Click this link to read a post I like on the clusterheadaches.com message board...

Hoppy

CH.com Alumnus

Offline

LAUGHTER IS THE BEST MEDICINE

Posts: 1890
Perth WA
Gender: male

CH's and your age?
Jan 5^th, 2014 at 6:28pm

Rob wrote,
I have read and heard from neurologists that there is an end in site with duration. I am 41 years now and things have drastically improved but just doesn't seem to want to go away, The end is in site.

My Questioning

is. Has anyone become CH free as you've
grown older. Mine started when i was 27.Still with me, age 70, 43yrs. I started the vitamin D3 regime. I'm now CH free.

Hoppy.

Back to top

« Last Edit: Jan 6^th, 2014 at 1:19am by Hoppy »

IP Logged

Click Here to visit the CH.com Facebook page!

maz CH.com Hall of Famer Offline I Love CH.com! Posts: 1071 Hampshire, England Gender:	Re: CH's and your age? Reply #1 - Jan 5^th, 2014 at 7:39pm Mine didn't start till I was 57. 63 now.
Back to top	IP Logged

Rumeke CH.com Veteran Offline Posts: 173 Westfield, NC Gender:	Re: CH's and your age? Reply #2 - Jan 5^th, 2014 at 8:23pm I was 55 when mine started..66 now. I always thought CH started when one was young but my neuro says most of his sufferers were past 50 when they started. Judy
Back to top	IP Logged

Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: CH's and your age? Reply #3 - Jan 5^th, 2014 at 9:58pm Hi Maz & Judy, You've got me curious. Did you suffer from Migraine Headaches before the CH's started? Hoppy.
Back to top	IP Logged

maz

CH.com Hall of Famer

Offline

I Love CH.com!

Posts: 1071
Hampshire, England
Gender: female

Re: CH's and your age?
Reply #4 - Jan 6^th, 2014 at 5:33am

Hi Hoppy
No. I often had ordinary headaches - more often than most people, but could always take care of them with 2 or 3 asprins. There were 2 occasions when I was a child that may have been migraine. Once when we were on holiday in the north of England visiting grandparents, and once when my teacher could see something was wrong and sent me home from school, but on both occasions I was only 9 or 10 years old. Other than that, no migraines.
Maz.

Back to top

« Last Edit: Jan 6^th, 2014 at 5:34am by maz »

IP Logged

Rumeke CH.com Veteran Offline Posts: 173 Westfield, NC Gender:	Re: CH's and your age? Reply #5 - Jan 6^th, 2014 at 10:16am No migraine here..just the 'monthly' girl headache. They could be pretty bad but an advil and pepsi usually took care of them. I did get a lot of barometer headaches. My sister however gets migraines.
Back to top	IP Logged

Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: CH's and your age? Reply #6 - Jan 6^th, 2014 at 7:06pm Hi Maz & Judy, From what i've read, CH's normally present themselves when your between the age 25-35. But, i've also read, neuros say most CH's in men start at age 50yrs. So with yours starting so late in life, you really have to wonder, WHY. Hoppy.
Back to top	IP Logged

maz

CH.com Hall of Famer

Offline

I Love CH.com!

Posts: 1071
Hampshire, England
Gender: female

Re: CH's and your age?
Reply #7 - Jan 6^th, 2014 at 8:12pm

It would be interesting to know the proportion of women who start late. I have met a young woman - 28 now, who started when she was pregnant about 6 years ago. Perhaps for us it's a girl thing - hormone changes or something. That doesn't explain the male sufferers though.
I just thank God I've only had a short time of this thing and was able to enjoy bringing up my children.
Maybe if one particular neuro has, by coincidence, only seen younger patients, and another has only seen older ones it would explain the contradiction. After all, none of them see many. My neuro said I was his second in his whole career, and he's older than me. Does that make sense?
Maz.

Back to top

« Last Edit: Jan 6^th, 2014 at 8:19pm by maz »

IP Logged

Rumeke

CH.com Veteran

Offline

Posts: 173
Westfield, NC
Gender: female

Re: CH's and your age?
Reply #8 - Jan 6^th, 2014 at 8:28pm

I see what you mean Maz...my neuro has 5 chronic CH patients and the rest are episodic. Didn't think to ask him how many episodic and what sex like a dummy. He's been treating CH for many years and did say most of his patients started CH in their 40's or 50's. I love him because if you are in cycle and call for an appt..he sees you within a day.

I've taken estrogen since my 40's (now 66) and I asked him if I should stop. He said it had no bearing on my CH.

Sounds like someone needs to start a survey!

Judy

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

maz

CH.com Hall of Famer

Offline

I Love CH.com!

Posts: 1071
Hampshire, England
Gender: female

Re: CH's and your age?
Reply #9 - Jan 6^th, 2014 at 8:59pm

Judy, you are lucky to be able to see your neuro so quickly. Here in the UK you can't see a specialist without a referal from your GP, and it's harder to see a GP than it is to get an audience with the queen !!! I have a neuro appt. on 16th Jan - the first I've been able to get since Feb 14th last year. I'm fully expecting to get blasted for taking the D3 (one doctor called it an old wives tale I'd found on the internet), but I've had more help from this site than any doctor, and I shall tell him so. When they are so unavailable, they can hardly blame you for getting help where you can. Besides, the D3 seems to be working, and the meds he prescribed didn't. Luckily my GP, when I can get to see her, is open to suggestions and has no objections to it. I found out about sumatriptan injections for myself, and asked her for it. But other than that I have never been offered any of the drugs I've read so much about here, or oxygen. Seems I have to do my own research and treat myself.
I guess in a way we are lucky here too though. At least we don't have to pay, or worry about insurance. I would definately not be able to have my injections if I had to pay vast sums for them. I've been able to stockpile some, so next time the beast comes calling I'm ready for him.
Maz.

Back to top

IP Logged

Rumeke

CH.com Veteran

Offline

Posts: 173
Westfield, NC
Gender: female

Re: CH's and your age?
Reply #10 - Jan 6^th, 2014 at 9:53pm

I dreaded telling my GP about the D3 regimen I was taking and especially how much D3 (20,000). I printed out the regimen plus some other stuff and gave it to him. After I was done he said, you know if it works..do it. He also said in 5 yrs it would probably be an accepted treatment but for now the big pharma would discourage it...too much $$ to be made with prescriptions. Shocked me to say the least since he is part of a big medical center here in the States. It helped that my glucose level dropped 10 pts and my blood pressure is down too!

See if you can get a D25 test done and report back here. As for the scripts, my neuro would only prescribe O2 and it is the accepted treatment, even according to the Mayo Clinic! Possibly someone on here can offer some guidance to at least get the O2 which will save your life!

Good luck on the 16th!

Judy

Back to top

IP Logged

Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: CH's and your age? Reply #11 - Jan 6^th, 2014 at 10:07pm Hi Maz & Judy, Here in OZ we can get to see a doctor the same day, and if he bulk bills it costs you nothing, otherwise it's $67.00 a visit, which you can claim back a proportion from medicare. You have to pay for the script. Well it seems were no closer to an answer. And, back to we are all different Hoppy.
Back to top	IP Logged

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: CH's and your age? Reply #12 - Jan 7^th, 2014 at 6:48am After many years of being on this message borad I've noticed that: Men usually start CH in thier early 20's and are mainly episodic. Women usually start CH in thier 50's and are mainly chronic. Kinda points to some sort of hormone thingy.
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: CH's and your age? Reply #13 - Jan 7^th, 2014 at 8:41am Started when I was 39. Episodic. I am now 61 and chronic. No history of migraines. blessings. lance
Back to top	IP Logged

LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: CH's and your age? Reply #14 - Jan 7^th, 2014 at 8:42pm Episodic CH since 11 yrs old, now 45. -Gregg in Las Vegas
Back to top	Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019 IP Logged

Dan S. CH.com Newbie Offline I Love CH.com! Posts: 10 Denver, CO Gender:	Re: CH's and your age? Reply #15 - Jan 8^th, 2014 at 12:20am Started as an episodic sufferer at age 32 or 33. I'm now 49 and still episodic. The only difference is I used to get the clusters in fall (late October), but last 9 years they've occurred around Christmas. Blessings to you all.
Back to top	IP Logged

blacklab

Ex Member

Re: CH's and your age?
Reply #16 - Jan 8^th, 2014 at 2:01am

started episodic at 48 (2009 )
in recalling, had only 3 0r 4 shocking headaches pryor to that at different stages in life, but they were one of's. got beer headaches in my twenties, gave up beer, but was fine to drink it 3 or 4 years later, ( like when you drink an ice drink to quick ) couldn't finsh a glass without it coming on, would only last 10 minutes. ( kip 3 )
started getting beer headaches again in 2000, couldn't figure out why, gave up beer perminantly in 2001 because it didn't matter when i'de try a beer, the ice headache would happen ,then full on clusters started in 2009.
I believe I had the cluster happening inside me, from an early age, but it didn't really show itself, apart from when trying to have a beer.
and yes, I still crave the taste of a beer
but in cycle or not, I just cant bring myself to try !
colin

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: CH's and your age? Reply #17 - Jan 8^th, 2014 at 8:15am In a survey of over 12,000 clusterheads, 72% started before the age of 29.
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

Karla

CH.com Alumnus

Offline

One of Many and Never
Alone - Join OUCH

Posts: 3837
x1|Madison WI USA
Gender: female

Re: CH's and your age?
Reply #18 - Jan 8^th, 2014 at 10:12am

My ch started at a young age of 31 if I remember correctly. I had never had a ha a day in my life before. I started also getting migraines chronically like 8-15 times a month. About three years latter I had a hysterectomy. It did not effect my ch at all but my migraines stopped to like 1 or 2 a year. So my migraines were hormonal but ch was not. PS NO estrogen replacement therapy because of me having endometriosis also.

Back to top

Karla&&suffer chronic ch &&ch.com groupie since 1999&&Proud Mom of Chris USMC Semper Fi

IP Logged

Kranskie CH.com Junior Offline Sarcasm is a bonus Posts: 33	Re: CH's and your age? Reply #19 - Jan 9^th, 2014 at 9:05am Mine began when I was 14, lasted for 19 years episodic. Currently two weeks from the magical 11 month borderline of becoming a chronic, though my neuro already wrote me as a chronic in diagnosis papers for the insurance company.
Back to top	IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: CH's and your age? Reply #20 - Jan 9^th, 2014 at 9:14am Late teens for me......about to turn 54....3.5 years pain free on The Batch Regimen! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Jeffire

CH.com Newbie

Offline

I Love CH.com!

Posts: 15

Re: CH's and your age?
Reply #21 - Jan 9^th, 2014 at 1:46pm

My CH's started at 42 in 2007. Episodic until June of 2012. I was in cycle until somewhere in October of that year. They slowly morphed into chronic paroxysmal hemicrania over the course of that month. I now get anywhere from 5 -25 hits a day. The indomethacin and verapamil keep the pain down to a kip 3-4. Without them the pain runs at a 6-7.

Back to top

IP Logged

metoo

CH.com Junior

Offline

Posts: 56
ann arbor mi usa
Gender: male

Re: CH's and your age?
Reply #22 - Jan 9^th, 2014 at 10:18pm

Mine started about age 55. I had only had self-abuse headaches until I suffered significant injuries in an auto accident in 1994. Lots of troubles as a result of that, but I haven't had a day without some sort of headaches since. Odd, but the ones that I thought were "so bad" turned out to pale in comparison to CH. Thinking back, I believe that I had suffered CH shadows and mild hits until they fully fulminated. Heck, I'm in denial most of the time, so my recollection is a bit fuzzy. It's as if I don't want to recall. That's why I started a diary. I typically enter something every day during a cycle. My last cycle was 21 weeks. Wahhh. Then almost a year, now on again and in about week 10.

Once you get a plan of abort action, remember that it typically helps to get on it ASAP. I learned that here. It's good advice.
- TJ

Back to top

#4 - Avoid annoying people who don't deserve it.

IP Logged

Hoppy CH.com Alumnus Offline LAUGHTER IS THE BEST MEDICINE Posts: 1890 Perth WA Gender:	Re: CH's and your age? Reply #23 - Jan 14^th, 2014 at 7:00pm Hi All, Thanks for all of your replies. It's just amazing how the works in such mysterious ways. Hoppy.
Back to top	IP Logged

Emjay CH.com Junior Offline I Love CH.com! Posts: 78	Re: CH's and your age? Reply #24 - Jan 16^th, 2014 at 2:12pm Mine started at 31; episodic. Now 56 - still episodic. However, the D3 is keeping me pf!
Back to top	IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!