 days in)
Reply #28 - Dec 2nd, 2013 at 12:48pm
 
Status update:

Finally received my 25(OH)D test results. As of the 14th of this Nov. when I took the test, I was apparently at 88 ng/ml. I wasn't completely pain-free at the time that I took the test, so I continued to take the D3 at an accelerated rate 23k UI daily. Obviously, I should be higher than that now given it has been another two weeks roughly.

Unfortunately, I'm still not completely pain-free at this point. My hits have been reduced from the daily 1-2 (sometimes 3) attacks to more in the range of 4-5 total a week, give or take, and randomly timed. The intensity seems to be somewhat lower for each attack overall as well. Thanks to that much, I have been able to avoid taking Trex doses for a fair number of attacks which has helped save a fair chunk of change already. Of course, that does mean I'm still choosing to ride out some very uncomfortable sessions.

I'll likely need to go ahead and adjust my daily dosing of D3 down so that I don't continue to climb too high in serum levels. I have yet to calculate an estimate as to what my D3 level is likely at currently as the test was a couple of weeks ago. So, once I do that, I'll figure out what to change the dosing schedule to. I just hope any reduction in dosage doesn't bring back more frequent and intense attacks.

I still have to admit, I was optimistically hoping for a better result in kicking this beast's a** with this D3 regimen, but that isn't quite the case yet. I may be one of those that has to push the 100+ ng/ml to find full remission. We'll see, I guess.

Either way, I'm looking forward to putting the shots, alcohol swabs away, taking a nap, sleeping in, staying up late, and grabbing a frosty beverage out of the fridge once in a long while! End of cycle, D3 or not, come on already.  Cheesy
Back to top
  

One clusterhead's cure is another clusterhead's trigger.
http://facebook.com/theAnthonyCarter  
IP Logged
 
Imitrex4Breakfast
CH.com Veteran
***
Offline




Posts: 200
Kentuckiana
Gender: male
Re: My D3 experience so far (12 days in)
Reply #29 - Dec 2nd, 2013 at 7:29pm
 
Always stockpile, just in case. Good Luck with the D3. I'll be watching and hoping for some success.

I4B
Back to top
  
 
IP Logged
 
theAnthonyCarter
CH.com Junior
**
Offline


Got Imitrex?


Posts: 65
Victoria, Virginia
Gender: male
Re: My D3 experience so far (12 days in)
Reply #30 - Dec 2nd, 2013 at 10:42pm
 
Yeah, I'll still be stockpiling some shots, man, especially after this go round. But, first, I'll have to dig out of the financial ruin this cycle has pretty much left me in.  Angry

Looking through my HA journal, I noticed of the last attacks I've had since Nov. 7th in this cycle so far, the highest kip was 7, and only 2 of the 19 in that time actually reached that level. It's a clear difference from the abundantly 7, 8, and 9s I was getting daily for weeks just prior to that reduction. The attack I had earlier this evening, for example, reached about a 4 at best, and lasted only about 47 minutes (unaborted) versus the more typical 7-9 kip for nearly 2-3 hours (unaborted) that I would normally experience.

Given this reduction in intensity began roughly after a month of starting the D3 regimen, it could be attributed to that, especially since my attacks in previous cycles didn't seem to fluctuate in intensity much at all. It's still hard to say, really. But, I'll keep posting as this thing goes on.

Hope you're finding some luck and relief with all you were talking about with the DHE and Imitrex and needing to find another option. It's bad enough dealing with this s**t when you have a somewhat reliable (albeit expensive) abortive to lean on, but to not have that "luxury" is scary.
Back to top
  

One clusterhead's cure is another clusterhead's trigger.
http://facebook.com/theAnthonyCarter  
IP Logged
 
Batch
CH.com Alumnus
***
Offline


Control The Beast With
O2 & D3 You Must


Posts: 3708
Bremerton, WA
Gender: male
Re: My D3 experience so far (12 days in)
Reply #31 - Dec 3rd, 2013 at 5:04pm
 
Hey Anthony,

Thanks for the detailed update. 

Given your 25(OH)D is clearly in the "Green Zone" at 88 ng/mL in mid November and you've experienced a favorable change in CH patterns but you're still not pain free... it's time to drop back to a vitamin D3 maintenance dose of 10,000 IU/day... 

Taking more vitamin D3 isn't the answer... unless you're presently experiencing cold, flu or allergy symptoms...  If that's the case, stay at 20,000 IU/day until the symptoms clear then drop back to 10,000 IU/day. 

You also need to start "Tuning" the anti-inflammatory regimen...

Start by cutting your calcium intake for a week or two. Add it back slowly, i.e., half the regular dose for a week.  Increase your magnesium to 400 IU/day...  If you're already taking that much, bump the magnesium dose to 500 mg/day.

Make sure you're taking a multivitamin/mineral tablet like Centrum Silver to get the vitamin A (retinol) and vitamin K2.

Pick up a bag of almonds and eat a couple handfuls a day...

Finally, a low systemic/arterial pH (too much acid) could be the culprit that's preventing a more pronounced favorable response to the anti-inflammatory regimen.

The GOMBS diet, Greens, Onions, Mushrooms, Beans-Berries, and Seeds (Nuts too)...  A handful of each when you eat can work wonders elevating arterial pH.

Take care and please keep us posted.

V/R, Batch

Back to top
  

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
pete_batcheller  
IP Logged
 
theAnthonyCarter
CH.com Junior
**
Offline


Got Imitrex?


Posts: 65
Victoria, Virginia
Gender: male
Re: My D3 experience so far (12 days in)
Reply #32 - Jan 7th, 2014 at 9:28am
 
Just an update...

Been PF for weeks now, no shadows or anything. Of course, the tricky part for me is determining whether or not the D3 regimen is directly responsible, partly responsible, or if it just was the end of my average 2-month or so cycle. Those with chronic CH would be much better able to verify with any real degree of certainty that D3 was having a real effect than I could with my episodic clusters.

That being said, I still would have to recommend to anyone seeking relief from the beast to get on the D3 regimen. Even if it isn't directly responsible for the end of my cycle, the health value of the supplementation can't hurt.

I'll continue to pop in and out of the forum here from time to time. But, it's hard not to enjoy the PF time with a little "out-of-sight, out-of-mind" right now. Best of luck to current sufferers, and I hope you all find great relief!
Back to top
  

One clusterhead's cure is another clusterhead's trigger.
http://facebook.com/theAnthonyCarter  
IP Logged
 
Pages: 1 2 
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!