Hello Mark,

I'm glad you found us. Please, read as much as you can here, especially the medications and treatments board. There is a vast wealth of info. and help at your fingertips.

Hang in there!
Melissa

If you plan  to stick around:

It will help us to direct you to good sources of assistance if you will tell us where you live (city & state, if U.S. or country). At the Home page: Help button-->Edit & Profile --> Location.
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If you have the option, we suggest lining up a headache specialist. Most docs simply lack the experience/traiining to work with complex headache disorders.
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LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or ; On-line screen to find a physician.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
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Print the PDF file, below. Introduces you to the range of meds used for Cluster and is a tool to discuss options with any doc you see.

Hi and welcome

You are not the first person to experience tears on first reading these forums, I and many others have done the same. It's amazing what it is like to find somewhere where people just understand what you're going through and try to make a difference.

As other have said, you need to work with a headache specialist to get the right treatment for CH as there is a lot more than just prednisione to treat CH.

Tell us more about you and your CHs. Plus start reading all you can and you'll learn so much. Ask anything you can think of and someone will likely know the answers.