I am curious if anyone here has ever discussed the D3 regimen with a knowledgable doctor who specializes in CH.  I showed some of the info/data to my neuro who is pretty good on CH knowledge and treatment and he was deeply skeptical.

Has anyone had more encouraging responses?

Thx.

What Mike said.  My Neuro is not a CH expert, but I love him because he will work with me and is willing to learn, even from a patient.  He was skeptical about D3, and was concerned about my blood levels, but has become more interested as I have had success with it.  I'm not PF, but about 75-80% better as long as I keep my numbers high. 

Jerry

BarbaraD wrote on Jan 7^th, 2014 at 7:17am:


Lawyers

That is the real reason why so many doctors will be reluctant to endorse our use of vitamin D3 or to recommend it to others since there is a lack of large scale medical trials using double blind protocols.

But plenty are very interested in it for sure when they see the results.

"I asked my neuro to look over the D3 materials with an eye toward trying it.  His response was essentially that there is no medical reason to believe that this would have any effect on CH." 

There must be a reason it works though. Over 80% success rate can't be coincidence.

I've never been much of a believer in taking loads of suppliments. I always thought if you had a good diet, and were not deficient in anything, then that was good enough. If I didn't have rickets, scurvy etc. then I was getting enough of what I needed.

But, I do have CH and I was deficient in D3. I saw a possible connection,  so I changed my tune and decided I should be willing to try anything once. I've been on D3 for about 6 months now and am no longer deficient, and while I am not totally pain free the difference is amazing. My CH's are much shorter in duration and the pain is mild enough to be unnoticeable to others. So it works for me.

I would start immediately - you have absolutely nothing to lose.
Good luck with it. Maz.

Well something is sure working for me. Haven't had a hit since Oct 21st and that's amazing to me (and those of you who've known me for a long time). I've been chronic since July of 1997 and have NEVER gone that long (or even over a week) without a CH.

I thought the demand valve was great (and it was), but this is something else.. I'm NOT hurting and I wouldn't miss a dose of vitamins. But just the D3 alone won't get it... have to put the rest of the regimen to work with it (or so Pete told me).

I've tried everything from banana peels to tobacco sauce to who knows what to stop these things and this is the only thing that's worked so far.

I'm a believer... 

I'll reiterate this one... Finding the "right" doctor is the best thing you can do for CH. One who will work with you and will be open-minded.

I've been very lucky with my neuro for the past 20 years. His main goal is to get me PF and he's willing to go along with anything WE come up with here. And he LISTENS to what we come up with and asks questions.

He's very excited about the D3 regimen and said he's going to prescribe it to other CH patients since it seems to be working for me (and I've been his problem child for the last 20 years).

The success rate with D3 has been so great that there IS something here with it so if your doctor doesn't understand it - then I'd say find another doctor. Because it IS working for too many people NOT to be worth looking into.

With that said... I'll get off my soapbox.