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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Carnet Demand Valve - Replacement Exhalation Valve

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Carnet Demand Valve - Replacement Exhalation Valve (Read 2511 times)

CHMatt

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Carnet Demand Valve - Replacement Exhalation Valve
Jan 24^th, 2014 at 12:10pm

Does anyone know where I can purchase replacement exhalation valves for my Carnet demand valve in the US? Mine broke last night. Lifegas (who I purchase it from) and Linde no longer carry them. Lifegas suggested I contact BPR Medical, who doesn’t deal with patients directly (

CORRECTION - THE BPR MEDICAL US DISTRIBUTOR, APPLIED HOME HEALTHCARE EQUIPMENT HAS POOR CUSTOMER SERVICE. BPR MEDICAL HAS BEEN HELPFUL)

and who have poor customer service if you’re a patient – they couldn’t get me off the phone fast enough once they found out I was a patient). I can’t find anywhere to buy these replacement parts. Carnet does not seem to have their own website now, either. Everywhere I look they refer me to Linde or BPR, or BOP, who are a division of Linde in the UK. I will gladly purchase a 10-pack if that’s what it takes to get it ordered and fast. Thanks

Matt

« Last Edit: Jan 30^th, 2014 at 9:23am by CHMatt »

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Carnet Demand Valve - Replacement Exhalation Valve Reply #1 - Jan 24^th, 2014 at 3:33pm Matt.... I was unaware LifeGas stopped selling these.....I've sent a couple of emails in an attempt to find a parts source. I'll let you know what I find out.
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CHMatt CH.com Junior Offline Posts: 45 Chicago Gender:	Re: Carnet Demand Valve - Replacement Exhalation Valve Reply #2 - Jan 24^th, 2014 at 3:49pm At a minimum they've stopped selling the replacement exhalation valves. I can't say for certain they no longer sell the demand valves themselves. Please let me know what you hear. Thanks. Matt
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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Carnet Demand Valve - Replacement Exhalation Valve Reply #3 - Jan 24^th, 2014 at 4:35pm I've received a reply....LifeGas DOES still sell them. Check your PM's for a contact email.
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CHMatt CH.com Junior Offline Posts: 45 Chicago Gender:	Re: Carnet Demand Valve - Replacement Exhalation Valve Reply #4 - Jan 27^th, 2014 at 10:29am LifeGas does still sell the demand valves, but does not carry the accessories, so I'm still looking for a replacement exhalation valve. I sent out emails to the suggested sources but have not got back a response yet. Matt
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CHMatt

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Re: Carnet Demand Valve - Replacement Exhalation Valve
Reply #5 - Jan 28^th, 2014 at 4:25pm

Ok, I tried everyone's suggestions and no luck - I'm still looking. If anyone else has any other suggestions I'd very much appreciate the help. Does anyone "across the pond" know if these are easier to obtain there? I believe Carnet was aquired by BPR Medical, so it'd be a question of if there are suppliers in the UK of their demand valve and these replacements. I'm in the middle of a very active period of headaches right now and am occassionaly rough on the gear when the KIP level goes up, so I'd very much like to have a backup on hand for when the time comes. In fact, I'd rather just buy a 10 pack (which is one of their packages) so I don't have to go through this quest again any time soon. Thanks.

Matt

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Carnet Demand Valve - Replacement Exhalation Valve Reply #6 - Jan 28^th, 2014 at 4:56pm No answers yet.....but I'm making some inquiries.....
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CHMatt

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Re: Carnet Demand Valve - Replacement Exhalation Valve
Reply #7 - Jan 30^th, 2014 at 9:31am

So here's the latest on my quest:

I finally got in contact with someone from BPR Medical, who was very helpful and set me up with a replacement. He stated that although LifeGas has not been purchasing replacement Exhalation Valves for the Carnet demand valve, they should be. The gentleman I exchanged emails with is an international account manager with BPR Medical and he said he will be speaking with LifeGas about this matter. When I spoke with Gail at LifeGas she said that Anthony stated that they will not be carrying that part any longer, so this may not be a done deal yet.

For the record, BPR has been a class act to deal with (it was their US distributor that had poor customer service that I incorrectly blame BPR for in my initial post - sorry BPR)

Regardless, if anyone comes up with good leads it wouldn't hurt to have them on hand.

Matt

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