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MichaelB CH.com Newbie Offline I Love CH.com! Posts: 3	CH & epilepsy Nov 8^th, 2013 at 1:51pm I have had epilepsy for over 30 years now CH. Some of the medication I am taking is for epilepsy all so. I'm afraid I'll od on epileptic medication at this rate. I take 20 1/2 tablets a day over half for epilepsy. Do others here have epilepsy and CH?
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JHK07 CH.com Junior Offline I Love CH.com! Posts: 98 Gender:	Re: CH & epilepsy Reply #1 - Nov 8^th, 2013 at 2:18pm Nope. But med that helped me is an anti seizure medication. (I think I read that somewhere) Topomax
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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: CH & epilepsy Reply #2 - Nov 9^th, 2013 at 7:36am CHs do sometimes respond to anticonvulsives like topomax or Dilantin, and overdose is definitely a concern. Can your doc draw blood levels for you to determine if you are in a safe and therapeutic range? Bring it up sooner rather than later, for your own peace of mind. blessings. lance
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Bob Johnson

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Re: CH & epilepsy
Reply #3 - Nov 9^th, 2013 at 9:19am

Could not find a medical citation later than this one which asked the question directly.
==============
Cephalalgia. 1984 Mar;4(1):39-44.
Headache and epilepsy: two autonomous entities?

Savoldi F, Tartara A, Manni R, Maurelli M.

The relationship between headache and epilepsy remains unresolved. We studied 3,600 patients affected by primary headache and 36 epileptic patients with a present or past history of headache. In the first group, no family history of epilepsy nor epileptiform EEG patterns were found. In the second group, there was no chronological relationship between epileptic seizure and headache attack in more than half of the patients; when found (46.1%) the relationship was neither precise nor specific. Taken as a whole, these data suggest the autonomous nature of epilepsy and headache.

PMID: 6713523 [PubMed]

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Vikinggirl CH.com Junior Offline I Love CH.com! Posts: 47 Norway Gender:	Re: CH & epilepsy Reply #4 - Nov 11^th, 2013 at 4:11am In my family we believe in sharing the "blessinns". I have the CH and my son has the epilepsy.......
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Jair Crawford

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Re: CH & epilepsy
Reply #5 - Nov 11^th, 2013 at 12:41pm

It's interesting that you bring up a possible relation between CH and Epilepsy, and also in another thread CH and Tics.

I have read that there might be a relation between tics and seizures, and I have also read that there might be a relation between seizures and some types of migraine. (NOT saying migraine is the same as CH. It's not the same /at all/)

I'm wondering if all of these things have a similar cause? Electric storms of some kind in the brain?

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midwestbeth

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Re: CH & epilepsy
Reply #6 - Nov 13^th, 2013 at 3:13pm

My hubby has epilepsy (seizure free for the last 15 years, but still takes the meds). The last time I talked to my Dr, I brought up the subject of epilepsy and ch. The Dr said the brain activity was similar during seizures and ch as seen on mri's. We get the pain and people with epilepsy have seizures. Hope my kids grow old with no neurological disorders (fingers crossed)

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Karla

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Re: CH & epilepsy
Reply #7 - Nov 14^th, 2013 at 5:34pm

I had epilepsy real bad. Over 30 complex partial siezures a day and some grand mals also. I was allergic to all the meds on the market except for topamax and neurontin. However they did nothing to prevent my siezures. I was born with epilepsy and had it until 1993 when they just stopped after being prayed for. However, in 1998, I started getting chronic cluster headaches real bad. 8 a day. In level 10 pain for over 16 hours a day. None of the typical or routine meds for ch worked to prevent them. I asked the ha specialist and the neurologist if there was any link between the two and I was assured there was not. Just a freak thing I was told. Looks like you had better answers than I did.

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Karla&&suffer chronic ch &&ch.com groupie since 1999&&Proud Mom of Chris USMC Semper Fi

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Ricardo

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Re: CH & epilepsy
Reply #8 - Nov 18^th, 2013 at 10:54am

I had grand mal seizures for a few years. No symptoms at all until I was 23 then they came out hard. Stopped eating gluten and dairy, no more seizures...it's been about 6 years. Never noticed any change in my clusters though, and the epilepsy meds that they gave me (that did nothing for the epilepsy, only cannabis could control the seizures) never seemed to help with my clusters.

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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3708 Bremerton, WA Gender:	Re: CH & epilepsy Reply #9 - Nov 19^th, 2013 at 10:36pm See VitaminDWiki: Epilepsy seizures reduced by 40 percent after vitamin D levels normalized – April 2012 Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Lots of other links on the relationship between epilepsy and a vitamin D3 deficiency... Take care, V/R, Batch
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